you are not a burden. you are enough. (:̲̅:̲̅:̲̅[̲̅:♡:]̲̅:̲̅:̲̅:̲̅)
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you are not a burden. you are enough. (:̲̅:̲̅:̲̅[̲̅:♡:]̲̅:̲̅:̲̅:̲̅)
I'M SORRY I MIGHT HAVE HIP DYSLPASIA? ARE WE DEADASS?
It’s wild to think when I first made my tumblr I was a teen who had never had a bad headache, and now I’m a double brain injury survivor at 30, and have entirely forgotten what a day without chronic head and nerve pain is like.
I don’t know how I’m even still creating but I count my lucky stars each day that I have remained able to do so despite my deteriorating quality of life
Getting a new diagnosis after a few years of things being wrong but wondering if you're making it up is like:
"YES! I KNEW something was wrong!! Now I can manage it and try to have more days out of bed!"
and also
"What if I faked it all and made the tests for this very specific condition (that I didn't think I had) positive, despite literally having no control over the tests whatsoever, and what if I'm just lazy like everyone always said despite the fact that laziness FEELS GOOD and this feels terrible"
I lowk forget that I CAN use the disabled bathroom without feeling guilty bc i actually am disabled 💔 in my world every bathroom would have a bar to pull yourself up on.
lol i was reading through my health records and i found something funny in my 1 single visit record from the dysautonomia clinic I saw for like 5 years. they took my blood pressure at 2:35 PM during an echocardiogram and it was 100/60. At 3:45 PM, it was 128/84.
this is possibly the only evidence i have that my blood pressure changes dramatically when nothing's particularly wrong because i do not have the rest of the records from this clinic. none of my other providers ever enter readings at different times on the same day into my chart (they dont understand how POTS works) so this is the first time ive found documented evidence of it in my records
ughhhh im gonna be traveling super soon and i want CATSA (canadian tsa) and shit to know to be patient with me bc im autistic and SUCK at handling airports... but the sunflower lanyards are ugly as fuck tbh😭
thinking of making a kandi sunflower necklace? i'll keep yall posted!