#ds.queue

[disabled-systems]

Disabled system culture is “ah now we have to call up 3 different specialists, who wants to do it?”

whoever is unlucky enough to be in front makes the phone calls. or our receptionist alters /lh

-eddie (he/him)

[disabled-systems]

question we must ask often. are we mentally foggy from the dissociation or are we feeling fuzzy from the Heart Condition

either way it is nap time :>

- bugg

THE BUGG!!! hi :)

god dont i know it. i dont. think? we have a heart condition. but we do have other things that make us feel Bad all the time /lh /relating

- eddie (he/him)

[disabled-systems]

Disabled system (specifically with a variable/episodic disability) culture is: Some Alter: "huh, wait we have [insert symptom] now?" Me: "We've had it for years?" Them: "What do you mean? The times I've fronted, I haven't felt that way." Me: "... are you sure your fronting didn't happen to correspond with when we didn't feel this way?" Them: "oh, very true....... Anyways this sucks, I'm leaving!" Me: ಠ_ಠ Rinse and repeat any time something happens with this body.

oh yeah i get this!! i think its really funny when people just piss off instead of being anywhere near our pain holders /lh

i try to hang out with Bu tho cause they get lonely :(

-aimee (any prns)

[disabled-systems]

hi new anon here! (sys tag is 🗞️📰! hi!!)

do you also know if it's normal to feel like you don't count as crippled because you dont ALWAYS need mobility aid?? I have severe chronic pain and H-EDS and struggle to walk without aid a lot, but I have good weeks where I can and ive been told I dont count as disabled because of it. It's made me doubt the validity of my disability a LOT

sorry that this was long we've bottled this up for YEARS

hope you're having an amazing day!!

im not sure about "normal", because as they say, the baseline should be no pain and no mental health issues, BUT! it IS very common and you are valid for it!

we struggle with this often when we need to use the disable bathrooms in public and dont have our cane or our wheelchair. we also struggle with it when our cane is making things worse, so we opt to just fold it up and carry it. at the end of the day, no ones comfort OR opinion but your own matters when it comes to be disabled! you arent suddenly abled because youre having a good-pain week.

anon claimed!

-aimee (any prns)

[disabled-systems]

Disabled system culture is being the designated alter for flareups D:

Worse is that its specific for our chest pain/breathing issues and im sourced from a war adjacent media where gassing was a thing 😭

Could we claim the ; >★< anon tag?

if it helps, following your brains logic with alter sources can be really cool! chest pain is no fun, we know first hand, but on a scientific level, its very cool that a brain can see someone such as you/your source and put them in a position to deal with something theyd be "used to" :D we just think its neat!

anon claimed!

-aimee (any prns)

[disabled-systems]

Physically disabled system culture is not realising you're hypermobile because you usually only have non-human alters fronting and they have no idea how far human bodies are meant to bend

THIS IS SOMETHING WE CAN RELATE TO!! our partner can too! one of our partner's frequent fronters is someone with extra limbs that dont have bones (draw your own conclusions about what they are /lh /nx) and he will put us in "jail", using their arms as a stand in for his extra limbs. our partner's arms bend VERY weirdly when he is in front /lh

-aimee (any prns) and carlos (he/him)

[disabled-systems]

Disabled system culture is

"you're just one of those transabled bitches!!! You're faking did too!!!!"

"*points at our multiple diagnosed disabilities* bitch what are these????"

-🕷️💤 anon

oh my god im so sorry!! personally i would rather be called a slur than be called trans(anything other than "gender/sexual") /lh

congrats on you dx's! dont ever feel invalid based on wether or not you have one though :)

-aimee (any prns)

[disabled-systems]

Disabled system culture is I just had a doctor's appointment and had to bring a list (amnesia is great) and there was so much on the list that my doctor gave me 2 more appointments so we can address everything-

And now I need to get my blood drawn so I know a little is gonna front and try to punch a nurse again (only reason we don't know if we're anemic or not for sure is cuz when we got our blood drawn for tests, it got cut short by a little punching a nurse-)

-🕷️💤 anon

oh wow!! im really glad you had a list though! i find keeping a health journal and updated list can be very beneficial :)

our current PC doctor seems to be listening to us a little better of late and we have a doctors appointment coming up soon to see if we can do some evaluations for MS before going into an MRI. good luck with the blood drawls!

-aimee (any prns)