The Chronic Struggle @thechronicstruggle - Tumblr Blog

Almost 22 years of life and I still give people the benefit of the doubt. What will it take me to realise nobody fucking cares, no one gives a fuck about what you’re feeling, what you’re going through, where you are, how you are. So why do I keep caring about them?!

#finally done

Unrest

I stumbled across a new documentary on Netflix called ‘Unrest’ and when I saw it was about CFS/ME I was sceptical, but I played it immediately.

20 minutes in i was balling my eyes out and had to take a break from watching it. This documentary has portrayed so many of the thoughts, emotions and pain I have felt for years, some of which I have never been able to adequately articulate.

What Jennifer Brea has managed to capture and convey through this documentary is extremely informative, yet heartfelt and emotional.

I’m so appreciative that there are people out there fighting for not only themselves, but for us, despite their own suffering. This is a huge step for our community and I hope the comfort it brought me is felt by others!

#unrest #timeforunrest #cfs #me #me/cfs #chronic fatigue syndrome #myalgic encephalomyelitis #documentary #Jennifer brea #invisible illness #millions missing

wnq-writers

You never, ever, ever, get over some things. And time doesn’t heal them. You just learn to manage them. But they’re always there.

wordsbyt (via wnq-writers)

plasmastainedbones

Things people newly diagnosed with chronic illnesses should know

Symptoms fluctuate

Bad days don’t last forever

Good days don’t mean you’re faking

If you think your doctor is wrong, you have the right to say so

Likewise, if you think your doctor is ignoring you, you have the right to say so and demand a new doctor

Don’t be afraid of mobility aids

You don’t have to answer strangers’ questions

Your life isn’t over

Some people might leave. They don’t matter.

The people who support you are great

You are allowed to complain

You’re not worthless

You’re loved and supported even if it doesn’t always feel like it

You are not alone

chronicillnessproblems

Also, it’s okay to have trouble accepting any of these things, and your feelings are ALWAYS valid.

enjolrasjosette

It’s a never ending grieving process. You go through all the stages time and time again. And that’s normal.

painmanagementprincess-blog

I grieved for years until I picked myself up. You need to go at your own pace and accept your feeling and thoughts have merit.

hyperesthesias

Spoonie Problem #58

Knowing that no one will love you or want to put up with you and your illnesses. Even if it’s not true, the crippling thought can be inescapable.

scorpio-infp-introvert

me: i slept 16 hours

neurotypical: wow! i wish i could do that!

me: and i wish i could live a productive life without having a cloud hanging over my head and blocking every obstacle, making it 10x more difficult for me to accomplish anything which then in turn creates more reasons for me to be depressed. we all want things, stacy.

Okay so i have my colonoscopy tomorrow and i’ve started my bowel prep today.

it’s about 2 hours after my second sachet of the laxative drink and i still haven’t had any bowel movements.

Is this as weird as i think it is or a is it normal?!?

#colonoscopy #bowel prep

noitsnotjustaheadache

This is such an awful thought to most people but if they don’t find anything on a test I get really discouraged. Healthy people are always like “ohh thank goodness that means everything is okay” UMM NO. That means I’m still as sick as I was & I still don’t know why, which means I went through that test for nothing & will have to go through at least one more to find a diagnosis so that I can hopefully start a treatment. I’m not hoping that I am sick…I already am sick & want to get better.

cementforbones-deactivated20171

When I accidentally confess how much pain I’m in.

person: how are you?

me: oh, just dealing with unbearable pain that sometimes makes me question my sanity.

person: um what?

me: I’m fine. nothing is going on. I just had too much caffeine today. go on about your business. everything is okay.

thefibrodiaries

*abled voice* well maybe if you were more positive, did yoga twelve times a day, cut out gluten, went vegan, cured any physical damage with, spent £537738 on natural treatments and tried harder then you maybe you wouldn’t be sick.