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amber ! he/any ! 20 - tinkonkas on twt, tinkonka everywhere else

[tinkonka]

Cool amber update: not only do i have MS . But i also apparently have POTS. Go figure

[krisellezine]

🍎 CONTRIBUTOR SPOTLIGHTS ❄️

It’s time for us to present more of our contributors!

A warm welcome to @jaggedspine and @kirachune joining us as page artists and ParodyDue and Tinkonka joining as writers.

[tinkonka]

Hai i am updating again

I had round 2 of the tysbari a few days ago i think the injection is sooo painful but. it wasnt so Bad. Its just the recovery that takes a bit too but im feeling brand new now :) (as in its . not sore . .i am still disabled) theres no terrible side effects from what i can tell.? not much is different. ubt its also been a lot Cooler lately so i have been feeling Significantly Less wnating to die.

i jsust. im hopping on ehre. because im emotional and need to talk my mothers friend gave me a? crochet avocado ? iwth a cute little message on it becuase ? of what im going through and its making me REALLY. really. soft.

and im just. thinking about my partner On god these past few months have been so. so so very tough on me. Genuinely worst ive been since high school. a few (minor) relapses here and there. But its just. so. reassuring knowing i have someone Constantly There. someone who makes. sharing things feel So much less scary than it once was. Which isnt to say my other friends wouldnt do this for me either but its just. I feel i am a lot sometimes . but he makes me feel really heard. he remembers things about me and he takes initiative and. its. so . Im so loved and it makes everything feel easier . you know ? :( im so ogeuh.ugrhtg. If He Reads This Im Going to Explode.

but yes. 2 week break !! im going to try writing again . Yay

[tinkonka]

hi amber ^^ it's been forever... here are some asks for the prompts you rb'd !

19 - What hobbies do you have? Have any of your hobbies changed/adapted to your chronic illness or disability?

35 - How do you find small moments of happiness when you're struggling?

HI !! ALTO!!! :D long time no see!!

my hobbies are like.. I like drawing, writing. Singing. playing piano So i will go thru them one by one. Drawing n piano have honestly been fine? I don't really do it as often because of motivation (but htat's really true for all of them).. singing is the only one i can really do consistently since it doesnt take much effort. THE ONLY THING THO with singing is that i have to turn off my mini fan. in which. i feel like i am in Survival Mode for however long i sing the speed in which i start getting too hot is Crazey. writing thoug. oh my god. writing. Has gotten so hard for me ufemjlhg. It's so hard to put my thoughts into words. I don't do it nearly as often as i used to (whic kinda sucks because i got into like. 4 things as a writer and had to drop out of two)

this is actually really funny timing becuase i kinda. Had a moment earlier where i was really upset about. Needing treatment for like the rest of my life fMGDK and like. Being vulnerable involuntarily? for me i find. those small moments of happiness in people i think. Theres my partner who has been really helpful these past few months just.. with my mindset and. The consistent. reassurance. I am really lucky to have him. there is also my good friend who has also been a warm presence and i talk to about things. the group i play dnd with. One of hte biggest things ive been struggling with lately ontop of the illness is relapsing into like. Old mindsets and having a stable support is really helping me :) i feel a lot better than i did in jan

[lupusbaby]

Disabled // Chronically Ill Asks

I don't know if we still do ask lists on this platform but I'm doing it. Reblog to have your followers ask you any of these numbers! If you don't want to answer one, just say "pass".

What illnesses/conditions do you have?

How do your illnesses affect your life?

What medications do you take and what are they for?

Do you use any mobility aids? If so, what effect/impact do they have on your life?

What illnesses/conditions do you have?

How do your illnesses affect your life?

What medications do you take and what are they for?

Do you use any mobility aids? If so, what effect/impact do they have on your life?

What illnesses/conditions do you have?

How do your illnesses affect your life?

What medications do you take and what are they for?

