#epilepticon2018

[fuckepilepsy]

Dear fellow epilepsy-havers, I would like to know about your interests and hobbies. The things you love and indulge in to bring you comfort. Your special interests. I ask because indulging in my guilty pleasures and practicing my hobbies really goes a long way in stabilizing me, and it at least feels like it helps keep the seizures away.

[corrinthiarose]

seizures increase with lack of sleep, side effects of some anti-convulsants is insomnia... what. am. i. supposed. to. do.

[geofenderwrites]

I'm a person with epilepsy. On the 13rd November I'll celebrate 12 years since my first seizures. More than half of my life. But I'm also LGBTQ and this tattoo, which I drew, will mix those two aspects of my life.

[the-line--was--always-blurred]

Is this....a meme?

[queenofwinds]

@fuckepilepsy I blame you lol

[kaleidoscopicallykat]

I usually don't post things, but this got me feeling some kinda way. Hopefully someone finds this as funny as I do.

"No shake November"

[owenglade]

Taking a nap if you have sleep seizures is like playing russian roulette. Is this sudden extreme fatigue signalling an upcoming seizure or did I just overdo it again? Will I awake refreshed or will I be confused/disoriented, shaking, and drooling? 

Who knows, I sure as heck don’t! ¯\_(ツ)_/¯

[fakingtranquility]

It’s day 1 of Epilepticon 2018, the one and only online holiday for epileptics, by epileptics. 

I’m about 6 weeks seizure-free, which sounds like a good thing unless you understand that epilepsy is like an active volcano. 6 weeks without a seizure is good, but it also makes me worry that the next one, and there will be a next one, could be really bad. I worry that it could be while I’m out or at work or really anywhere that isn’t at home and in bed. 

For example, if I were to have a seizure at work, the best case scenario is that it would happen when I’m not with a customer and not working with one of the machines that could cut my fingers off. Hopefully, I would just fall on the hard floor and not hit my head on an industrial printer. Worst case scenarios at work include dying by getting caught in a printer, hitting my head on something and dying, or being with an angry customer/boss and falling out on the floor as they yell at me.

The other fears of having a seizure are missing work because I need the money from the job to buy health insurance and the medicines that keep me alive. More fears include bosses seeing a seizure and assuming I’m on drugs or intellectually incapable of performing work. 

This has been a stream-of-consciousness rant by Meredith.