seen from Malaysia
seen from Türkiye
seen from United States
seen from United States
seen from China
seen from Malaysia
seen from Yemen
seen from United States
seen from Vietnam
seen from Ecuador
seen from United States
seen from Italy
seen from United States
seen from United Kingdom
seen from United States
seen from Malaysia
seen from United States
seen from United States
seen from United States
seen from United States
Man I was so sick for so long I forgot what being fed and hydrated felt like. Compared to a few days ago when even sitting up made me feel like passing out, I feel like I’ve gotten a great night’s sleep and had an energy drink. I’m so awake and except for the joint pain I feel like I could clean my whole house 😂 thank heck for Motegrity making my stomach actually move its contents!
Not sure what to do or if I should do anything, but something is not awesome. 💜 My insurance finally agreed to pay for the Motegrity for up to 12 months. I am so grateful and I really hope it works. 💜 I started taking it yesterday as it is likely to cause diarrhea the first few days to weeks. I wanted to start it on a day when I could be home. 💜 TMI warning: I initially thought this might be a fluke, however it happened again today. About an hour after I took the med I started getting a bad stomach ache (kind of like an all over stomach flu ache). I got super nauseous and felt horrible. I went to the bathroom in hopes that it would help. Both days I was able to poop. .... The problem is that there was definitely bright red blood involved both days. I am not sure if this is just a coincidence or not. Being bright, I am not quite as concerned, but it is still weird. I have had bleeding fissures before, but this isn't quite the same. There is a significant amount. After about an hour or two, I am back to feeling fine. I even had another BM this late afternoon without any sign or speck of blood. 💜 I want to give it a few more days to see if it continues to happen. If by Monday I am still doing the same thing I will call the office and see what they say. I would be really sad to hear that I would have to stop this so quickly after working so hard to get it approved. 💜 Has anyone had anything like this happen with a medication? I am at a loss. 🤷 💜 #chronicillness #motegrity #chronicbackpain #Chronicpain #chronicinflammation #mylifewithlupus #lupus #justalittlelupie #nevergiveup #bloodystool #medreaction #myalgia #abdominalpain #nausea #spoonielife #spoonie #myjourney #spoonies #chronicconstipation #appetiteloss #colonicinertia #dysmotility #dysautonomia https://www.instagram.com/p/By88TLmA4D1/?igshid=3jg0aqjcpugy
