#facialpain

[themadornithologist]

I wear this pin to every medical appointment I am able to. I really hope doctors take the time to read it - because most of them need to hear it!! Thanks @the.chronic.couple for making amazing spoonie swag. 💖 If you like, please read more about my battle against chronic illnesses: ➡️ Go Fund Me link in BIO: www.gofundme.com/HelpHannahSoar #pin #sepsissurvivor #hydratinitissuppurativa #skingrafting #trigeminalneuralgia #chronicpain #autoimmunedisease #surgery #sickandtiredofbeingsickandtired #ableismexists #butyoudontlooksick #suicideawarness #invisibleillness #spooniewarrior #fundraising #Paintudes #painrelief #facialpain #spoonies #neuroscience #actuallyautistic #spoonieblogger #braintumor #gofundme #raredisease #chronicallyill #strongwoman #ptsdawareness (at Eugene, Oregon) https://www.instagram.com/p/CTwF5S4r0ho/?utm_medium=tumblr

[neurocirurgiabr]

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Charles is a 69 year old who came to me because he was having severe, electrical shocks across the left side of the face. The pain lasted for a few seconds at a time and he had multiple episodes a day. #Repost @neurodreamteam Trigeminal Neuralgia ⚡️ ———————————————— He had initial improvement with medication, but eventually the medication dosing had to be increased and eventually wasn’t effective. We took Charles to surgery for trigeminal neuralgia. I found an artery pulsating against the nerve next to the brainstem. I moved the artery away from the nerve. Since surgery he has not had any episodes of facial pain. #neurodreamteam #neurosurgery #neurosurgeon #nursepractitioner #trigeminalneuralgia #microvasculardecompression #facialpain #surgerylife #cranialnerves #premed #medstudent #neurosurgeryresident #neurocirurgiabr #neurosurgeryblog https://www.instagram.com/p/Bo8z5VSlHLQ/?utm_source=ig_tumblr_share&igshid=1rf1x6tunf5tx

[themadornithologist]

* Urgent Update * (8/31/2021)  I have difficult news to share. I met with my surgeon yesterday (8/30/2021). I have been suffering immensely from severe surgical complications from my first surgery on July 29th 2021 for my hidradenitis suppurativa in my groin. As some of you may know from my previous updates here, I am having multiple reconstructive surgeries of my groin, labia, and thighs to combat my stage three hidradenitis suppurativa. It is extremely painful, isolating, costly, triggering, and extensive.  I now must have a complete reconstruction of my first largest incision - on my labia. I have been septic multiple times from continued, chronic abscesses in my incisions. Hidradenitis suppurativa is a chronic, autoimmune disease with no cure. The surgeries I am having are to mitigate the progression of the disease and hopefully extend my lifespan. Things are not going well. I am developing antibiotic resistance over the times between my surgeries. I am not ok. This is a terrifying place to be. I am in excruciating pain. At the start of my surgeries, my surgeon hoped they would slow the progression of the disease process, but they are not. My surgeon stated yesterday that it will not be a 3-4 surgery process, but an ongoing - lifetime battle of continued surgeries to remove the diseased tissue.  Please send me your support and comfort. I need it. I am facing these surgeries alone. I have no one here to physically be with me. All I want is a hand to hold and arms to embrace me as I cry. This so, so painful and exhausting. Thank you for reading and being a friend to me. You make a difference in my world.  ➡️ Go Fund Me link in BIO: www.gofundme.com/HelpHannahSoar #givingtuesday #sepsissurvivor #hydratinitissuppurativa #skingrafting #trigeminalneuralgia #chronicpain #autoimmunedisease #surgery #emergency #chemohair #sickandtiredofbeingsickandtired #spoonielife #butyoudontlooksick #suicideawarness #invisibleillness #spooniewarrior #fundraising #Paintudes #painrelief #facialpain #spoonies #neuroscience #actuallyautistic #baldisbeautiful  #braintumor #gofundme #raredisease #chronicallyill #strongwoman #ptsdawareness (at Eugene, Oregon) https://www.instagram.com/p/CTQlpmJlnMq/?utm_medium=tumblr

