I'd rather bend than break

A 15 year survivor of stage 4 metastatic papillary thyroid cancer. I have multiple chronic illnesses as well.

[dankmemesreasonforliving]

[spoonie-living]

[Image: A tweet by @rebelwheelsnyc​ (AKA Michele In NYC (Another World IS Possible!). It reads, “Calling all lovely all / mostly / sometimes bed bound & home bound peoples. Craving social connection/community? Let’s chat via community created #TheHomeBodiesCollective <3“ and includes related hashtags.]

If you’re stuck at home or in bed and need a little community, this world wide web is a great place to start—and this hashtag is making it even easier for you to connect with folks who get you!

Let’s try and get it started here on Tumblr, too, with #The Home Bodies Collective.

[whatshouldwecallthyca]

Hi i’ll be auditioning for the role of general practitioner and i’ll be singing The Pirates Who Don’t Do Anything by Relient K 

[emanuelee]

I’m very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very very tired.

[thebibliosphere]

The new chiro gave me a “general health assessment” test to fill out (it’s fucking more thorough than my last physical with my md, it’s like 12 pages) and it’s taking every ounce of self control not to just circle the whole body in red pen and just write “pain”.

[somethingwittythiswaycomes]

So like this?

[thebibliosphere]

Me but with pain.

[chronicillnessmemes]

lu-cia-lu-nacy replied to your post “spinningabout replied to your post “My sister-in-law’s midwife got…”

Omg you are overreacting. I haven’t even been on your blog for 10 mins and I already despise it. Goodness, get a life.

You’re fucking adorable.  It’s cute how you think I should tailor my blog just for you!

Just a reminder for everyone that we have 3 tags for you to blacklist if you don’t like us, but still want to see our content!  Because we still care about you, even if you don’t like us or our opinions.  And we want you to be safe, regardless of how you feel about us.

Admin J - personal commentary

Admin E - personal commentary

currentlyoncim - arguments, conflicts, disagreements

And if you think that on top of that I should be required to censor myself in public because you can’t take personal responsibility for your Tumblr experience, well yeah, you’re definitely not going to want to be here.

All my love (whether you want it or not)

Admin J

[whatshouldwecallthyca]

[whatsuprubberduck]

Virus invades my body: mwahahaha yes look at all this glorious young tissue to invade and misery to insue. Wait what? Me: hello sickness, ive been expecting you. Virus:……wait. Wheres all the healthy- Me: oh yes. That. Ive not been ‘healthy’ for years thanks to chronic illness. Also me: wanna sit and watch Harry Potter?

[studymedblr]

“These are the pills for my heebee jeebee’s”

— An adorable 90 year old woman describing her anxiety medication

[drpathetique]

*accurately describing

[bubonickitten]

one of the most frustrating moods is Desperate Need to Create Something, Anything + persistent lack of motivation/attention/ability/time/inspiration/energy to do so 

[kintsukuroi-heart]

OH MY GOD, SOMEONE PUT IT INTO WORDS

[bubbles]

me: why do i mysteriously feel like crap and keep wasting time doing nothing?

brain: you have depression

me: no that cant be it, it has to be something i did

[adhighdefinition]

you know you’re fucked when watching countless tv shows no longer manages to mask the massive void inside of you

[hunterinabrowncoat]

You know what? Telling disabled/chronically ill people things like “there’s still hope” or “never say never” is actually really unhelpful.

As a chronically ill person, I have to come to terms with the fact I will never be able to do xyz. And I’m going to live with abc my whole life. It sucks. And I’m upset about it. I’m angry. I’m devastated. I’m grieving.

But I need to process that information. Coming to terms with the permanence of our issues, and facing a life that looks very different to the one we planned is vital to our mental health.

And it’s not pretty. It’s difficult to hear. I get that you want to say something comforting. But sometimes all you can say is “that really sucks I’m sorry”. Sometimes there is no fix. Sometimes there is no hope for recovery or for things to get better or change. Sometimes it just sucks. And we should be abel to talk about how much it sucks, without people trying to offer platitudes.

[wizened-beanie-baby-moved]

I don’t have a train of thought I have seven trains on 4 tracks that narrowly avoid each other when the paths cross and all the conductors are screaming

[cactus-spirit-deactivated202211]

It’s pretty fucked up how it’s up to abled people to decide how sick we are and how much help we deserve, despite never having the experience of living with a disability.

[helpmequitmydayjob]

Exactly this

[bisexualgambit]

Too depressed to be awake? Not depressed enough for a Depression Nap™? Welcome to Existential Crisis Wrapped in Blanket!

[scientia-rex]

Raise your hand if you have ever felt personally victimized by this post

[nerdygirlnoodles]

This is just my constant state of being

[chronicillnessmemes]

Me: It's time to play everyone's favorite game: FLU OR FLARE!!!

Admin E: I HATE THAT GAME! NOBODY WINS AND THE PRIZES ARE AWFUL!

whatshouldwecallthyca: I'm playing that game CURRENTLY MY PRIZE IS BRONCHITIS! and a sinus infection. FUCK THAT GAME!

[strangerdarkerbetter]

Shoutout to the spoonies who are struggling to make ends meet.

To the disabled people who have to choose which medical treatments to pursue based on cost.

To the spoonies who are choosing between food and necessary medical care.

To the disabled people who have can’t get necessary medical treatment because of cost.

To the disabled who are constantly worried about how they are going to make things work.

To the spoonies who go to work every day because they must in order to support themselves but can barely function by the time the workday is over.

It’s messed up that we live in a country where medical treatment is so expensive. It’s terrible that you must make the choices you do. 

I see your strength and your bravery. I see how hard you are trying. 

It is my hope that one day soon it will all get easier for you. I hope that you find a way to afford what you need. 

[spooniestrong]

*love & spoons* 💙

[chronicallyliv]

Totally needed this reaffirmation today.