World Sickle Cell Warriors' Organization

The truth is, I don't have an organization at this time. I've come here looking to find other Warriors, caretakers, and allies with which to build one. The organization I hope to build would differ from others in that it would 1) stress the primacy of Warriors in decisions about our lives, research into our lives, and in designs of services for us and 2) embrace integrative and holistic treatments that are proven effective where others are beholden to their strategic partnerships with multinational pharmaceutical corporations.

[neptunerings]

It looks like every fucking day we are seeing more and more people accusing Palestinian fundraisers as bots and/or scams. Holy fuck. How cruel and heartless can you be? It has been nearly 2 years into the accelerated genocide. You know should know at this point that many fundraisers are vetted through credible and reputable sources. It is a lifeline for families who are surviving bombardments, famine, and are constantly targeted when they are seeking extremely limited aid! As Al-Jazeera reports: "At least 105 Palestinians, including seven aid seekers, have been [martyred] and 530 injured in ['Israeli'] attacks across Gaza in the past 24-hour reporting period, according to the territory’s Health Ministry."

We have the power to help. Please consider donating and/or sharing my friend's, Suad, fundraiser! I have been speaking to her for almost a year now. She is the most kindest, patient, and resilient person, and I am honoured to know her as my friend. She is a computer engineer who has given birth to a baby boy named Khaled last year. He is one year old now, learning how to walk and talk, but he is suffering from intestinal and respiratory infections! She is also caring for her in-laws. Her mother-in-law needs knee replacement surgeries!

GFM has also terminated her fundraiser! If you have donated to her before, kindly request a refund and redirect to the one below! Chuffed is Pro Palestinian, and you can give as little as a dollar!

(Verified: #279) (Donation Match)

Help Suad Purchase Basic Essentials in Gaza

My name is Farzana and I, along with my cousin Preya, are helping Suad collect donations so she can purchase essentials in Gaza. Aid has bee

[neptunerings]

Currently at $3,084 USD! The last donation was made 7 hours ago! Please donate and share. Suad needs to purchase food and other essentials since aid is limited and costs exorbitantly! You can give as little as $1 since Chuffed accepts such amount as well as in your own currency, such as AUD, CAD, EUR, GBP, and USD!

Tagging for reach. Please leave a reply if you wish to be removed. Thank you.

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[antianakin]

MY STANCES ON CONTROVERSIAL CHARACTERS ARE AS FOLLOWS

Anakin Skywalker: I feel like this one's obvious.

Padme Amidala: Deserved better from the Prequels, has such potential and promise and I want so dearly to save her from her toxic ass marriage to a fascist MAGA manchild, but damn am I glad Luke and Leia didn't have to grow up with her as a mother some days.

Bo-Katan Kryze: I wish I could like her, but the writers are making it SO HARD. They don't seem to ever remember that she gleefully set an entire village on fire because they dared ask for their enslaved people back and to not be occupied anymore, but I do.

Satine Kryze: I wish I could like her, but I don't have enough nostalgia for her to overlook how bad the writing is for her. She treats Obi-Wan like garbage, brings out the worst in him, acts very arrogantly about just about everything and never has to take responsibility for her own mistakes so she gets to die a martyr.

Aleksander Kallus: Literally has to have his ENTIRE BACKSTORY retconned so he can be "redeemed" within the span of one episode. Also manages to "All Lives Matter" Zeb into thinking that judging Imperials for their fascist choices is the same as judging an ENTIRE SPECIES on the actions of one individual who was acting in self-defense anyway. Stop saying he's got the best redemption arc in Star Wars, it sucks fucking ass and he's not a fucking Fulcrum, he just stole the title from Ahsoka and didn't earn it and he was a shit spy anyway.

Crosshair: Bigoted dickhead who treats everyone like complete crap and then goes full fascist as a punishment for the world when no one wants to risk their lives to save him. Let him die already, he's not worth saving.

The Jedi As A Whole: Wonderful people with a beautiful culture that never did a single thing to deserve what was done to them. They were not corrupt, they didn't need to reform their culture in a single way. There was nothing more they could've done for Anakin or the Republic that would've stopped what happened. They don't steal children, they adopt them from parents who choose to let their children lead a better life, and become part of the large extended Jedi family. They are intergalactic therapists whose literal way of life IS therapy for those who choose to follow it. They were outplayed, but they did everything they could've possibly done. Sometimes, it is possible to commit no mistakes, and still lose. That is not a weakness. That is life.

[thebananashapedbloodcell]

Down with Capitalism! How to take Better Care of Yourself while living with Sickle Cell Disease | The Red Blood Cell Disorders Hub

From the time we are born, we are asked as children, ‘what do you want to be when you grow up?’ Then, from childhood to adulthood, you chang

Something I’ve been working on for the past few months has finally come to life!