[themadornithologist]

I am a warrior fighting many battles: I have Trigeminal Neuralgia, Fibromyalgia, a brain tumor, Rheumatoid Arthritis, Crohn’s Disease, Ankylosing spondylitis, Hidradenitis suppurativa, Ehlers-Danlos syndrome, Autism, and Complex PTSD. Though I struggle with these terrible afflictions, I have risen above them and attend the University of Oregon as a full-time student where I study neuroscience and pursue my passion for astrophysics. I am now on permanent disability, and like so many others right now cannot afford the cost of staying alive. My conditions are extremely painful. My pain specialist recently prescribed me a new medication that has the potential to help my severe nerve pain. Unfortunately, this medication must be compounded at a specialty pharmacy for me. This is very expensive, and my insurance will not cover the costs. I cannot try this new medication without outside financial help. I am also struggling to pay my current co-pays on my other prescriptions. My vitamins and supplements each month are paid for out of my pocket and I need help making ends meet. Please read more on my Go Fund Me page and #helpmesoar. 💚   ➡️ www.gofundme.com/f/HelpHannahSoar ⬅️ (LINK IN BIO) #trigeminalneuralgia #ticdouloureux #terminatetrigeminalneuralgia #trigeminalneuralgiaawareness #chronicpain #autoimmunedisease #sickandtiredofbeingsickandtired #spoonielife #butyoudontlooksick #suicideawarness #invisibleillness #spooniewarrior #fundraising #Paintudes #influencerlife #painrelief #facialpain #spoonies #brainsurgery #neuroscience #neurology #actuallyautistic #baldisbeautiful #braintumor #gofundme #raredisease #chronicallyill #strongwoman (at Eugene, Oregon) https://www.instagram.com/p/CGnk4_MlfX9/?igshid=yjpq8iqruedi

[themadornithologist]

Trigeminal Neuralgia is agony. And I am a Warrior. 🛡 #trigeminalneuralgia #ticdouloureux #terminatetrigeminalneuralgia #trigeminalneuralgiaawareness #chronicpain #raredisease #sickandtiredofbeingsickandtired #spoonielife #butyoudontlooksick #suicideawarness #invisibleillness #spooniewarrior #teal #suicidial #pleasehelp #noway #facialpain #spoonies #cringeymemes #neuroscience #neurology #ineedadoctor #fuckdepression #fuckthat #madworld #braintumor #aware #beaware #arthelp #strongwoman www.hannahcrazyhawk.com (at Eugene, Oregon) https://www.instagram.com/p/CFdyAViFOOa/?igshid=1rcxl6cinzugq

[themadornithologist]

I am a warrior fighting many battles: I have Trigeminal Neuralgia, Fibromyalgia, a brain tumor, Rheumatoid Arthritis, Crohn’s Disease, Ankylosing spondylitis, Hidradenitis suppurativa, Ehlers-Danlos syndrome, Autism, and Complex PTSD. Though I struggle with these terrible afflictions, I have risen above them and attend the University of Oregon as a full-time student where I study neuroscience and pursue my passion for astrophysics. I am now on permanent disability, and like so many others right now cannot afford the cost of staying alive. My conditions are extremely painful. My pain specialist recently prescribed me a new medication that has the potential to help my severe nerve pain. Unfortunately, this medication must be compounded at a specialty pharmacy for me. This is very expensive, and my insurance will not cover the costs. I cannot try this new medication without outside financial help. I am also struggling to pay my current co-pays on my other prescriptions. My vitamins and supplements each month are paid for out of my pocket and I need help making ends meet. Please read more on my Go Fund Me page and #helpmesoar. 💚   ➡️ www.gofundme.com/f/HelpHannahSoar ⬅️ (LINK IN BIO) #trigeminalneuralgia #ticdouloureux #terminatetrigeminalneuralgia #trigeminalneuralgiaawareness #chronicpain #autoimmunedisease #sickandtiredofbeingsickandtired #spoonielife #butyoudontlooksick #suicideawarness #invisibleillness #spooniewarrior #fundraising #Paintudes #influencerlife #painrelief #facialpain #spoonies #brainsurgery #neuroscience #neurology #actuallyautistic #baldisbeautiful  #braintumor #gofundme #raredisease #chronicallyill #strongwoman  (at Eugene, Oregon) https://www.instagram.com/p/CIRFM4tl-sM/?igshid=1hu9npk87qn8a

