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@usteachingms
In-Home Support
As MS develops, individuals may get to a point where they need help that friends and family can’t give. Individuals may decide with friends and family what support is needed for them. For example, they may need a “nurse aide or a housekeeper” (How to Get Help for Multiple Sclerosis, 2021, para. 3).
Individuals with MS should start looking for in-home options when they can’t perform basic tasks of daily living (How to Get Help for Multiple Sclerosis, 2021, para. 3-4).
These include:
Eating and swallowing
Bathing or showering
Dressing or grooming
Walking or sitting
Using the toilet (How to Get Help for Multiple Sclerosis, 2021, para. 4)
Arrangements can be made to have short term or permanent home care. Lists can be found for “private or public providers for nurse aides and social services on the websites of hospitals, nonprofit groups, and government agencies”(How to Get Help for Multiple Sclerosis, 2021, para. 6).
It is important to start thinking about getting in-home support when family and friends become too overwhelmed. This may put strain on the relationship between the individual and their loved ones as well as affect their own health (How to Get Help for Multiple Sclerosis, 2021, para. 5).
Support: Family and Friends
Having family and friends’ support can be a great impact on the daily living of someone with MS. For example, they may be able to assist with “household chores,” such as (How to Get Help for Multiple Sclerosis, 2021, para. 2).
Cleaning
Laundry
Cooking
Grocery shopping and errands
Rearranging furniture, installing grab bars, and making other changes to make your house safer and easier to use
Driving to doctors’ appointments
Reminding you to take your medications
Paying bills (How to Get Help for Multiple Sclerosis, 2021, para. 2)
The MS society of Canada can help find resources and tools for individuals with MS.
(Mayo Clinic, 2021)
Venous Thromboembolism (VTE)
VTE takes place when a “blood clot travels through the bloodstream to a vessel, causing a blockage.”
A study done in 2014 “published by the MS Trust UK” found that individuals who live with MS are at a “2.6 times greater risk for having VTE” than the general populace. This is due to the fact that individuals that live with MS usually have the same risk factors as VTE (Kiefer, 2019, as cited in Multiple Sclerosis Trust 2014, para. 17)
Some of the risk factors include:
disability
spasticity (muscle stiffness)
lack of mobility
steroid use (Kiefer, 2019, para. 17)
To lower the chance of getting VTE, individuals should concentrate on their overall care, for example, working on their mobility very often and eating healthier foods (Kiefer, 2019, para. 18)
Sensory Impairment
Individuals who have MS can have “feelings of numbness or other physical sensations” (Kiefer, 2019, para. 15). One of these sensations is a painful condition called Dysesthesia (Kiefer, 2019, para. 15).
Dysesthesia can cause:
aching
burning
a feeling of tightness (Kiefer, 2019, para. 15).
Cognitive Impairment
“Half of people” who go through day-to-day life with MS develop cognitive problems, such as amnesia and processing information at a slower rate. These problems may also result in diminished “problem-solving, verbal, abstract reasoning, and visual-spatial abilities” (Kiefer, 2019, para. 13).“Brain atrophy or lesions” Attributable to MS is the reason there are cognitive changes (Kiefer, 2019, para. 13).
Changes in cognition do not need to have a huge impact on daily life for people who have MS. Medicines and rehab for cognition can help individuals with MS keep “cognitive function” (Kiefer, 2019, para. 14).
Changes in Vision
Vision issues appear as MS develops. Individuals may either experience a few of these symptoms for a small portion of time,“ or they may become permanent” (Kiefer, 2019, para. 11).
Potential vision complications include:
blurry vision
diplopia (double vision)
nystagmus (uncontrolled eye movements)
vision loss (Kiefer, 2019, para. 11).
Possible treatments may concentrate on helping individuals deal with changes in vision (Kiefer, 2019, para. 12). This could potentially include:
wearing a eye patch if you have diplopia
medicine to control nystagmus (Kiefer, 2019, para. 12)
Multiple sclerosis (MS) is a disease of the central nervous system estimated to affect 2.3 million people worldwide. It is a chronic disease in which the imm...
