#sicklecell101

[sicklecell101]

Sickle cells are not only sickle or crescent shape. There are other characteristics of sickle cells that contribute to disease complications. #SickleCell101 #sicklecell #sicklecelleducation

[sicklecell101]

Finding ways to test for #sicklecell in low cost methods similar to that of point of care HIV or malaria tests, would be transformative in testing in countries that have limited resources for screening their sickle cell population. There are many tests available, including the solubility test, however inexpensive methods that prove to be more reliable in yielding accurate results are needed. #sicklecellawareness #sicklecell101 https://www.instagram.com/p/BnoyXq9ghjw/?utm_source=ig_tumblr_share&igshid=dslhlmtxh0rr

[sicklecell101]

Have you lost a job due to sickle cell? “I was working as a nursing assistant and my job was fully aware of my health condition, sickle cell disease. Initially, they told me they were willing to accommodate my condition; however when I went into a crisis, I wasn’t able to go into work for a week. I was put on probation. When I returned, I was given the option to get “laid off” or to just leave the job. I chose to leave because this wasn’t the first time I encountered having to choose between work and my health.” @pretty_littl3_thing #facesofsicklecell #YKYHSCW #sicklecell101 ------------------------------ For a trusted resource on this topic visit @onescdvoice (link in bio) https://www.instagram.com/p/BoPZ3yfA0P3/?utm_source=ig_tumblr_share&igshid=7icpfsclrcdz

[sicklecell101]

“I don’t like missing out on opportunities because of #sicklecell disease. Even when I’m not feeling great, I want to do as much as I can, and put in as much as possible. I hate being hospitalized or being in bed because I’m not strong enough to do what other are doing. Everyday I give it 100%. It’s an inner motivation; dangerous at times, but I feel it is worth it.” In this photo, Shubby climbed the Corcovado mountain by foot to see Cristo Redentor in Rio de Janeiro, Brazil. #YKYHSCW #sicklecell101 ------------------------------------------ Sponsored by Ironwood Pharma https://www.instagram.com/p/Bn1rwLnATJ_/?utm_source=ig_tumblr_share&igshid=1o8gmjdrvav2l

[sicklecell101]

This blockage is called vaso-occlusion (or vessel blockage) can create extreme pain, which is a hallmark complication of someone living with #sicklecell disease. This pain episode can range from mild to severe (which patients describe as “bone crushing”) pain. This pain can occur in any part of the body. Pain is often treated with painkillers such as opiates. #sicklecell101 #sicklecellawareness https://www.instagram.com/p/BoH0aLqguni/?utm_source=ig_tumblr_share&igshid=1i6f3xqvkedqf

[sicklecell101]

Any tips from individuals who have applied are welcomed! Medical baseline allowance is offered by gas and electric (and/or water and power) companies like PG&E which is offered to customers with medical conditions that require special needs like heating and/or cooling, which are needed to improve health conditions. A certain percentage is taken off of your electric/gas bills meaning bills are reduced. Often times, a form completed by your doctor is required to confirm eligibility for these reduced rate programs. #SickleCell101 #sicklecell #sicklecelleducation https://www.instagram.com/p/BmMIWWmA2SD/?utm_source=ig_tumblr_share&igshid=zzn0wzc8ilp7

[sicklecell101]

Sometimes this burden is too heavy to carry on your own, so it encompasses you and unintentionally becomes your disguise. Always remember you’re much more than that. You were never a burden, but always a blessing. #sicklecell101 #sicklecell #blessing

[sicklecell101]

Happy #WorldSickleCellDay! It our day, a day of celebration, showing our scars and educating others on the importance of encouraging sickle cell awareness and research. Tell your stories, sport your gear, participate in challenges and events, and do the most today, we deserve it. Stay tuned for World #SickleCell Day related posts all day long. #repostforsicklecell #SickleCell101 #SickleCellAwareness