[themadornithologist]

I just ordered two more of these amazing Releaf Packs. I suffer from a rare neurological condition called Trigeminal Neuralgia. It affects the 5th cranial nerve. This nerve has three branches that extend into the face. The pain is excruciating, there is no cure. Trigeminal Neuralgia is known as the worst pain known to humankind and called, "The Suicide Disease." I endure this pain every moment. 🤕 There are very few things that help my facial pain. Ice is one of the only things that keeps me from ending my life. I've tried every possible type of ice pack. They are cold, yes, but that's where the comparison ends. 🧊 This Releaf ice pack is like no other cold therapy treatment I've tried. The cold, weighted feel soaks deep into my skin and soothes my Trigeminal Neuralgia pain. It stays cold so much longer as well! My ice pack is also infused with lavender, there is nothing else that compares to the comfort of cold lavender. And it has a galaxy print on the fabric, so the astrophysicist in me loves it even more. 🌌 I am so thankful I found this ice pack! 💜💙💜 #trigeminalneuralgia #ticdouloureux #terminatetrigeminalneuralgia #trigeminalneuralgiaawareness #chronicpain #autoimmunedisease #sickandtiredofbeingsickandtired #spoonielife #butyoudontlooksick #suicideawarness #invisibleillness #spooniewarrior #releafpack #Paintudes #influencerlife #painrelief #facialpain #spoonies #brainsurgery #neuroscience #neurology #icepack #baldisbeautiful #skullplate #coldtherapy #braintumor #aware #raredisease #chronicallyill #strongwoman www.hannahcrazyhawk.com (at Eugene, Oregon) https://www.instagram.com/p/CKVbJqJF_nu/?igshid=avvvmwbharxj

[themadornithologist]

Today was the perfect day to try my new @releafpack. I spent yesterday in the emergency room. My pain is the worst it can be right now.  I suffer from a rare neurological condition called Trigeminal Neuralgia. It affects the 5th cranial nerve. This nerve has three branches that extend into the face. The pain is excruciating, there is no cure. Trigeminal Neuralgia is known as the worst pain known to humankind and called, "The Suicide Disease." I endure this pain every moment. 🤕 There are very few things that help my facial pain. Ice is one of the only things that keeps me from ending my life. I've tried every possible type of ice pack. They are cold, yes, but that's where the comparison ends. 🧊 This Releaf ice pack is like no other cold therapy treatment I've tried. The cold, weighted feel soaks deep into my skin and soothes my Trigeminal Neuralgia pain. It stays cold so much longer as well! My ice pack is also infused with lavender, there is nothing else that compares to the comfort of cold lavender. And it has a galaxy print on the fabric, so the astrophysicist in me loves it even more. 🌌 I am so thankful I found this ice pack! 💜💙💜 #trigeminalneuralgia #ticdouloureux #terminatetrigeminalneuralgia #trigeminalneuralgiaawareness #chronicpain #autoimmunedisease #sickandtiredofbeingsickandtired #spoonielife #butyoudontlooksick #suicideawarness #invisibleillness #spooniewarrior #releafpack #Paintudes #influencerlife #painrelief #facialpain #spoonies #brainsurgery #neuroscience #neurology #icepack #baldisbeautiful #skullplate #coldtherapy #braintumor #aware #raredisease #chronicallyill #strongwoman www.hannahcrazyhawk.com (at Eugene, Oregon) https://www.instagram.com/p/CF58gpqFJx3/?igshid=1wns1673glvje