#crohnieproblems

[thechronicbellydancer]

#crohnieproblems I would have been there! And hopefully one day soon Ill get to be 🙏🏽 | I used to be there, in this life though dimensions come to pass... I so want to be able to #manifest the beautiful life I desire, but what I want does not align with havig a #chronicillness ... And it would seem there isn't too much I can do to change that. | I #pray that one day Ill be happy, and living the life I want to live. I #hope that one day I'll be physically #healthy and feeling good enough to make plans and have friends and participate in events etc... | I am trying hard to #believe that one day I'll get to live again 🙏🏽 | #thechronicbellydancer #chronicillness #divinefeminine #crohnsawareness #spiritualawakening #mixedgirlmagic #goddessenergy #crohnie #chronicpain #spoonie #ibdawareness #crohnsdisease #invisibleillness (at Planet Earth) https://www.instagram.com/p/Bz9X5v8lQhq/?igshid=cvd50agsdwz

[thechronicbellydancer]

A little slice of the sweet creatures who help keep me sane(ish)... Oh and the hummingbirds that dive bombed me. Guess it's time to play again with life... Somehow #crohnieproblems 💜 | #thechronicbellydancer #sisterhood #divinefeminine #healing #spiritualawakening #mixedgirlmagic #goddessenergy #crohnie #crohnsdisease #spoonie #ibdawareness #crohnsdisease #animalhealing #animalguides (at Los Angeles, California) https://www.instagram.com/p/BzauLOplxmI/?igshid=1bzo84b4vel6y

[imacrohnie]

Follow up

The follow up with my GI confirmed that my job is contributing to my flare ups. He wants me to have my Cimzia injections every 3 weeks, instead of every 4 weeks. My main complaint was fatigue and I was pretty much told it's part of the disease. 😣 If it continues like it did this past week, I may go to my primary for blood work, etc. This was the first follow up I had where no blood work was ordered, since I had it done about a month ago when I was having issues. So we'll see!

[imacrohnie]

Oh, hello fatigue....

The fatigue has come back! A week before my injections! :/ I'm waiting it out for the remainder of this week, before calling my doctor. Last month, the day I was due for my Cimzia I was running to the bathroom, which had not happened since May. After my injections I was fine and had more energy. This stinks because it will mean sooner injections, which means my body is starting to become immune to the meds. It's been a year, so I've got a bit left, right? After that I pretty much have 1 med left before experimental drugs.....yay!

[imacrohnie]

Immunosuppressant annoyance...

The one day I'm able to get my flu vaccine and I have an extremely painful swollen gland in my neck. Hopefully next month will work out and hopefully with the beginning of the school year starting up, I won't catch the flu beforehand.

[imacrohnie]

Been feeling pretty tired and fatigued lately....I've been taking 2 hour naps in the afternoon when I get home from work.

Hoping this increase in fatigue isn't a bad sign. *fingers crossed*

[imacrohnie]

I Want Salad!!

Last night I went to a meeting for my part time seasonal position where I work as a waitress. For dinner it was pizza & wings as well as a nice antipasti salad. The salad looked SO good and I was SO jealous of everyone eating it! I was there telling myself, "It's not worth trying it out tonight, if I am going to be suffering later." So....I sat there telling myself to be happy with the raw carrot sticks on my plate.

I was not happy.

I was sad.

Just a little reminder, that while I've been feeling and doing great as of late, I still have active Crohn's Disease.

[crohns-girl]

#crohns #crohnieproblems #colitis #ulcerativecolitis #ibd #coloncancer #cancer