Do you use any mobility aids? If so, what effect/impact do they have on your life?

Do you use any other accessibility devices?

Do you have any favorite disabled/chronically ill creators?

What is one thing you wish healthy/abled people would know?

Give me a personal confession about being chronically ill/disabled.

Do you have chronic pain? What does it feel like and where does it affect you?

Do you identify with the label "disabled"? Why or why not?

What hobbies do you have? Have any of your hobbies changed/adapted to your chronic illness or disability?

What is your flare day like?

Do you have a favorite comfort item for when you aren't feeling well?

What is something you would like to accomplish one day? (small or large, short-term or long term!)

Do you have any tricks for living with your specific ability/symptoms?

Do you have any chronically ill/disabled friends? (Do you want one ( ͡° ͜ʖ ͡°)?)

Do you receive support from anyone else in your life? What kinds of things do they help you with?

What is your normal day like?

Briefly describe your personal pain scale.

Have you ever experienced medical gaslighting?

What is your most positive moment related to your illness/disability?

What was your hardest moment related to your illness/disability?

What is a positive that your illness/disability has brought to you?

Are you in a relationship? How has your relationship changed surrounding your illness/disability?

What is one story related to your illness/disability that you'd like to tell?

What makes you feel better? What makes you feel worse?

How do you find small moments of happiness when you're struggling?

[tinkonka]

Babys first round of Tysabri Tomorrow

[tinkonka]

I feel like i have period cramps .

[tinkonka]

Babys first round of Tysabri Tomorrow

[theelectricdreamsofddx]

Hey, wanna make music? Yeah? Got a buncha money? No? Well that's perfectly fine, check this free stuff out:

Vital - A powerful wavetable synth, my personal favorite VST synth, very easy to figure out creating new synth sounds, with the help of the plenty of tutorials that are out there for the plug-in. (There are paid versions but they are completely unnecessary to get 99% of the features of the plug-in.)

Synth1 - A classic piece of synthesizer software.

Pendulate - An interesting, chaotic synth that you can make weird little sounds with.

Native Instruments' free plug-ins - Various cool VSTs, including the Komplete Start pack.

The Free Orchestra - A set of orchestral instruments for Kontakt Player (see previous link).

BBC Symphony Orchestra Discover - More orchestral stuff! This one has its own player so you don't have to download a separate VST to use it if you don't want to.

Magical 8bit Plug - A chiptune plug-in, intended for producing sounds like that of 8-bit systems like the NES and Master System.

Genny - A synth VST made to emulate the soundchip of the Sega Genesis/Mega Drive.

MT Power Drum Kit - A nice rock n' roll style drum kit plug-in.

This guy's weird VST collection - 6.4 gigabytes of weird VSTs, including some you might know, like Delay Lama and MeowSynth!

sforzando - A free player for soundfont files.

Musical Artifacts - A resource I mainly use to find soundfonts, on which you can find other various things as well.

Kilohearts Essentials - 30 effect VSTs including reverb, delay, compression, pitch shifting, transient shaping, ring modulation, phase distortion, and more.

Xfer's freeware VSTs - Exactly what it says on the tin, including the one and only OTT compressor.

Illformed - The good ol' dblue Glitch 1.3, Crusher, Stretch, and TapeStop.

Hysteresis and Fracture - Two interesting glitch effects, one being a delay and the other being a buffer.

Codec - A cool digital audio degradation effect.

Le Phonk - A slick distortion plug-in.

MAIM - An effect that mimics the sound of MP3 compression.

Soundly Shape it and Place it - One is simply an equalizer VST, the other is an effect that emulates a speaker (ex: a radio) and a space (ex: a cave).

Fresh Air - An effect that adds high end information to your sounds, to provide brightness.

ValhallaSupermassive - A combo reverb and delay plug-in that sounds quite big.

UnplugRed - A collection of various interesting VSTs, most of which have free versions.

