#medtag

[krisrisk]

🤯

Turn out my "mummy hand" thing (feeling as if the inside of my hand is dry like an old raisin, basically the way you would imagine a mummy's hand's insides) has little to do with tha hand and comes from either the shoulder (trapez) or upper arm.

That tracks when i think about how my occupational therapists method of "flossing" (binding an elastic band around the extremity so tight that the fluids are pushed out of it which makes the fascia basically wash themselves) my upper arm had the most benefit.

I also know that my neck/shoulder muscles (trapez) are/have/show an issue.

So basically i can stop with the painfup but nonbenefitial hand exercises and focus on the upper arm /shoulder. wouldn't be surprised at all if it's the shoulder/neck.

[krisrisk]

What kidteen needs is people who know what they're doing, are willing to do it with her the way she needs it and do not tell her to her face that she does not look autistic to them.

The doctor we went made a good point and a bunch of really fucking bad ones. The only good one was that he does not want to do anything because he knows too little about her other issues.

Which, fair. I thanked him for admitting this.

But he didn't even look at her. I told him that i need someone who knows his thing to take a look at her and basically give us a starting point. One from which we can later point out when things get worse.

I know now why my kid's doctor was so hesitant in sending us there.

Kidteen actually broke down. And, unfortunately, said "she just wants to die". He's definitely neurotypical, because he immediately suspected a depression and was really concerned. This would be a good reaction. But she's not suicidal or depressed. And he didn't believe me when i said that.

There are just no other words to say "i don't want to wake up in pain and live in pain the entire time and not have a social life because my entire body hurts and i am only sixteen and already so tired of every adult dismissing me as some stupid girl who doesn't know what she's talking about".

Neurotypical people and people who don't have chronic pain just don't understand that level of being done which to a large amount consists of "not having a choice or other option".

When painkillers don't kill the pain, then going on in pain is the only thing you can do.

I'm just angry at the guy. And at the world. For never believing me. For never trusting my kid. For not acknowledging her struggles.

[krisrisk]

The reason yoga can help is because it is made of a group of things which are done together. Each of the things is used for example in anxiety treatment, and combining them is like stacking good things together.

However, even though each single thing may be doable to someone, combining them can be overwhelming for some people.

It is important to know that yoga is not just [one thing] but actually consists of a set of things; breathing techniques, movement and focus.

If you struggle with one (or even two) of those thongs, chances are that yoga will lead to overwhelm and potentially cause more harm.

[krisrisk]

Every scientific study: chronic stress can lead to weight gain

People (including doctors): Maybe you just have to eat less

🖕🖕🖕

[krisrisk]

Switzerland acting like Melatonin is something Very Very Dangerous has the potential to be hilarious.

The official infosites even state that it's a hormone that occurs naturally, is produced naturally. Yet, insurance does not cover the cost, EXCEPT for

kids/teen (12-18) who have

disclosed their diagnosis of autism/Smith-Magenis-Syndrome

been at the insurance doctor's to be re-evaluated

handed in a protocol showing evidence that every other method to get better sleep has failed (including plant based products, meditation, breathing techniques, ect.) - protocol must have time, duration, issues and more written down

Even then, there is only one (1) medication paid for. If you are allergic to it, well that's your problem. It costs more than double the amount of the most prescribed generica melatonin med.

And even then, if you were lucky enough to actually get it paid for, you have to hand in proof after six months that it helps. And even then the insurance can just decide to stop paying for it.

Meanwhile, the pharmacy in the town behind the border to germany sells Melatonin as nose spray. For 15.-€

[krisrisk]

I just started crying after i finally released a block in my neck. Not even emotional crying. Just tension release.

The human body is wild.

[krisrisk]

so apparently the antihistamines i take lead to extreme sleepiness. Unless, UNLESS, i move my body. Then i am fine.

[krisrisk]

so the meds th t help with my reflux apparently have some kind of cross reaction with the adhd meds

I need both to feel better.

And i can't find what cross reaction would happen, as the checks i have access to say there's nothing. But i also trust my doctor more than the internet (obviously).

So i figured i could maybe take them alternating, but that doesn't seem like a good idea either.

*argh* why is this whole body-thing this complicated?!

At least i can control the pain in my arms now that i got the proper exercises for the trapezius muscle.

It's just. It seems a never ending list of symptoms, growing out of control. Quite literally.

I can either focus on the stomach issues or the adhd. Either the cpap or sleep (still having trouble sleeping well with the mask). Either the tinnitus or RSI in arms.

If i wanted to actually heal my body, it would be a fucking full time job.

Okay, that was exaggerating. But it would mean i have to spend a lot more time actively thinking about my posture, movement, diet, and everything. All while even doing the bare minimum seems to take a toll on me. (I still haven't done any laundry in the past three weeks. Maybe even four. 😑)

When exactly did life switch from normal to hard mode?? And why??