#dsyautonomia

[thetimeisnowsomehow]

Heat stroke sucks

But my body gets cold so quick all i need is a shower and it's back to bloodless

Had like 3 showers so far, just allowing myself to shower when ever I feel to sick and hot becuase there's no escape from the heat

[thetimeisnowsomehow]

Heat stroke sucks

But my body gets cold so quick all i need is a shower and it's back to bloodless

Had like 3 showers so far, just allowing myself to shower when ever I feel to sick and hot becuase there's no escape from the heat

[diverselyable]

Even though we feel like we are a drag on others on our lives, remember that we are beautiful and fly to the highest mountains fighting everyday. We are strong and enough and we fight together. #chronicillness #invisibleillness #advocate #WARRIOR #dsyautonomia #dsyautonomiaawareness https://www.instagram.com/p/BobxG5Ahu1H/?utm_source=ig_tumblr_share&igshid=1xsssz5l2nfc6

[spoonielivingapp]

Sending Spoons✨ Thanks for sharing ✨💜 #Repost @mylifewithstripes ・・・ You don't see the mess beneath my skin the pain I endure because I am "the mask the mask the grin and lies it hides my face and shades my eyes I let the world see other wise because I wear a mask" #chronicallyfabulous #ehlersdanlossyndrome #dsyautonomia #spoonielivingapp

[nestofsalt]

My first day back to school is tomorrow and now I’m nervous. It’s the hardest (longest) schedule I’ve had so far. I have a limited supply of energy and I just have to hope I can handle it.This past two days, my health has been crappy, so not a positive sign. On top of the fatigue and all the other symptoms, the unpredictability of the symptoms makes planning just that much harder.