The hits just keep coming. I don't even know where to start. Mary was inpatient for a week, the week i had to travel for work, which in some ways was good because I was worried about my mom being able to handle her while I was gone, but I got back late one night and had to pick her up the next morning. She is doing an IOP program locally (brand new, yaaayyyy for actual local in person program), but its 6+ hours a week after school. Fitting that in with our already packed soccer, ballet, gymnastics, therapy schedule has been crazy - thankfully my mom has bene able to help - she has mostly not be helpful since her knee replacement in December but is finally recovered enough that she is not in pain and is mobile, so she has helped.
All three kids had yearly dentist, annual checkups, plus other things like specialty appoints and bloodwork and xrays. I have been spining in circles completely exhausted, its been one thing after another for the last month.
I went in for a biopsy on wednesday and apparently i have cervical stenosis so she couldn't do it. So outpatient surgery scheduled for a month from now. It could be cervical/uterine cancer but she doesn't seem to think so, but we won't know till she cuts a hole in my cervix and shoves a camera up there and biopsies it.
Toddler baby had her endocrine followup and at 8 she is halfway through puberty - its not early enough we have to delay it, but we could, but she's growth spurting so if we don't intervene she could end up really short. But if we intervene and stop a growth spurt she might end up really short. Doc says its preference at this point but we are going to do some bone scans and get additional info. My sense is to not intervene unless its medically necessary, I'm not overly concerned about height, but I am also a tall person so IDK. More testing and then we go from there.
Mary has still been a hot mess. She is just SO mean all the time and I don't know why. Med adjustment hasn't made much of a difference. She is participating in groups though and seems to be actually learning some coping skills so we will see. IOP only goes through the end of june so I'm trying to get in-home and other wrap services in place, while also looking at residential options. Have followups for her teratoma scheduled and need to schedule GI consult and an EKG.
My mom texted me last night that she was going to have to put her cat down today. She was supposed to pick Mary up tonight for two days. This cat and Mary had a super special bond - Mary picked this cat out for my mom at the shelter years ago and its Mary's favorite cat. I told her about it when she got home yesterday so she wasn't surprised today to get to my mom's and the cat is just gone. She was devastated. Mary had a band concert last night and got home late and was up for hours crying - but at least she was crying and talking and processing it and not holding it all in. And asked to fall asleep in my bed. I let her stay home today.
Charlie broke a wire in her mouth and i had to drive her an hour for a 2 minute fix. Dropped Mary off with my mom on my way home and got home in time to get toddler baby from the bus and then take the dog to the vet.
Dog has been limping for a month or so on and off, pretty sure she pulled a muscle or something but it wasn't getting better. I had emailed the practice a couple weeks ago about a growth in her mouth and they said don't worry about it, probably gingival hyperplasia like she had last year. Get there today and old school vet says I'm not concerned about her foot, we will give you pain meds and rest it, but that growth in her mouth in cancer and it needs to be biopsied ASAP.
I had taken today off to have a minute to myself and to make phone calls and get caught up on things like taxes (oopsie), bills, making more specialist appointments, etc., and maybe a costco run and a pedicure, but i got none of it done. At least I already had the day off to deal with it all?
2.5 days of school left in the year. I have no summer plan. Well I have a couple weeks of camps scheduled but that's it, everytime i try and make a plan something else happens and derails it all. So I guess we are going to stick close to home and have a low key-ish summer (knock on wood) while we get all the appointments and all the services and figure out who and what has cancer or not and what the plan is going forward for everyone.
I'm tired. And I feel like there is way more than what I wrote but I can't remember, ha.
Edit to add, just unpacked backpacks and Toddler baby has an IEP meeting scheduled for Tuesday? Thanks for the notice. 🙄