Christmas and New Years with M.E.
Ok, so I think it’s time to vent…
OMG! Christmas! YAY! The time for happiness, giving, spending time with family, seeing all your mates, parties, alcohol, food, and having the best time ever!!! - Well that can fuck right off can’t it!
Just cos’ it’s Xmas doesn’t mean that your illnesses and troubles just magically disappear! If anything it probably brings them to the surface more and makes you realise just how little you can do. Great.
I haven’t had a drink all year! - jokes (cos thats like 7 days) …If you have to explain your jokes they’re not funny! Anyway- I haven’t had a drink since July and I really miss it… well I also haven’t been to a party since then either… or socialised…or left the house to do anything other than go to bloody Sainsbury’s… I have eaten food though… cos you know…. I’m still alive and all that.
There’s so much pressure to be well at xmas, which obviously isn’t even like, on the scale of being possible, but so many people invited me out to parties etc and although it’s great that they haven’t completely forgotten I exist .....babe? Like really? Oh ok, I’ll spend 6 months in my bedroom and then come to your party cos it’s Xmas? Yea right.
It’s weird - I feel like I am pretty public about my health issues- if anything probably too much - but people obviously just don’t really take it in… Someone text me the other day actually and it really hit a sore spot - he asked why I hadn’t answered his calls and I replied apologising and saying sorry that I didn’t feel up to chatting on the phone at the time and his reply pissed me RIGHT OFF. He said, and I quote ‘Whatever... Unicorn impressions in a forest??’
ANNOUNCEMENT: INSTAGRAM IS NOT REAL LIFE!!!!!!
What is wrong with peoples bloody brains!!! Sorry, but lets just think about this for a minute…
So I got home to Sussex on December 23rd and was so shattered from the train journey that I had to nap and couldn’t do anything with the fam that eve… I don’t really get why travelling is so damn tiring, like you’re only sat there being awake and breathing really…. anyway... then the next day I had my one of my best friends round and yes I actually felt up to seeing her (which is a bloody miracle) We had a lovely catch up and her Xmas gift to me was THE UNICORN ONESIE!!! - Yes, she is the one responsible for this moment!
We thought it would be hilarious for me to put it on and have a pic in the forest which is literally about 10 steps from the house - she convinced me to put wellington boots on my hands and get down on all fours (obviously) and it was so so funny I haven’t laughed that much in forever! 10 seconds later we were back on the sofa! Job done!
Does taking 20 paces and posing for a photo mean that I am now miraculously better? No
Does it mean I’ll do anything for the gram? Yes ;)
But in all seriousness, I wish people would realise that I am trying to portray the fun positive person that I feel is trapped inside my body, and to have fun and be happy whenever I can, even if it’s just for a few minutes! God if I put up pics of me looking like a zombie on the sofa all day every day I think I’d lose a fair few followers ;) ... ok maybe I do it sometimes....always with a filter though ;)
Anyway, sorry I went off on a right little tangent there! Unicorn day was Xmas eve and after my friend left I was pretty shattered so again just rested for the rest of the day.
When I woke up on Xmas day I could tell that I felt pretty ropey but not too terrible, I wanted to look and feel nice so I did my makeup (which I hardly ever bother to do these days) and ‘helped’ my mum cook the xmas lunch… basically I stood around for a bit, got in the way a lot, and helped lay the table. What would she have done without me huh!
Xmas dinner wash so damn good, but… how can I put it… let’s just say it didn’t go down too well and that was me done for the afternoon. Fucking Crohns disease, WHY DO YOU HATE ME?! Sorry, TMI but I couldn’t really care less ;) Then that evening we played an exciting game of snakes and ladders and watched a film. lavley.
In the eve I went for my daily walk - I am trying so so so hard to stick to my GET (Graded Exercise Therapy) and didn’t feel up to doing it but pushed through it as per, and did it.
When I started the GET this time around I started at the beginning of October on a 10 minute walk a day (and nothing else other than making food, and pottering about the house really) - Now it’s January and I’m on 25 minutes. It’s great that I have made an improvement, but not gonna lie, I thought I’d be on like an hour by now and could start doing some songwriting or focusing on other things, but nah. Still doing the walking.
Anyway the walk that night just about finished me off and I felt awful afterwards… for a week! FS!
Boxing Day I was pretty much in tears most of the day (sorry family!) and on the sofa and same for the rest of the week - I managed to travel back up to my Dad’s place for Xmas numero due, but felt like utter arse.
At least the main activity at my dads was watching films YEP and flying this little drone thing around home made obstacle courses YEP - which I could join in with whilst sat on my arse lol - We did have a nice time though and it was so good to spend so much time with all my family at least! I am so lucky to have them and am so close to them all, so that’s definitely something eh :)
Then it was back to my place in London for a few more days resting before NYE! The most overrated night of the year!
I was really so touched this year as some of my housemates decided to stay in with me :) To be honest I am still unsure of wether they genuinely wanted to or if they felt they had to, but either way I appreciated it SO MUCH!
I was really worried that they’d all go out - but of course I told them that it would be genuinely fine and I’d have been happy for them to go- but maybe they just saw straight through that!
I was really scared about how I would cope with being sat on my own in bed when the clock struck midnight - I know it sounds a bit overdramatic, and it really doesn’t matter what you’re doing at that moment, but I think it says so much about your life. Sorry, I am welling up typing this, but I think it says a lot to be sat on your own seeing in the new year and I truly hope that none of you guys had to do that. I guess it still upsets me so freakin’ much that I just can’t do the ‘normal’ things that all of my friends can, ya know?
HOWEVER! I ended up having a lovely evening with Grace, Nicki and Tilly- we got masses of takeaway, watched a few shit films, and even saw a few fireworks from our garden :) How romantic! And having been so worried about having a complete breakdown, I didn’t even cry once! YAS!
Oh and we even all dressed in pink and made unicorn cupcakes! Winning? I think so! #PinkParty
So….2018 you little fucker!! What have you got in store for me this year?
You’ll be relieved to hear that so far I have been feeling pretty positive and I always love the opportunity for a fresh start!
I have been going for my walk every day and trying to put less pressure on myself - I think the thing that makes all of this so hard is that fact that I am so driven and wanting so much to have a successful career in the music industry- even typing that again makes me get all teary again but I HAVE to accept that it’s not going to happen just yet- and that patience is the key!
I have so many songs finished and ready to release, I just need to get well enough to have the energy to release them, and to make some new music videos etc. I am really really hoping that I might be able to do one in the summer maybe, and take it from there. But for now my health has to be my number one priority.
I’ll write again in feb! Let’s see if I can get to say 35 min walk by then eh! Wish me luck! Thank you for reading this, please don’t hesitate to get in touch and to follow my blog would be amaze!!! :)
Also, just as a last call, if anyone would like to purchase any of my merchandise, all of the profits are going to the charity Action for M.E. so your support would be hugely appreciated! You can see it all on the merch tab on my website www.aliceella.com :) Thanks guys :) xxx
