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trying to shop for uv blocking clothing so i can leave my fucking house in summer without risking kidney damage and months of horrible pain and fatigue. and oh my GOD. why does it all look like that. what if i just wear a fucking hazmat suit instead
For somebody that struggles with low heart rate and blood pressure, this episode of Euphoria brought me to normal levels sweet Jesus my heart was pounding
Nobody talks about how it feels to date with a chronic illness. The constant insecurity and fear of being a burden and comparing yourself to others all the time. Especially with an illness that progressively worsens so you don't even want to marry because you're scared of trapping someone into a caregiver role they didn't sign up for. Please tell me I'm not alone in this
6/2/2020
so I was told today that I have lupus. it's good to have an answer, but I'm still figuring out what to make of this. it's also likely I don't have a proper connective tissue disorder, and my connective tissue symptoms are due to inflammation.
Me, ready to get things done but waiting for my meds to kick in so I can find out how functional I’m gonna get to be today:
Living with Reynauds disease. Level Purple.
I’m so exhausted/angry. Yesterday my wee smelled funny. That was it. Today my right flank hurts, my abdomen is tender, I have a ripper of a headache and my hips hurt so badly I can’t sit properly. I have a kidney infection.
Oh, and it turns out that when I’ve been in hospital for a lupus flare and my urine has been tested, I’ve been positive for protein. Twice. No one told me (or anyone?! It just wasn’t followed up!). I’m going to call up my rheum and ask him his opinion.
2018 really kicked me in the guts health-wise. I hit some lows I didn’t think possible. I am praying that this year doesn’t turn out the same, because I’ve made some massive progress in my recovery from last year that I can’t afford to have undone.
[26/06/19] Systemic Lupus Erythematosus
