Bananafishing @waterfallsofwords-blog - Tumblr Blog

OMG @antimony is coming to my school next year! Sooooo excited dudes

#brandeis #go peri

I'm embarrassed to run in front of people because I usually wipe out and also I limp strangely.

#disability #cerebral palsy

Journal entries

#journal #relationship #poetry #moody teen angst #except I'm not a teen

Me flirting

#immy in boyland

beardedchrisevans

Marvel Stars Unite in Philadelphia!

Evans, Hemsworth, Hiddleston Among Wizard World Guests, June 4-5

Only 2016 Appearance for Hiddleston As Marvel Universe Standouts Anthony Mackie, Hayley Atwell, Dominic Cooper, Stanley Tucci, Sebastian Stan, Frank Grillo Also To Appear At Pennsylvania Convention Center!

See here for all info and admission: http://wizd.me/wwmvlphilly

waterfallsofwords-blog

This is the best news I've heard all week

thelatestkate

My dad shows me love by buying me books he thinks I would like and it's honestly the light of my life.

thesourpuss

#abusing your power there xavier

cynical-blogger

Gary appreciation post

ncc-1337-deactivated20170924

Can Gary be in the next star wars movie pls

drovie

Just a reminder that Gary is a service dog. Gary is Carrie Fisher’s service dog. Gary’s the reason why we got to have Carrie Fisher back in the movie. Gary deserves all the treats. All of them.

waterfallsofwords-blog

Thank u Gary

painandcats

Someone please explain to me how one can “sound” able bodied cuz apparently I do lmfao

cryptidinpjs

The judge during my disability hearing told me I was “too well spoken” to be disabled.

totallythoughtfulbird-blog

I was told I was too smart to be depressed, and too young for anxiety.

painandcats

good thing health issues ask for ID

kissman91

I’m too young for chronic pain and far too pretty. I guess my nervous system missed the memo.

painandcats

I love the “too pretty” thing…people want to believe SO MUCH that this is a compliment. It’s a backhanded insult twice.

Also, just in case anyone’s eye-rollin’ over the various stories these great people are adding onto this, consider that these awful and often condescending comments and the attitudes behind them contribute to us not receiving adequate care.

cripplepink

people would rather believe that disabled ppl who aren’t what they expect are all liars than adjust their image of what disabled ppl look like- they trust that myth over our lived experiences.

and sometimes that comes out as “you’re too young/pretty/well spoken/etc. to be disabled,” and sometimes it’s “i don’t believe you are ill or in pain so i will not treat you.”

painandcats

Or “you’re too put-together to really be in this much pain” which can then turn into “I’m not gonna prescribe medications that are strong enough to help you,” or “you’re strong– you can handle it.”

spooniefemme

Just because we can handle it doesn’t mean that we should have to. I can do plenty at an 8 on the pain scale. That doesn’t change the fact that I am at an 8 on the bloody pain scale and no one should have to live like that.

painandcats

Sometimes I’m like…do you guys WANT me to function and do all this shit at an 8? Do you WANT me to be an unpleasant asshole the whole time?

lol

tiredragedemon

How about I just stop trying? Maybe then I’ll look like someone who you’ll take seriously. *sigh*

painandcats

It’s pretty bad when sometimes I consider looking extra disheveled for doctor’s appointments so they don’t assume I’m perfectly fine just because I look, y’know, FIIIIIIIIINE. ;) (haha jk but seriously)

chronicillnessbyash

People stopped telling me I don’t sound disabled, when my fiance had to finish my thoughts because I couldn’t remember a word or two or a whole concept related to what I was trying to say…. but i still get the “you look too young to be in a wheelchair” bit.. or the whispers where words like “overweight” and “lazy” can be heard…. And also, when it’s obvious I am overweight (i take my jacket off and you can see my belly under my shirt because it’s a little tighter) I get dirty looks and a lot of teeth sucking… until I ask him to push me because my arms hurt or when I cry out in pain because of a muscle spasm… those are involuntary cries, by the way. They just escape, and his automatic question of “muscle spasm?” And my response of “yeah in my [insert location here: back, side, stomach, chest, etc… its usually my back or rib cage tho]. He comforts me and the people around me move about their business like they are ashamed of their own thoughts.

I’ve learned to not let a lot of this bother me. But I always notice it. People think they are being subtle by side eying me. Or think they look normal by the way they side step out of my way… but i notice how some people grab their kids and pull them away and try and make it look like they are interested in something else… their micro expressions give them away, big time…

People are not smart when it comes to hiding their ableism and its starting to become amusing how bad it is sometimes.

One lady asked me about shoes once, when I was trying on a pair. Like a test. I told her that I can still feel my feet and would like them to fit. And that the nerve damage is in my hip and the bone damage in my vertebrae in my lower back doesn’t prevent this. And that I use a cane to walk short distances. She looked utterly embarrassed. Like. Apparently it shouldn’t matter if a paralyzed person’s shoes fit. What’s the point right? It’s not like they can feel it… i also told her I’d like to not have permanent damage in my feet from ill fitting shoes. I’d like to not have to have them amputated because circulation was cut off…. she walked off in a huff… i laughed as she left and she looked back and glared and i waved at her.

People just don’t think and its really insulting. I’m 30 years old and have had almost 10 years of dealing with this bullshit. I am not beyond embarrassing them, for trying to make me feel like shit for existing…. Im tired of the alternative of watching them walk away all smug like they caught the faker.

waterfallsofwords-blog

My IEP was almost revoked because I was getting straight As.

I met a guy and we got ice cream in the snow and talked for three hours about the school to prison pipeline and dogs and we snuggled in my bed while watching the nightosphere episode of Adventure Time and he texted me videos of sloths and lectures on unconventional teaching methodology and he's going to take me to see Deadpool on Friday and make me tea and he thinks I'm beautiful and and and

#immy in boyland