hello i am here to remind you again about how my twin and i are raising money for epilepsy research
ANYWAY so I haven’t told you guys a horrible story about my childhood lately so here it is: Both my sisters had fifth disease as smalls, and both had brain damage from febrile (high fever) seizures leading to childhood epilepsy for both. Patti grew out of it. Amy didn’t. One of her very early seizures happened at a friend of the family’s house, and I remember playing with a tin top, and then going to see what was going on and finding Amy having a seizure into a mayonnaise cake, although truthfully I don’t know if I remember that part exactly or if I just heard the story often enough to imagine it in detail. We were .... three? or so? I think.
Because we lived in such a small town and Eugene at the time had ... two ... maybe? neurologists and also, this was before the internet, Amy was stuck with the same guy who told our mother for twenty years that her nerve pain in her back was hysterical -- in the medical sense -- until someone actually took an MRI and discovered a disc had nearly cut all the way through her spinal cord. He was not such a good doctor. Amy went through a lot of medications without success until she tried first, a vagus nerve simulator (like a pacemaker, only it resets your brain), actual surgery to remove the damaged part of her right temporal lobe, and finally discovering the Modified Adkins Diet, aka the only damn thing that worked.
Okay, so imagine we had had the resources and information to try the diet thing first. We try not to, most of the time. It’s over with now.
That’s why we’re raising money, so nobody has to go through that again. If you have a spare dollar or two, please consider throwing it into the pot, or signalboosting, or joining us on June 20, 2015. We’re at $275 of our $1000 goal, and honestly we’re pretty amazed we made even this much (thanks mom!),
LOVE U GUYS. BE GOOD 2 URSELVES <3
