Say you went to the doctor and you were diagnosed with a muscle condition that gets worse over time. You are going to have it for the rest of your life. You are also told that you will require a walking device or wheelchair in a matter of 5 to 7 years after your diagnosis. Then you were told there is no cure or set treatment, just the ability to manage the symptoms that may come along with it. You were also told that the only thing that can help slow progression is physical activity. The repetitive phrase between you and your main neurologist is, “if you don’t use it you lose it.” Meaning, if you don’t use a certain muscle for a while, your body will most likely forget how to use it in a matter of months or any long period of time without any practice. Same for walking and most other major movements.
What would be your reaction? How would you cope? Would you stay positive? Would you feel envious, seeing people enjoy what you can’t? Would you want to go out? Would you be anxiety and depression free? What could other people do to help you emotionally? (Btw I have already been told "I would of killed myself so)
