How do you cope being a mama with fibromyalgia and chronic fatigue?
Simple answer you just do, because you have no other choice.
Long answer. With great difficulty, a lot of help, willpower and stressful moments.
I am a mama to 2 amazing children, one terrible twos devil diva named Shiloh, and one 14 week old boy you bleets like a goat named River.
Some days are great when your pain levels are low . And your on what most people who don’t suffer would call a bad day but to us they are like heaven on earth. Them are the days I live for. Where I will get us all ready grab some toys and head to the park in whatever weather so we can have some smiles and good times.
Some days are horrific when you sleep in and end up getting a taxi you can’t afford to Shilohs nursery without even brushing your hair and you look like a tramp in whatever clothes don’t make you want to rip your skin off. But Shiloh has been dressed perfectly hair near clothes matching etc.
The other day I had started off relatively ok, but by the time I came to pick Shiloh up at nursery I was struggling. My words came out all mixed up, my legs where heavy, my wrists where hurting from pushing river in the pram. Shiloh was so tired when I picked her up. She was clinging on to me and I knew then getting us home would be difficult. We got on the bus and when it came time to get off the 5 minute walk from the bus stop to front door felt like 10000 miles. Then she did that face, the mama I need picking up cause I’m tired face, did I have the strength to do it ? NO did I have the spoons to do it ? NO, did I do it HELL YEAH .
I chose to bring my child into the world, I knew that with my fibro it would cause difficulties as they got more energy and I got less, but I will always always do my damnest to give her a normal childhood. She diserves that. If I have to go bed the same time as her to make sure I rest and have the energy be damned I will do.
I ended up giving her a piggy back the way home, with one arm holding her up and the other pushing a pram. I managed to get these pictures and her little face just makes my heart melt.
We all ended up falling asleep when we got back. I was granted 2 amazing children by whatever higher power there is and I will always be thankful for that
