#chronic life

[stardustinmyhands]

EVERY SINGLE JOINT IN MY BODY HURTS TODAY.

Today is a very big variety of medicine, hydration, a heating pad, and sitting on the couch watching tv. (Right now I’m watching Fellowship of the ring, extended edition). I’m trying to color to distract myself.

I went to a party yesterday, from 6:30 pm to 11:45 pm. By the end of it I was so overstimulated, I was hugging my capybara named Kippy, and crying, while my boyfriend soothed me. I was hugging Kippy the whole time my boyfriend drove us home, I couldn’t handle to see the car lights.

I had a lot of fun at the party, I got to socialize with my community. Since I’ve been on the injured list, and then in the hospital. My boyfriend and I haven’t been anywhere in like 2 months cause of me basically.

I feel like I’m a burden on my boyfriend, he always tells me I’m worth it all. Everyday he changes my bandages on my feet and says he does it cause he loves me.

I remember when I moved in with him, I said I’m not crimping your life style. His reply “you are my lifestyle”

When I moved in he put shelves for me and cleared other shelves for my stuff.

He’s the best thing to ever happen to me.

[im-out-of-it]

something I want abled people to try to understand or acknowledge is that chronically, mentally ill, and disabled people will have trouble with small tasks and daily life that you wouldn't have trouble with. me making the bed takes me out and makes me out of breath. not putting on sheets (that’ll put me in a flare up for days) but just pulling the covers, putting my notebooks for my ungrateful cat to lay on. taking a shower puts my heart rate to 160s. washing a dish or two physically hurts my arms and body. the stuff that yall take for granted are the things we wish we could without it feeling taxing on our body

[stardustinmyhands]

I’m ready to get back to my normal. Going to work, driving, helping around the apartment more. Right now I’m kinda a lump on the log

My burns I got on July 3rd are still healing on my left foot (I’m writing this August 7th). I’m a slow healer in general when it comes to everything. And it’s really prevalent now. I wanna return to my normal.

I was afraid I would have to return to the hospital today, but after talking to my boyfriend and taking drugs I feel better.

I’m seriously thinking I have to get on disability. I will have to talk to my boyfriend more about this. (He got the new Samsung phone today, so he has a new toy).

I think I will find a lawyer this time to help me through it. I’ve never had a good one, my boyfriend will help me find one for sure. I saw how much I would get in an estimate on the social security website. We would be able to live with my disability income and his income.

I’m also in a lot of pain today. I’m also itching where I was sunburnt and while I was in the hospital I didn’t take a shower, so I think my skins moisture barrier was ruined. So I’ve been living on atarax, and putting on the cream the burn unit gave me.

While I was in the hospital they gave me atarax to calm me down. I’m not allowed to take regular anxiety meds cause of the contract I have with the pain dr (they were shocked I stopped Valium cold turkey). I take 2 types of class two controlled substances. I feel a little weird when I go pick up at the pharmacy together. But I have chronic pain and AUHD.

I was put on Samsca, cause they wouldn’t touch my behavioral meds. They won’t touch meds prescribed by my psychiatrist, and I’m stable on my mood meds. So they have to adjust.

I will say Samsca is hella expensive, and I’m shocked my insurance covered it 100%.

[stardustinmyhands]

I got a new diagnosis while in the hospital.

[stardustinmyhands]

I’m home (as of last night) after 7 days in the hospital. My new kidney dr put me on a pill called Samsca, its use to increase blood sodium. It’s hella pricey.

That is the price for 15 pills, 15 mg pills. I take half a pill a day. It keeps me out of the hospital. Soooooo it’s so worth it to me.

[stardustinmyhands]

I got admitted to the hospital for critical low sodium levels.

My boyfriend just left to go home and sleep for work tomorrow.

He said he will spend the night with me tomorrow.

[stardustinmyhands]

I went to the burn center yesterday. I was quite impressed. They treated me wonderfully.

They sent me home with supplies for wrapping my feet. (Since both feet are burned).

I have to go back Monday, and then they will determine if I need a procedure to remove the dead skin on my left foot. The dead skin is in the shape of a heart, it’s kinda funny.

I’ve cried 4 times since yesterday, I do feel better today. Even more since they are being so aggressive with my treatment.

[chronicallyuniconic]

When you tell your doctor everything that's wrong with you and they're just like