Thirteen years ago (I was 13yo at the time, actually) I started getting agonizing pelvic pain during and around the time of my period.
Let me be clear: AGONIZING. PAIN. I would lay in my bed and cry. If I was in school I’d sit at my desk with my head down and cry. I was in so much pain and no one would help me because of my gender wand where the pain was coming from.
My mom and the school nurse blamed menstrual and premenstrual cramps. I was literally told “Every woman since Eve has had these. You’ll be fine.”
At 18 I started going to the ER. It was all I could do because I had no insurance. They’d give me morphine and send my ass home. ER’s don’t do diagnostics unless it’s an “emergency” and it’s not an emergency unless they think you’re dying. They tell you to see a PCP.
This went on for months as the pain got progressively worse and more frequent. To the point I was going to the ER once or twice a week.
Eventually, the ER doc accused me of being a drug addict and said “The next time you come in here you’re not getting morphine. I’m cutting you off.” And he hands me a brochure for FUCKING REHAB.
Shortly after that I started working and got insurance so I started seeing a PCP and OBGYN.
I’d tell them about my pain and they’d give me birth control and say “This is part of being a woman.” That was it. No sonograms or TVU’s. Birth control.
I don’t know how many OBGYN’s I’ve seen over the years trying to find someone to listen to me. Between them, PCP’s, and ER’s Doctors, and Clinic doctors, upwards of 15 I’d guess. Some who saw me as a patient for 5 years or more.
In 2015 the pain skyrocketed. I couldn’t run, couch, sneeze, etc. without being in extreme pain. I had an extremely physically demanding job that required me to have to restrain violent people sometimes and I reached the point where I couldn’t do my job. I passed out from the pain at my job twice. I could barely stand on any given day. I couldn’t sleep for the pain. If my bladder was full, it hurt. Taking a shit left me crying. I couldn’t have sex with my partner. I was borderline suicidal.
And I’d been doing everything right. Everything they said. I took my birth control, changed my diet, had lost 80lbs or so, and STILL I was in pain.
A wonderful OBGYN who actually listened to what I was telling her. She did blood draws and sonograms and actually took the time to give me a physical exam and palpate my pelvis.
She said, “You know, I cant confirm 100% without actually looking inside you, but I’m 95% sure you have endometriosis.”
She sat me down and explained what it was ( a doctor explaining things HOLY SHIT!) and why it happened and we talked about my treatment options.
I’ve toughed it out almost a year but I’m finally scheduled for surgery. I get my hysterectomy (which I opted for after considering a number of factors) in April and I’m so excited but here’s my question:
Why did it take 13 years?