A video explaining the physiology behind Multiple Sclerosis.
(Healthline, 2021)
Mental Health Complications
Individuals who live with MS suffer from higher levels of depression and bipolar affective disorder. The causes for these elevated levels are complex (Kiefer, 2019, as cited in MS Society of Canada n.d., para. 7).
The changes in the brain tissue due to MS may be attached to depression. Individuals’ “emotional challenges” while going through daily life with MS may play a factor as well. A few people with MS “may feel a sense of isolation, and face career, economic, and social challenges” (Kiefer, 2019, para. 8).
The development of MS and specific medications (for example, corticosteroids) can cause bipolar affective disorder (Kiefer, 2019, para. 9).
https://www.memotext.com/the-adoption-of-digital-mental-health-interventions/
Bladder and Bowel Difficulty
MS causes an interference between signals of the brain, urinary tract, and bowel systems. This means that from time to time, the body “doesn’t receive a message that it is time to release waste.” Muscle functions in the body parts that release waste and nerve damage occasionally affect the signals to the brain as well. (Kiefer, 2019, para. 5).
Bladder and bowel difficulty normally include:
constipation
diarrhea
incontinence (Kiefer, 2019, para. 5).
“The bladder may be overactive or fail to empty completely.” Individuals with bowel and bladder problems take “medications like fiber agents or stool softeners” (para. 6). To regain bowel movement and bladder function, other people may be given nerve stimulation and physiotherapy (Kiefer, 2019, para. 6).
What are the complications of people with Multiple Sclerosis?
Corticosteroids (steroids):
In the past corticosteroids were used as the “first line of defense against MS.” Due to side effects and “the development of more effective MS treatments,” corticosteroids are now only used for flare ups and to make the “attack go away quickly” (Kiefer, 2019, para. 3).
Short-term complications of corticosteroid use include:
high BP
fluid retention
pressure in the eyes
gained weight
mood and memory problems (Kiefer, 2019, para. 3)
Individuals who take corticosteroids long-term are at a greater risk of complications (Kiefer, 2019, para. 4).
Complications of corticosteroids Long-term include:
infections
high BP
thin bones and fractures
cataracts
bruises
reduced adrenal gland function (Kiefer, 2019, para. 4).
(National Multiple Sclerosis Society, 2021)
(Dersarkissian, 2020)
Early Signs of Multiple Sclerosis
In many cases the first flair up of multiple sclerosis is diagnosed as clinically isolated syndrome (CIS) which is a neurological eopisede of smptoms. It happens when your immune system mistakes your immune system to attack the myelin. This causes scars or lesions on the sheath which makes the signals harder to travel. The most common symptoms of CIS are optic symptoms which causes damage in the nerves that connect your eye to yor brain. The other signs that occur as signs are pain, bowel problems, fatigue, depression, and difficulty thinking. (Rush University Medical Center, 2021)
There are two main MS symptoms that tend to appear early on. Optic neuritis and spinal cord inflammation.
Optic Neuritis: Is the inflammation of the optic nerve. The inflammation may cause pain, blurred vision and headaches. When this symptom presents itself it is usually in one eye but can lead to partial or complete vision loss.
Spinal cord inflammation: Spinal cord inflammation is also known as partial transverse myelitis. This causes numbness, tingling, weakness in the extremities, bladder problems, and walking difficulties.
(Rush University Medical Center, 2021)
(Osmond, 2019)
Myelin Sheath
In this image it is a visual representation of the damage that is done to the myelin sheath when someone has multiple sclerosis. You can clearly see the damage that occurs to the sheath which exposes the fiber. (Mayo Clinic, 2021)
Myelin Sheath: The myelin sheath is the insulating layer found surrounding the nerve. Myelin covers the nerves in the brain and spinal cord. This layer is made of protein and fatty substances and its main function is to allow electrical impulses to happen along the nerve cell. (Adam, 2021)
(Mayo Clinic, 2021)