Chowdhury DSP - I can't personally speak for all of these but their tape model effect is great for some lo-fi style effects.

TAL-Chorus-LX - A thick sounding chorus, good for "retro" sounds too.

Polyverse Wider - A great effect for widening sounds up, really simple too with only two controls.

Freesound - A good audio file resource, mainly for foley recordings.

Cymbatics Dubstep Starter Pack - A little sample pack with some good drum and synth samples.

fishmonger drum kit - A pack of samples from the album 'fishmonger' by Underscores!

WangleLine's sample packs - Free samples put out by my awesome mutual WangleLine!

aaand I might as well include this set of drums I made a while back :P

As for DAWs, it's been a long while since I've used anything other than FL Studio (not counting Audacity, which I still occasionally use for specific purposes), which, while being the only one I can directly recommend, is paid. However, I've heard good things about Reaper which has a "free trial" that you can technically use forever, akin to WinRAR. Additionally, I've also heard some good things about Waveform Free.

[tinkonka]

updates :]

i am QUALIFIED FOR TREATMENT!!! definitely diagnosed now .. i will be getting tysabri. a shot every month . going to get my first shot in two weeks time ^_^ and then i have to have a Routine MRI + blood test ... which . UAGHAWUHGEUDAHG its fine its fine The 1 hour MRI is like the worst thing in the world ever i wsa going to DIE in there

i went to the cafe near my house on monday this week :) it was nice. Had some food. Going out with friends Tomorrow. Currently on call with my partner (!!!!!!!!!!!) while he sleeps i do not think he has a tumblr so i can say stuff here . If he Does and he's not Telling Me. Im going to Be Mad . (not actually) going out with friends tomorrow.

Um. things are.. looking up !? :) i think. Yes. I want to post on tumblr more. interact. online. Which is really scary but it's becoming a little less scary. i should try get mutuals. agian. How doyou do that i dont really know. thinking emoji. yay

[tinkonka]

Im going to get over my newound fear of talking about myself/feeling things in general by Talking about myself and what life has been life recently. This is my blog and i am Allowed to do this < Affirm. you dont have to read it or anything this is just for me kind of

going to do a challenge where i try really hard not to make things funny and i will just. talk about. life. i guess. Hi guys. Amber tinkonka here. Have had the worst couple of Months since Highschool probably.

like nov 17th i had a pain in my right eye whcih i thought was a hangover. it was Not. the pain stayed and it was persistent everytime i moved my eye. and it was driving me up the walls . pain started leaving and started taking my Vision along with it so in my right eye the colors were decreasing and it was just overall fuzzy. had to go to the doctor twice first time they sent me home like Ur fine thumbsup emoji and the second time they were like Ok go to the hospital Like Today.

and then a BILLION blood tests later, two mris, a lumbar puncture. all comes back pointing to signs of Multiple Sclerosis so that's like a chronic neurological disorder i've had to come to terms with. Sometimes it's gratifying because i feel like i've had a lot of things wrong with me Since Forever but have never gone to the doctor about it because well. i am a middle child and also a girl. And also my parents were insistent the whooole journey that nothing was srsly wrong so its kinda like Lol get fucked

sometimes it is really freaking scary. likkkke really scary. I have to actually put myself first. I have to.. not pushmyself lest i Feel the side effects. This morning i woke up and physically could not move/open my eyes. Everytime its like vaguely Hot im like oh ok it's time to die like the brain fog gets so bad. The mood swings. Have had two psychotic episodes. My hands shake so often now. IT IS SO HARD TO FUCKING WRITE. i have not felt this depressed since high school. it Sucks. I am really scared.

but. I am lucky to have a really good support system tho. i have ffriends that i've known for almost a year now and they're very supportive. i have a best friend who has helped me heal from a lot of different things. im still developing the ocs i posted about like 5 years ago on here. im going to try getting out the house more too. there's a cafe near my house that has really nice food i might walk there sometime. i wanna go to the library and draw. i want to drink a mango smoothie.

but yes that is all um If you read. thank you. I just like. Need to. Get out of my own head and talk to people again because i think im going crazyHAHSHSA

[thecloudservice]

No matter where you go, everyone is always connected.

