#chronic life

[miinobobeano]

It bothers me so much that the healthcare system relies so much on the patient's ability to advocate for themselves, organize their history, and be so persistent against every medical “professional” who says there’s nothing wrong/they can do. But so many struggle with fatigue, brain fog, and face such ingrained systemic barriers, that the people who need and deserve help and support can’t access it.

I saw something recently that resonated with me: “Access shouldn't depend on who has the energy to fight for it.” And I’ve never agreed with anything more.

[im-out-of-it]

it’s funny how many expectations are put on the disabled and chronically ill. if any abled person experienced even 7% of our symptoms, they would be going straight to the ER and say they couldn’t do something because they have to recover. yet when they talk to a chronically ill person, the expectations are so high. “you should be managing that by now. why don’t you feel better? you can’t expect everyone to feel bad for you and support you 24/7” like yall would be crying and begging to go to the ER if you had one of our symptoms. we get told to get over it and stop being an inconvenience

[potsiepumpkin]

When the chronic fatigue is chronic

[clearmindtips]

sometimes the fog hits the day after you did “too much.”

you had a good day. maybe you pushed yourself a little. cleaned. socialized. ran errands.

and now your brain feels like it shut down.

you cannot think clearly. reading is hard. conversations feel overwhelming. it is not just tired. it is heavy. thick. consuming.

post exertional malaise does not just affect the body. it affects your mind too.

when your system crashes, cognition is one of the first things to dim. that does not mean you did something wrong. it means your body needs deeper recovery.

you are not weak for needing rest. and you are not dramatic for wanting your clarity back. with the right kind of steady support, the fog can lift more gently. this can help you recover without pushing harder

[feathereddragonobsidian]

Being a new adult who spends and has spend most of their life in hospital waiting rooms, surrounded by elderly people. Being told "just wait untill you get older". Trying to find mobility aids, with mostly elderly people being seen in the example pictures. Elderly people being mad, because you, a disabled person, took the disabled seat.

Young disabled people exist. Young disabled people are valid. Young people can experience pain. Young people can need mobility aids and tools to help them make life easier. We exist and we are valid.

I hope some day, it will be seen that anyone at any age can become disabled. People are born every day with a disability. Mental disabilities don't dissappear with age, and physical disabilities don't just appear when you become an elderly person.

[chronicallyuniconic]

Bullshit is what it is.

[stvrgirl3636]

[myalgicencephalomyelitiscfstom]