Sorry for taking a while I was like engrossed in the video. It was really interesting to listen to. I'd figured it'd be hella expensive simply because of what it is doing. It'd most likely be mainly used in the medical field for like a certain time before like slowly also going into a cosmetic field. Hell, people dye their hair or use contacts to achieve something that biotechnology could help with (like make it much less of a hassle of buying the same dye every so months). It's understandable why it's being used in context with diseases that can't be cured because some of those diseases can be painful. Like cancer even if someone goes into complete remission, the cancer can still come back. Talking about ethic's, it's like what some of the people in the video said about IVF there were a lot of like fears/ethic issues (like calling the babies test tube babies) with it because of all the possibilities it had.
Oh, I get it completely, don't even worry haha.
Yeah, I'm just looking back through the research I had done, and treatments at the moment are upwards of $300,000 dollars, which is whew, a lot. But with a disease detrimental to someone's quality of life, I'm sure that price is worth it.
But yeah I agree, like any technology with various uses, people will use it. Take plastic surgery, for example, something that was used to reconstruct various parts of the face that had been damaged. That progressed to how we see the plastic surgery industry now, something that while yes, is still used to improve quality of life, is also for cosmetics to appear more beautiful. I suppose it's a matter of...vanity I guess? Like people question whether or not it such a magnificent technology should be used for something as vain as improving looks. But it's going to be done regardless, and besides, people question everything. If people have access to it and have the funds to support procedures then by all means. As long as people who truly need gene therapy aren't hindered or blocked off by people using it for cosmetic purposes, I don't see the issue with it.
Many ethical discussions come from a specific type of gene therapy called germline gene therapy. This is when the genome of germ cells is edited specifically. There are two types of gene therapy that exist, somatic and germline. Somatic cells are normal cells you find in your body, skin cells, muscle cells, etc. Any cell that isn't a germ cell. Germ cells on the other hand are sperm and egg cells. The issue, or rather the reason germline gene therapy is questioned is that this makes any procedures done hereditary as well, meaning it's passed down from offspring to offspring. Essentially it's permanent as long as your genes are passed down. With this comes the more permanent consequences. In the case that something goes wrong that goes unnoticed before it's too late, those edited genes are still passed down, making all offspring suffer the consequences.
Further, there's also the topic of the consent of the offspring. They can't exactly consent to the procedure that will affect them directly for their entire lives, so is it ethical to proceed? ESPECIALLY if the procedure is for something cosmetic, is it really right for parents to pick and choose traits for their children? (Here's where IVF babies are brought into this debate too!!)
There are also debates around the stigma of diseases, what should be considered something that SHOULD undergo gene therapy or not, safety concerns, societal divides, and lots of other topics lol. But I'll stop here because this post is already too long hhhhh.