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I’m writing a blog
I keep meaning to write. I have every intention. Then at the end of the day, I realize I didn’t write again. Normally I actually write my blog the day before but since WordPress had an update, I schedule the blog but it never posts. I finally got annoyed and stopped writing the day before and then stopped writing on the day. So here I am. I would love to say so much has happened since I last…
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Multiple Sclerosis Sucks
Hello to all. How are you feeling? Don’t we always hate that question? Multiple Sclerosis is a shitty disease. Have I said that recently? I remember I used to ask my neurologist every time I had an appointment, are you sure I have MS?” He always replied, “it wouldn’t be an appointment with you without you asking that question.” Unfortunately, the answer was always the same. Eventually I did stop…
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Multiple Sclerosis no rhyme or reason
Multiple Sclerosis no rhyme or reason
I say this all the time, you can’t plan for things because you just don’t know. What doesn’t cause problems one day may be a gigantic obstacle the next day. One day you feel fine the next you can’t get out of bed. People around me always say it’s the weather or may say maybe you’re getting sick, I just know it’s the nature of the disease.
A good example is when I was playing mahjong. I’ve had…
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Trying to stop gabapentin, lesson learned
Trying to stop gabapentin, lesson learned
Gabapentin is an anti-epileptic used to control some types of seizures in epilepsy. It is used in multiple sclerosis to control dysesthesias (pain caused by MS lesions) and the pain caused by spasticity. (As per the National Multiple Sclerosis Society)
I’ve been taking this drug for years. I’ve had it in a wide range of dosages from 100mg to 600mg. Probably about 4 or more years ago my doctor…
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I realized in my day to day life, regardless of my monotony, I am pretty happy. My multiple sclerosis has come to a point where my disability has limited my life participation. I spend most of my day watching television from my bed. Currently I have been watching old seasons of Law and Order SVU. When you watch as much TV as I do, you run out of current shows. I spend the day cuddling with my two…
No MRI changes but MS Worsening, Pool Theory
I wrote this blog a long time ago. I am reposting it because I just had my annual MRI. My doctor was happy to report that my MRI had no changes. No changes but my right side disability has not only caught up to my left side. It usually is worse. My right side that has overcompensated for the last 27 years with the weakness to the left side. The rest side where enabled me some form of mobility. My…
New Year, New Post
I made two simple resolutions this coming year; to join the Marianne Williamson daily workshop on both A Course in Miracles text and workbook and post blog posts again. Two very simple things that are easy to do. Plus two things that ultimately make me happy. So here I am with my first blog post of 2025. I have to say 2024 went really fast. I achieved a long time goal of mine. I hit every…
Crazy Spasm
For anyone that has pain with your multiple sclerosis or pain with any other disorder, I honestly have a lot of sympathy for you. I experienced a spasm that caused so much pain I couldn’t even move. It started as what I call an indigestion bubble. You ever get that gas bubble that travels trough your body and it can be painful. I always have to try to move or stretch for it to go away. Lately it…
