#spoonie guide

[morethanthediagnosis]

Medical Assist Bars

Spoonies who have trouble in bed may already be using one of these. If you’re not, it will make your life so much easier! Those of us with vestibular impairments can have a lot of trouble on soft surfaces. Imagine a turtle stuck on it’s back! Assist bars like this are great, especially if you don’t have a headboard/footboard that some other devices need. The long flat part goes under your mattress, while the handle sticks up to help you pull yourself into a reclining position. I have the second one down. It has a pocket that I can use to keep things like meds for when I’m having too much pain to think about getting out of bed.

[spoonie-chronicles]

just a quick reminder to all my chronically ill friends out there:

Nobody prepared you for what was going to happen in your life. You didn’t get a warning that chronic illness was going to become a major part of your life. You have been able to figure this out with zero preparation, and for that I am proud of you. <3

[spoonie-chronicles]

being alone with yourself for a long period of time teaches you a lot, both about yourself and about those in your life

[spoonie-chronicles]

rainy nights are my forever therapy