#cutis laxa

[beastgal]

i think i have acquired cutis laxa associated w my celiac/autoimmune/allergy issues but tbh good luck to me as a 20 yr old girl convincing my drs of anything... and besides... there’s not much u can do about it

[mamas4healthcare-blog]

Thank you for having us here. If I had to write to politicians (which I plan on doing), I would say something along these lines:

This is my daughter, Natalie. She is four years old and is a spit fire. She is my entire world. However, she is a poster board for pre-existing conditions. Some of her conditions are: cutis laxa, dandy walker malformation, epilepsy, dystonia, she has a feeding tube, failure to thrive, hypotonia, and more. Her “problems list” is 2.5 pages long, she sees 16 specialists, physical therapist, occupational therapist, and pool therapist. She is on 10 medications a day. She also has equipment we rent each month such as cough assist, vest machine, suction machine, and a feeding pump.

The AHCA literally threatens her life. Currently she is on Medicaid because we adopted her from the foster system. However, block grants could cut her potential to funding. If we either lost her Medicaid or the majority of her Medicaid, we literally couldn’t afford her monthly medications, therapies, or specialists. If I had to go to bare minimum items each month, it would still cost me $10,000 a month to simply keep her alive, that isn’t even considering quality of life things. All of her pre-existing conditions would make her exempt from pretty much any private insurance company on the market under AHCA. She is my fighter who already has fought so hard, she shouldn’t also need to fight for the basic right to medical care to keep her alive.

[doktercilik]

Cutis Laxa

#Abnormal, #Bayi, #CutisLaxa, #Darah, #Jantung, #Kulit, #NZ, #Operasi, #ParuParu, #Terapi, #Wajah Cutis Laxa Cutis Laxa adalah suatu gangguan jaringan ikat yang jarang terjadi, dimana kulit sangat mudah teregang dan menggantung. PENYEBAB Pada cutis laxa, serat elastik yang terdapat di dalam jaringan ikat menjadi longgar. Terkadang gangguan ini hanya mengenai kulit, tetapi semua jaringan ikat di seluruh... http://doktercilik.com/info-dokter-cilik/masalah-kesehatan-anak/kelainan-jaringan-penghubung-bawaan/cutis-laxa/

[blogsandmorebyaderemi]

Check Out This Four Year Old Boy Who Looks Like An 80-year-old

Check Out This Four Year Old Boy Who Looks Like An 80-year-old

Tragic four-year-old Bayezid Hossain has been born with an incredibly rare condition that has left him looking like an 80-year-old man.

Bayezid, from outside Magura in southern Bangladesh, also has difficulties passing urine and already has weak and broken teeth. Children in his village, where he is affectionately referred to as ‘old man,’ were afraid to play with him at first – even though his…

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[y35pm]

Kupfer

Kupfer Synonyme: Cu Zusammenfassung

Kupfer ist ein Spurenelement, das im menschlichen Körper für die Herstellung der Pigmente und der roten Blutkörperchen, für die Stärkung des Abwehrsystems, für die Wundheilung, für die Eisenaufnahme und für den Aufbau verschiedener Gewebe benötigt wird. Der Mensch kann seinen täglichen Kupferbedarf mit einer ausgewogenen Ernährung decken. Wird der…

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