I would like more words for tired. Cause I'm not tired, sleep wouldn't make me feel better and I'm not sure I COULD sleep. Weary has a spiritual connotation that doesn't quite work. Exhausted is too much (and implies the solution is sleep, which as we've discussed isn't it). I'm just... tired. Low energy. Can't do anything but sit on the couch and pet my cat, because everything else takes up energy I just don't have. But it's not tired in the way most people think. So I need a new word.
I keep meaning to write. I have every intention. Then at the end of the day, I realize I didn’t write again. Normally I actually write my blog the day before but since WordPress had an update, I schedule the blog but it never posts. I finally got annoyed and stopped writing the day before and then stopped writing on the day. So here I am. I would love to say so much has happened since I last…
YYOOOOOO, I didn’t know this was a MS thing - I thought this was a normal human thing. It drives me nuts when I feel rain drops that don’t exist, at night I feel a “cat” walking on my bed, and the non-existent vibrating cell phone gets me EVERY TIME! Anyone else?
“Our ancestors have invented, we can at least innovate.” ― Amit Kalantri
DISCLAIMER! As a heads up, I want to let you know that I am still learning about my roots, my family, and my ancestors' stories. I am NOT an expert, but I will continue to do my research and share my findings with all of you.
For those who don't know, June is officially Filipino Heritage Month in Canada (and recently in Ontario)! It has brought so much joy and pride knowing that the Filipinx community is being recognized for their contributions from coast to coast.
As a Filipina-Canadian who was born and raised as an immigrant on a beautiful land called Turtle Island (settler-colonially known as North America) -- I do acknowledge that my family and I are guests in Canada and my roots are from the Philippines. Part of my roots is from Northern Philippines in a province known as Abra.
It turns out, I am a descendant of an Indigenous Mountainous Tribe called Tingguian (meaning People in the Mountains) due to my paternal-grandmother. My ancestors had tattoos on their bodies with beautiful meanings (including beauty and honour). They were able to hunt and fish for food and weave baskets and dye the fabrics for clothing.
1-2 years ago, I was able to order a dark poncho made by the Tingguians in Abra via Pinas Sadya (a local Filipino shop). When it arrived On the front, it had red threads sewn on the borders while there are four frogs from all four directions (N, S, E, & W) facing the star in the middle on both sides. Based on what I was told: "The weaves with frogs are typically worn during the rainy season. It is the belief of the tribe that it pleases the gods and will give them a bountiful harvest". From that point on, I knew that I would wear it in April each year for April showers (and May flowers lol).
Overall, I am happy and grateful that I am a descendant of the Tingguian tribe. This is a really cool fact that not a lot of people know about me. To be honest, I don't blame them. Every day is a new learning opportunity and I see it with a glass half full. I'm so happy that I found out how my ancestors were like prior to Spain's colonial invasion. However; I wish my grandmother was still here to tell me how much she knows. As the granddaughter of the Seeker of knowledge and wisdom, I am living up to her name by learning and asking questions of my ancestors' past and their way of life. When I have kids in the future, I will be sure to tell them about this part from my side. It is important to learn about the past in order to have a better future for all of humanity.
p.s. Please let me know if you or anyone knows where I can get more clothing made by the Tingguians. I would love to wear more clothing made by them ♥.
My hands are not good today. They're numb, clumsy, uncooerative, and they hurt. Despite that I sewed three buttons back onto two of my dresses, and I would like to celebrate my acomplishment by boasting about it. Because it was HARD, and I did it anyway.
Question for other people who menstruate and have MS. Do you find the days leading up to your period, and that first day, are just the WORST days energy wise? I was having just an awful day of struggling through my chores, and then went to pee and went, "oh yes, that makes sense".
Anyway, I'm completely drained and hungry, I'm tired of ordering food, but not up for making even a sandwich. Maybe a little more rest.
Hello to all. How are you feeling? Don’t we always hate that question? Multiple Sclerosis is a shitty disease. Have I said that recently? I remember I used to ask my neurologist every time I had an appointment, are you sure I have MS?” He always replied, “it wouldn’t be an appointment with you without you asking that question.” Unfortunately, the answer was always the same. Eventually I did stop…
