Life Update - 2/25/2026
Hi, friends. I know I've been really quiet lately. Things have been... A LOT... and I've been unable to participate in social media much.
I'm dealing with some really heavy medical stuff, most of which is due to the dysfunction of multiple cranial nerves simultaneously. My doctors don't know what's causing it yet. I'm losing my hearing (and getting hearing aids, wheee). I'm also losing my vision, and I don't even know what to do about that yet because it keeps fluctuating, which makes getting an accurate glasses prescription almost impossible. After losing my voice at the end of 2024 and spending most of last year in speech therapy, I'm fighting tooth and nail to hang onto the progress I made, as I still have an active vocal cord disorder. I've been in a massive trigeminal neuralgia + occipital neuralgia + migraine flare since November, and I am so fatigued and in so much pain that I spend most of my time in bed. I'm having episodes of vertigo that sometimes make it impossible to walk or even stand.
I can't do the things I love. I can't read a book or look at a screen for more than 10-15 minutes at a time without triggering severe eye muscle fatigue and headaches. I can't drive. I can't work. I'm losing everything, and I'm so scared.
I don't know how to do this. I don't know how to be this. It's just... too much, too fast, and I'm going out of my mind trying to process it while ALL OF THIS *gestures wildly at my dumpster fire of a country* is happening, no less. I'll survive this - I always do - but I feel like I've been fighting for my life on multiple fronts for so long, and I'm exhausted.
I don't know what else to say. Just... thanks for being here and listening and caring, I guess. I appreciate you all so much. If anyone would like to bless me with a new body, a million dollars, and/or an all-expenses-paid trip to the Greek Cyclades, let me know. 😜















