#spoonienet

[thespoonienet]

i need some advice and idk where to go! basically i found of a spoonie on instagram (an internet friend) is really homophobic and it’s really hurt me😭 it really upsets me that everyone thinks she’s sweet and nice when she’s not. i just wish i new how to change her mind or i wish everyone knew, but i don’t want her to get hate... idk???

Oh gosh, I’m so sorry love. That’s awful. I hope you know that you are ALWAYS supported here! We love all of our spoonies of any sexuality. Have you tried talking to her about it? I know it can be hard to change opinions, but sometimes education is really what is needed to open people’s eyes. 

I’m here for you! <3

[fox-and-roses]

Hi dears

I am so very very sick right now. Like, pain is bad bad bad. But I’ve been thinking a lot about what it means to build community. This has come up in my living situation, where some folx are not on the same page about racism and white supremacy, and how to build our community to be safe and prioritize POC.

So for y’all, for my community on tumblr, what does it mean to build a loving, safe space for spoonies, cripplepunks, disabled folx, building a support and resource sharing network, where we talk to each other, build each other up, and express the realities of being disabled, share our joy and bitterness, all of that! As well as recognizing and embracing and uplifting all the intersections that live in our community.

What do you think? What do you want? What would feel good? I really wanna know. I really wanna work on this and do everything I can to support. Hit me the fuck up :D

[wickedguise]

Anyways so today scientists at Stanford discovered biological evidence that Chronic Fatigue Syndrome (CFS) is a real disease so all of you ableist motherfuckers who have been saying that this shit is "all in our heads" can kindly fuck off now k thanks xox

[daniellebmcmanus-blog]

Spoonies

Does anyone else get a burning pain at the socket where your leg meet your pelvis? I get it from sitting and lying down, which is great since that's all I'm physically able to do.

[nnicaela]

When you use spoons to relax and then something stressful happens Now all your spoons are gone and you're stuck being stressed out

[greet-a-new-friend]

Dear Doctor, I am writing this in complete agony, bedbound once again as I am at least once or twice per WEEK now. I have been waiting for tests for 6months. So forgive me for not giving a shit that you wanted extra holiday time. So forgive me for not giving a shit that you apparently deserved the holiday I was deprived of because of illness and pain that you should've been helping. You're allowed weeks of holiday per year. I never get a holiday from illness. I know this might seem rude or insensitive or self-absorbed but it isn't on me when I'm frustrated because you aren't doing your job. From an annoyed, emotional teenager who has to do exams when he can barely lift his arms.

[dndgeekgirl]

For spoonie strong selfie Saturday. This winter has been rough. This makes two curbs with two cars now

[thespoonienet]

I'm a Spoonie going through a break up, and all the stress and anxiety about it is making my health conditions flare up. My ex-partner wants to not talk and have space, whereas I want close and to end things on a nice note. Wanting the opposite things makes it so hard and he has always only done things his way! Do you have any tips for managing health problems during stress, or for dealing with a breakup? Sorry for the long post, and thank you for your blog 💛

I’ve never had a breakup before, can anyone help our friend out?