#ibd diet

[chronicallyaching-blog]

Has anyone tried a nutritionist for autoimmune issues, especially IBD? I think there's one here who will take my insurance but I'm wondering how helpful it will be?

[colitishealingnat]

I seriously dreaded going to the grocery store today because I was doubting my self discipline against compulsive buying due to intense cravings (courtesy of my monthly visitor). I was successful, but almost convinced myself to get fish n chips because of “healthy omega fatty acids”... LOL complete with fried beer batter and oily potatoes smothered in salty gravy. Instead I bought fresh salmon for tomorrow’s meal, salad ingredients and some fruit. 

[frenchiecrohnie]

Bonsoir my spoonie angels,

Another exhausting day, today again was a tough day, my sister like usual was  angy (at everyone) and she manages to makes me feel bad...

I just want to say that I was able to walk during the whole grocery store without too much difficulties and that I was so proud of myself. I was already out in the morning to help my aunt with his computer so yeah good job Amélie! I fbought mostly chocolate in Germany (nobody can't stop me!) but I also found two pretty smoothie! I don't know you but when I look for some blogs or instagrams who post food with IBD, they usually post only veggies and fruits... like what the hell? How do you do that? If I eat one of those things, I die! So I am the only one who can't really eat veggies or... ? I don't understand... Tell me what you can eat or can't and if I'm the crazy one of this story!!

Lots of love and spoons

[anevemrebeka]

It's Fall when I say it's Fall!

Damn you, heat wave! I want pot roast tonight, so I'm making it. Granted I had to set up the crock pot in the back yard, because the house would get too hot, but in my mind it is just a wonderful fall weekend, made for some warm, wholesome pot roast and pumpkin muffins (still deciding on dessert).

(starting to heal from that recent flare, just struggling with the low-residue diet...boring foods (= meat and rice, meat and potatoes, fish and rice, fish and potatoes) when all I love is fresh and "fibersome" fare)

[anevemrebeka]

The anticipation is growing!

Every six weeks, when grading periods end, I have so much to do I can hardly take care of myself - cook, train, and relax. This time, it's the last grading period before the summer break, so I will be free for ten weeks! It will be amazing. Just have to get through one more week. I'll be on the mats and in the kitchen full time! This is not what others may be looking forward to, but it's the best time of the year for me.

[anevemrebeka]

Time to plant new seeds!

[anevemrebeka]

Healing from Ulcerative Colitis, Pt 3

Now, before I get into it, I want to make sure I say that by no means do I consider myself healed from Ulcerative Colitis. It is more that the state I have been in since I've overcome the last crippling flare feels like my soul is healed: I can deal with the condition, I understand myself better, and I am stronger inside and out.

...after I got out of the hospital it took months to get better. I kept loosing weight, bleeding, using the restroom 20+ times a day, and having temperatures. I was already tapering down from the prednisone and because I did not have the greatest insurance, I could not afford Lialda. I tried to get into remission by taking Sulfasalazine, one of the older medications used to treat UC. It did not work. Because I was down to 104lbs from 135, and still in so much pain, my GI urged me to go on Lialda anyway. They sent me home with samples. I did not know how I was going to afford over $500 a month for medication.

The worst part at this time, was that my husband was starting to get frustrated, I could tell. He didn't know what was happening or how he could help me. He did not know what to do with a bed-ridden wife. I don't think many people without an IBD are able to picture the pain and weakness it can bring. I think because they let me come home from the hospital, my husband expected that I was going to get better much sooner. He did not know that every night he came to bed it felt like my insides were ripping open from him rocking the mattress. He could not imagine how serious I was about considering a two minute walk wit the dog a success. He meant well, when he embraced me and pulled me closer to him. He just didn't know it was tearing my guts apart. It seemed that he was getting ready to give up on me, whenever I told him about the pain, like "fine, I won't touch you then". I knew I had to try really hard to get well again.

At that time I was spending hours doing research. I found a great group that I drew a lot of knowledge from: ihaveuc, I read an excellent book titled "Living with Crohn's and Colitis", and the biggest support was probably my husband's aunt. She is an acupuncturist and a Doctor of Ancient Chinese Medicine, who started treating me right before I had to go to the emergency room. She cooked chicken with ginger and rice for me, did acupuncture, and meditated with me. I don't know what I would have done without her!

I finally started getting my nutrition under control a little bit. I kept a food diary and started my diet from scratch. The few things that didn't hurt me were my base. From there, I started trying out different things and I was able to eat more things and got heavier and stronger slowly...

[anevemrebeka]

Healing From: Ulcerative Colitis, Pt 2

The second major flare that included bleeding happened when I already lived in the United States in 2011. This one happened after being under a lot of stress through traveling, then hosting three guests for three weeks while working in a classroom with a crazy Master Teacher. During this flare, which lasted five months at least, I went from 134 to 104 lbs. I was admitted to the ER because my heart rate was above 150 and I was so emaciated. My doctor finally got scared. Before, he wanted to make me believe that I was psychologically damaged. That it was all in my head. I cried in the office, because I needed help. I was in so much pain during all that time. In the hospital I had my second colonoscopy, at 24 years of age. I had many other intrusive tests done. It was so miserable. I went from twelve attempts to set the IV, to insane pain that was never alleviated by the nurses, to pooping in a bucket 20 times a day, being hardly conscious through a set of x-rays and scans, to being covered in ice packs because of a fever.

...

But I finally got diagnosed! After years and years of not being taken seriously, I finally knew what to call my condition. I could finally get help. I knew instantly that it was a life-changer, not only because I was so close to serious complications, but because I knew I was going to get out of the hospital and recover as a new person. At that time, we still did not know how long my path to recovery would be. For now, it started with taking 20 pills a day.