╰┈➤ ⌞ MULTIPLE SCLEROSIS ⌝ ⓘ A flag intended for people with multiple sclerosis. ⓘ Multiple Sclerosis is a long-lasting (chronic) disease of the central nervous system. It is characterised by the breakdown of the protective covering of the nerves (myelin), caused by the immune system attacking it. This can eventually cause permanent damage to the nerve fibers. The symptoms that MS brings largely depends on the location, the person themselves and how bad the damage is. Please be aware that I do not have MS, and that this information itself may not be entirely accurate. ⓘ Made for @auranecho ✉︎ Tagging @radiomogai

[otiksimr]

People with shit eyesight whenever they're around other people with shit eyesight start passing around their glasses like it's a blunt rotation just to see how blind everyone else is.

[tinkonka]

I forgot this account existed hello everypony. do we still Fuck with amber tinkonka. something Very crazy happened to me in the past few months

[tinkonka]

hello!!! i’m like The tumblr lurker Ever n like… i recently got back into witch’s heart n like u r the ceo of wilsiri may i ask if we can moot?? :3 here’s fine but twitter mayb too cz i’m usually more active there… ( ꩜///꩜;)

this was sent in august 2025 i swear to God i answered this but apparently i Fucking Didnt?? anyways yes! Plesae!! ilove wilsiri!!!

[aaa-batteryy]

most realistic thing about pjsk is that everyone was having an absolutely SHIT time in middle school

[ndnbutch]

negative self talk IS unproductive and painful for you and often those around you. but like every other post that talks about this is like “yeah it makes you an exhausting and burdensome person to be around and if you don’t stop now everyone in your life will abandon you. Also I personally hate you for it”. and it’s like hey hi hello. basically the theme of all my negative self talk is that I’m an exhausting and burdensome person to be around and that everyone in my life will soon abandon and hate me. so like haha what’re we doing here? are you going to provide any actionable advice for how to get out of this habit, or just tell me that I’m Doing Bad And Wrong And Must Suffer For It?

Anyway. If you struggle with negative self-talk I feel for you. It’s hellish, and it’s not something that can just be bludgeoned out of someone by telling them it sucks. We know! I’m not out of the weeds just yet by a long shot, but here’s some of the stuff that’s been helpful for me:

Fake it til it’s real: cliche, I know! but it really has helped for me, even though it makes me suuuuper uncomfortable at times. but literally tell yourself that you’re super charismatic and sexy and everyone loves you. or whatever version of that feels good for how you’d like to be seen. it’s gonna feel silly and untrue for a really long time, but it helps!

Reframe: I struggled to phrase this one, but what I mean basically is like… taking that notion of “hey negative self-talk sucks for the people around you too” and turning it into “wow, it is kind of mean to my friends to just assume they’re lying when they say they love me. I don’t want to be mean to my friends. I’m going to take the risk of trusting them”. Try not to go too far in the direction of “oh god I’m being mean to my friends” and stay on the path of “I want to and CAN do right by them”

Separate from it: I like to kind of act like my negative self talk is something of a different entity from me. Your mileage may vary on this one. I was a really mean really sad teenage girl once, and for me that kind of feels like the place the negative self talk comes from. So instead of being like “I guess I just hate myself and always will”, I can be like “I have this wounded inner child who is lashing out. I’m going to be gentle with her, but I’m also going not going to listen to the things she tells me we are, because she is 16 and hasn’t experienced anything good yet.”

This is far from a comprehensive list but this post is getting long—feel free to add on if you have any tactics that have worked especially well for you!

[tinkonka]

https://archiveofourown.org/works/62074267

i wrote a sickfic. 18k. nenefocus enjoy