It’s been while since I written in my blog. Being in grad school full-time, working full-time and being a mom has taken up so much time. Im hoping that I will be able to come back here and write more often. Well the first update is I am no longer on Remicade. Back in April 2019 my insurance company sent me letter stating that they will no longer pay for my medication and that I needed to switch to the generic brand. So now I get Inflectra. After the first infusion I was in so much pain. My whole body hurt. Apparently that happens. I have gotten use to the pain but now I know not to plan anything on those infusion days. In the beginning Dr. Hamvazi wanted me to take Methotrexate, which is an anti rejection drug but I refused because I was still breastfeeding at the time. Now I don’t have a choice. I am currently flaring under my left arm where I had the C02 laser surgery in 2015. I had no activity there until recently. Today Dr. Hamvazi said that suspects that I have built up a resistance to the medication and that I need to take the Methotrexate. I literally just stop breastfeeding last week so I now I guess I will start on this medication. I know I had some issues with Remicade, like Wells Syndrome but at least it was working. Now I’m on this painful, generic medication that’s basically not working like it should. Now I have to take a 7 day course of Prednisone, use Metrogel on the big hole under my arm, and take the anti rejection medication once a week. I guess was made me sad was I thought getting the C02 surgery was my cure. I thought that eventually I would be able to get off of all medication once I had the rest of my surgeries done but I guess that’s not the case. I really don’t want to take medication for the rest of my life. I also feel like I am stifling my husband’s career. He has really good health insurance through his job and he won’t leave because of the care I need. I guess Im feeling overwhelmed right now. I am looking for a new job because I want to work in the health field but with all of this going on I think I may have to slow down my search a bit until I get my health back on track. On a lighter note I did finish school. Now I have my MPH (Master in Public Health) now Im trying to figure out what I can do with it.
