I'm a spoonie and you?

Amelie. 25. I have Crohn's disease and an ileostomy.

[nurse-luvluv]

Reminder: it’s okay to need medication! If it works for you, doesn’t harm anyone, and makes your life better, then why beat yourself up about it? Taking your medication is self care. 💖

[solarcitrus]

┏( >o<)┓I may be human who makes mistakes but I am not a mistake!  And neither are you!  I’m not sorry!!!  I am thankful for the people who support me!!!!!

[positivepastel]

[paradisixx]

This family’s boat ride turned into a dramatic whale rescue — and the whale spent an hour thanking them in the best way!

[thespectacularspider-girl]

Why am I crying over whales?!

[juansendizon]

[pokemon-personalities]

I hope something good happens to you today. no matter how small or simple it may seem to someone else, I hope something contents you from the bottom of your heart and makes your worries feel lighter

[frenchiecrohnie]

Hi beautiful people,

It’s been a long time since I got here. I hope you’re all doing good!

I always have to take painkillers days and night but I had worst. Oh and I have a boyfriend but he live pretty far away from me so I decided to go see him in 2 weeks yaaay. And that’s it, nothing you except that.

Lots of love and spoons

[frenchiecrohnie]

When you get this, respond with five things that make you happy. Then send along anonymously to the last ten people in your notifications! :D

My dogs because they always bring a smile on my face

Play video games on my Xbox

Listen to Music, I can’t do anything without music

Read

See someone else happy, someone who are just happy makes me happy

Thanks for this ask Anon ♥

[frenchiecrohnie]

Everytime I feel like crying or just being sad because it's too much, I say :

[pragnificent]

2016 Achievements

Didn’t kill myself. 

Didn’t kill anyone else. 

[frenchiecrohnie]

Hello my little bunnies (don’t try to understand, I don’t even know myself)

I’m back at home!!!! Surgery went pretty well but I had some problems with the epidural that was to reduce my pain at the beginning! And the night before I could go, I started bleeding a lot by my stoma, it was scary as hell but at the same time I wanted to go back at my home so bad that I could have said nothing to them... but don’t worry the sistah did and all is almost good. At first they thought that I would need blood but for once my body helped me and created enough to let them think that I don’t needed any blood transfusion. I don’t have any energy because of the anemia of course so if you know what I could eat to helps my body wih that, I would gladly listen to your advices! So yaaay I’m at home and it’s so good.

Of course my belly hurts but it needs some peace and for once I’ll try to not rush things... I’ll try don’t said I would! Not that I don’t want to do it but I always finish to forget that I wanted to do things slowly and let my body heal! Anyway I’m just happy to see all your beautiful faces and know what’s up with your daily life! Oh and now tha I’m at home I just feel the need to dye my hair in red again so be prepared ahah!

Lots of love and spoons

[frenchiecrohnie]

Hello my darlings,

How have you been?! I know I’m the worst to updating things in my life...

So I need another surgery because I have one maybe more stricture...My surgeon have to do my stoma again... I’ll go in the hospital in November 3th. And the day after I’ll have my surgery. Not really looking forward to that but I don’t really have a choice...

Let’s do my 3 things I’m grateful for :

My sister is back home afer a week with her boyfriend. I’m happy to see her again

My doggies were pretty good today. Peaceful day for me!

it’s so warm in my house thanks to the fire

And you, what are you grateful for today? Hope you’re doing good

Lots of love and spoons

[hyperesthesias]

Spoonie Problem #58

Knowing that no one will love you or want to put up with you and your illnesses. Even if it’s not true, the crippling thought can be inescapable.

[frenchiecrohnie]

I wanted to say how amazing you are. When I'm feeling tired and at the end of my rope you, knowing there's someone who knows how I feel helps. I hope you're doing well, I hope you're not hurting right now and your dad's not being too childish. I mostly wanted to let you know I think you're really great

Oh my god, since my phone had some problems I don’t see anything and I just saw your message now. You know what, you have me in tears. I’m so tired to be sick, to fight, etc at this moment that your message is like a big hug that warm your heart. Thank you so much Anon, it means a lot to me ♥

[frenchiecrohnie]

Hello my beauties,

Long time since we talked, I had the 2 hardest week of my life this month and I’m glad I’m back at my place again...

Let me explain, remember when I talked that I had weird feeling all over my body, my doctor told me to do some blood test and in the end of the afternoon she called me and told me that I had to go to the ER because I didn’t have enough potassium in my blood. So I had a catheter put in urgency and they gave me what I needed while explaining to me that I could have some heart attack so I had to stay a week then when it was like friday I could go home...

I was happy to be home when in monday I had pain in my stoma... I knew that it was not a good thing but I hoped it would pass... Well it didn’t and the pain got worse... I had to call the hospital to tell them that I had another bowel obstructions so they took me in the same room and with the same girl ahah (glad she was there with me). They didn’t let me eat during 4 days, you can imagine how hungry I was... Finally I could go back home on friday again...

Now the plan is that I need to see my surgeon again to redo my stoma... Not looking forward to that but I don’t want to be in pain again because I have an obstruction...

I hope you’re all doing good, I missed you

Lots of love and spoons ♥

[colitisblues]

If my body could like, I don’t know, chill? For a second? That would be great.

[frenchiecrohnie]

Hi my darlings,

I got this weird tingling all over my body like in my legs, my face, my chest, everywhere and sometimes I can’t even move my fingers they are so stiff, then slowly I can move them. Just now I couldn’t stay on my feet because my legs hurted. It’s really weird but in the same time scary when you can’t even move your fingers! I think tomorrow I’ll have to go to the doctor *sigh*

Tuesday, my wisdom teeth is going to be removed so I hope that the antibiotic the dentist gave me is not going to kill me! 

Lots of love and spoons