#firbomyalgia

[scretladyspider]

hey! i haven't been following for long but i'm glad i'm here now. I'm not totally sure how to ask this but... do you experience both dissociative symptoms (guessing depersonalization/derealization) as well as fibromyalgia? I do too and was just curious, couldn't tell one way or another from the few posts i've read. Thank you for existing and for everything you share <3

I do. I am diagnosed with both conditions. There is a theory that fibromyalgia is usually related to undergoing extreme stress or a traumatic event, causing your muscles to be constantly working, which causes the pain and fatigue associated with fibromyalgia. DPDR (depersonalization/derealization disorder) can be caused by a few things, but for me it is caused by a series of traumas in my life and a very stressful period where I almost, well, died. It’s a long story.

Sooooooo basically my brain is like DANGER DANGER WE MUST ESCAPE even though there isn’t danger anymore, and my body is like DANGER DANGER WE MUST PROTEC and so… the poor thing, it’s doing its best. 

I am also diagnosed with ADHD-inattentive, after years of being incorrectly diagnosed as bipolar, which (after years of being ignored misdiagnosed, my trauma ignored, and being repeatedly put on medications that caused me extreme stress) has contributed to the dissociation. 

I am getting treatment, as well as exploring what I can do on my own - diet changes, more “natural” remedies, adding a bit of exercise into my day, and I am going to see if I can join a local YMCA and do water aerobics.

It’s nice to meet a fellow spoonie! I have interacted with a few folks who have both DPDR and fibro. I don’t know if you get this with it but when my pain gets worse, I feel more present in my body? But when it gets better, well, I feel a bit more dissociated. I’ve had the dissociation for almost 7 years. Bleh.

I hope you have a great day and this answered your question! 

[voidedvisions]

I hate never knowing what is going to make my joints mad or when or why

Definitely did too much by angrily hacking at oak tree saplings and ripping them out of an old garden bed this morning though--

[theproverbialdandelion]

Let me add “it’s all in your head” <- this one makes me want to throat punch people at times and then I can tell them that they are fine and it’s “all in your head” but I’m no longer a violent person so I just do it in my head. “My friend with ........... has several jobs and can still manage every day life” “You were fine yesterday” Feel free to add to the list #spoonie #fibrolife #firbomyalgia #fibrowarrior #chronicillness

[mnguthr-blog]

I'm so close to losing my job right now... I couldn't get a loa and I've used almost all of my points. Gatta love walmart and their no sick days policy.

[copeaesthetics]

My legs wont work today.

This is what I get.

[teambuckaroo]

Anyone have any experience with a TENS unit? Especially if you have chronic pain. I'm thinking of getting one

[copeaesthetics]

Getting lit and taking a shot is how I'm going to cope now, great thanks have a nice day. God bless.

[youregonnagofaar]

it feels like i’m in a car crusher

It feels like my arms are stuck in what crushes a car.  That it is being squeezed yet I only feel it in my bone. It aches like when you run a marathon, yet I did no such thing.

Chronic illness does this to me. It takes everything away from me.  Friends, respect, belief in me from others, support systems...all gone. People can only take so much of cancelled plans. People can only deal with pain they don’t understand for so long. I feel cursed.  I feel trapped. My pain is what controls what I do.  I can’t control what I on my own, it won’t let me.