hey! i'm crow&, and this is my blog for specifically talking about my spinal cord injury (atlantoaxial instability/AAI) and the way it's disabled me and impacted my functioning.
my blog is by and for people with neurological disabilities, neurocognitive decline/disabilities, and spinal cord/brain injuries. people with intellectual disability are also welcome in this space. details & reasoning are under the cut.
if you want a blog that allows a wider variety of people to participate, you can go to my general blog @crowpunkco.
i've been a cripple & activist for at least 4-5 years now, primarily disabled by hypermobile Ehlers-Danlos Syndrome and related dysautonomias, but my AAI became debilitating about a year ago. this is a space for me to talk about my experience with it.
people with the following can interact:
neurological disabilities includes disabilities and injuries of the physical brain (not psychology or development), spine, and nerves. it includes brain injuries, spinal cord injuries, epilepsy, chronic migraine, and similar.
it does not include neurodevelopmental disorders like autism and ADHD, and it does not include mental illnesses. not all neurological disorders are neurological disabilities. (it's not my fault the terms are similar)
neurocognitive disorders/disabilities includes cognitive decline and impairment caused by physical conditions. this includes mild cognitive impairment (the disorder), dementia, chronic delirium, and traumatic brain injury.
spinal cord/brain injuries includes what it says on the tin. nontraumatic spinal cord injuries as well as severe CCI and AAI are included because... well, obviously, that's what i have.
intellectual disability is one disorder/disability/diagnosis. it doesn't include learning disabilities/difficulties. i don't have this, but i trust people with ID, and my NCD is much closer to ID than anything else
anyone else can follow if they like, but are absolutely not welcome to reply or add commentary unless explicitly asked for.
but why?
this is an extremely hard thing for me to talk about, and it's basically impossible for people with these disabilities to talk about our experience without someone derailing it--usually people with disabilities that do not impair their functioning to nearly the same degree who minimize whatever we're trying to talk about. it's exhausting and i just don't have the energy for it.
