#crohnsandcolitis

[degenderates]

Life is just an eternal cycle of going to the bathroom

[mayofthemoon]

Beth and Jen's 10k for Crohn’s & Colitis UK

Help Beth McHale-Smith raise money to support Crohn’s & Colitis UK

my friend was recently diagnosed with crohn’s n his mum & sister are doing a charity run to support the cause ! would mean a lot if u could share ! thanks ☺️

[luthienirl]

Crohns And Colitis Awareness Week

It's Crohns And Colitis Awareness Week, so I'm going to bitch about this.

I have had Ulcerative Colitis for one-third of my life. It will never, ever go away. There's no cure. The absolute most I can hope for is brief periods of remission.

I've missed out on a lot of life events that most people take for granted in their 20s and 30s. Like, I've been stuck in the bathroom for my kid's field trips, grandparents' funerals, work networking events, movie premiers, family holidays…

I also got written up at work for absences until I explained that I have this illness which will never go away and requested ADA accommodation to attend doctor appointments and medication infusions (without pay). And a cubicle close to the restrooms.

My employer demanded a doctor's note, probably thinking I wouldn't be able to get one.

Joke's on them; my gastroenterologist was more than happy to sign a letter explaining why these accommodations were necessary.

The treatments available are for Inflammatory Bowel Disease are effective in only small percentages of the population, and most of them aren't particularly safe. Steroids (prednisone) work great but wreck my blood sugar control, fuck with my mood, and make me fat. Most of the treatment options involve some level of immunosuppression, and that's not a great thing in a post-COVID world that wants things to be "normal" again.

I'm currently on a kind of experimental treatment that targets mast cells, and it seems to be keeping things under control.

Only through research can a cure for #IBD - or even just effective AND SAFE medications - be realized.

If you're interested in learning more, or donating to the Crohns & Colitis Foundation to help fund research and patient care programs, please visit https://tiltify.com/@sullivantwins/mrgl.

[fibrixx188]

Chronisch Kranke Menschen haben gelernt sich nicht zu beschweren... denn nur wenige haben Verständnis.

[arobats]

what is the difference between a normal injection site reaction of itchiness vs an allergic reaction i should talk to my doctor about

[pelipper]

I had my bowel resection surgery yesterday evening! My surgeon was very happy with the results and told me that everything went super well. After the epidural I had wore off I was in some serious pain, but thankfully the nurses here gave me something stronger after Tylenol did nothing.

I was able to do a few laps around my hospital floor, and while I still feel pain right now it's pretty manageable, especially considering how much pain I was in before I was admitted. This doesn't come close to what I felt with my bowel obstruction back in March, and I just know remission is right around the corner! 💪✨️

[torque-witch]

Apparently there’s a #prednisonechallenge going around in the chronic illness community! 
•
Prednisone saved my life and got me a diagnosis of Crohn’s disease, but it’s a hell of a drug you don’t want to wish on your worst enemy. Beyond the weight gain I experienced tremors, night sweats, insomnia, increasing fatty liver levels and was diagnosed with severe IBS as a product of long-term dependence to the drug. I dread even short-term stints with prednisone because of the awful cold sweats and general intolerance I have of it now. Make sure to check up on your friends on prednisone! We’re not okay lol
•
•
#chronicillness #chronicillnesswarrior #ibdawareness #crohnsdisease #crohnsandcolitis #prednisone #autoimmunedisease 
https://www.instagram.com/p/B8wRIvtHSZw/?igshid=xofn7owcsdr8

[crohnicallyfab]

Anyone else have a dog that is so much more than a pet? 😍 • • We adopted Denali when he was just 2 years old and within 2 months we found out we were pregnant with Jude. He knew WAY before I did. He went from being attached to my hubby to following me around 24/7 and snuggling up to my belly. I just thought I became his favorite... but no, it was Jude that was his favorite. 😅 • • We got asked so many times if we were worried how he was going to react to a baby, but literally from the second we brought her home (swipe right) he knew she was ours and that was his new sissy. 🥰 • • He alerts me when I’m gonna flare, sits with me in the bathroom when I’m prepping for a colonoscopy, lays on top of me when I’m having anxiety attacks, and of course paws at me when he wants pets. 😝 • • He’s nine now and I know our years are getting limited but just looking back at the last 7 years with him by my side I can’t imagine him not being a part of our family.❤️ Love this doggo so dang much! ❤️❤️ . . . . . . #crohns #crohnie #husky #huskiesofinstagram #crohnsdisease #crohnswarrior #crohnsandcolitis #crohnsawareness #colitis #ulcerativecolitis #ibd #ibdawareness #ibdwarrior #ibdsuperheroes #dogsofinsta #spoonie #chronicillness #chronicillnesswarrior #adoptdontshop #autoimmunedisease https://www.instagram.com/p/CB3KgqDjagT/?igshid=1s0ssxwowm8lo