"If you really had DID, you wouldn't know!"
The idea that people with dissociative identity disorder (DID) can't be aware of their symptoms until they're diagnosed... This is a huge myth about DID and similar experiences; one that has been debunked again and again by experts. Yet it remains! Here are a few examples of this misconception being spread around online: source.
People with DID can be, and often are, aware of their DID symptoms before ever speaking to a clinician.
Where is the proof? Khan (2024) states that, while it's normal for dissociative people to not realize the full extent of their symptoms, trauma, or alters, they can still become aware of any of these things at any point. Source. Dell (2006) actually considers the awareness of alters before diagnosis to be a "common occurrence in DID" which has been widely documented in studies. Multiple diagnostic screening tools inquire about awareness of alters for this reason. Source.
Additionally, alters can have varying degrees of awareness of each other and their symptoms. To quote Howell (2011) from her book, on pages 3-4: Source.
"Different dissociative parts may or may not have knowledge of the affects, behaviors, histories, motives, and thoughts of other parts. How coconscious patients are also varies—that is, the extent to which they have knowledge of and are privy to the thoughts, history, and affairs of the other parts varies. Often, the part of the self that is in executive control is unaware of the thoughts and activities of other parts (often called one-way amnesia). However, this is a tricky topic to try to make clear. For example, coconsciousness may be minimal before beginning psychotherapy for DID but tends to increase considerably in the course of appropriate psychotherapeutic work. Although parts other than the part who is most often in executive control (often called the “host”) are more likely to know of each other and of the host, this is not always the case and is not always the same for different parts of the same patient. Some parts may be unknown by many of the others. The dissociative structure of each patient is different."
Even in the case someone has no memory of their symptoms, they can be made aware through external evidence such as finding purchases or notes that other alters made, police reports confirming traumatic events, someone pointing out their dissociation, etc.
Now let’s talk about something that I feel goes frequently unrecognized: becoming aware of symptoms is often a positive thing! For many people, recognizing their own symptoms is the first step to seeking help for them. As mental health awareness and access to useful information increases, we will likely see an uptick in people with DID developing more awareness of their symptoms and getting help sooner. That’s incredibly positive!
For people with a dissociative disorder: Were you aware of at least some of your symptoms before you learned you had a dissociative disorder?
Yes
No
It's complicated
Not dissociative / See results
Voting ended onNov 11, 2024
Finally, a small note about diagnosis... Diagnosis is its own loaded topic for a different day. However, I want to point out that people diagnosed with DID still had the DID before their diagnosis. The symptoms were still there, whether they were aware of it or not.
Furthermore, not everyone with DID can obtain a diagnosis or even wants one. There are a myriad of potential reasons for that and I encourage you to do your own research on it. These articles can be a good starting point: source, source, source.