Click on this link to read my personal article on living with Sickle cell, how it relates to capitalism and how to better take care of yourself.

I’m so proud of my work and couldn’t wait to share it with all of y’all!

Thank you in advance for taking the time to read this 💕🙏🏾 & also check out the whole website www.rbcd.ca to find out more information on SC and articles like mine!

[worldwarriorsorganization]

"Sickle Cell Natural Healing Daily Regimen" – CiCi Moya

This video by YouTuber CiCi Moya is a compilation of research studies and alternatives to current medical treatment protocols that have worked for her young daughter with sickle cell anemia.

[worldwarriorsorganization]

Sickle Cell and the Prison Industrial Complex

(PDF) Sickle Cell Anaemia and Deaths in Custody in the UK and the USA

PDF | An unexplained death in custody represents an important focal point for public scrutiny of the criminal justice system, especially whe

This article was authored by Professor Simon Dyson (Sickle Cell and the Social Sciences) and Professor Gwyneth Boswell of the University of East Anglia in Norwich, England. It was published in The Howard Journal of Crime and Justice in 2006. Together, Dyson and Boswell highlight seventeen cases between US and UK prisons. Seven of these cases demonstrate that the care of incarcerated people with sickle cell anemia "falls well short of the minimum standards that might reasonably be required." Ten of them involved forced restraints of Warriors resulting in their deaths. To add insult to injury, the people who the criminal injustice system enlists to speak on its behalf oftentimes conflate sickle cell anemia with sickle cell trait, which is the genetic carrier state in which the person who has it is usually healthy. But, as you will read in the article, trait has been weaponized by the carceral state to reinforce preexisting racial discrimination in employment, insurance, and other spheres. And as was written in The New York Times last year, American police when they can will use trait as an alibi for why a Black person happened to die in their custody.

Attached below is a table listing the seventeen cases I mentioned above. Below that is The New York Times article.

How a Genetic Trait in Black People Can Give the Police Cover (Published 2021)

Sickle cell trait has been cited in dozens of police custody deaths ruled accidental or natural, even though the condition is benign on its

[worldwarriorsorganization]

Must-Read #1: "Sickle Cell and the Social Sciences" (2019)

Sickle Cell and the Social Sciences: Health, Racism and Disablement was written by Professor Simon Dyson, Director of the Unit of the Social Study of Thalassaemia and Sickle Cell at De Montfort University in Leicester, England. Dyson has written a number of excellent publications on the social and political elements of sickle cell but maybe none more important than this. It imagines sickle cell from the framework of disability rather than disease and introduces what's called the social model of disability.

Traditional view of disability:

The "problem" is located within the person concerned; the person is reduced to their condition, which is thought to define them entirely.

The disabled person is viewed as tragic and someone needing to be pitied for their situation.

Disabled people are often excluded from public institutions and in extremis (at the point of death) excluded from society itself.

Professionals who work with disabled peoples may be regarded as beyond criticism or even as having saint-like qualities by virtue of working with marginalized peoples.

Takes for granted what is normative in any given society: who is allowed to do what; what people should look like, or how people should behave (Dyson 165-166).

vs.

Social model of disability:

The problem is not inside the person but in the physical and collective environment; ex) The problem is not that a wheelchair user can't climb stairs but that adaptations have not been provided or that laws have not been passed to ensure accessible buildings.

The agency of the disabled person is emphasized; what they have achieved, what they can do and what they could potentially do were environments altered to be enabling rather than disabling.

Disabled people should be included in decisions about their lives, in designs of services for them, and in research into their lives.

The very services and professionals, ostensibly developed for disabled peoples, may in fact be contributing to their oppression, and one way of avoiding such oppression is for disabled peoples to themselves take the lead in defining their own challenges and designing the appropriate responses to those challenges.

What is normative in any given society may need to be challenged.

Basically, the social model of disability inverts the principles from the traditional view with the goal of improving the quality of life of disabled people and instilling in them self-pride, self-respect, and dignity.

Concerning sickle cell; Dyson gives his perspective on how and where the social model can be applied in Warriors' social and political organizing efforts, be they in schools, prisons, athletics, challenging stigma, or something else altogether. Aside from introducing me to the social model, I appreciate this book for a couple of other reasons. Number one, it distinguishes between the experience of Warriors in the West and Warriors in sub-Saharan Africa. The conditions under which Warriors in the West live are very different from those of our African kin and as a result, their application of the social model would look different from ours in some aspects. Number two, Dyson explains that there are some very important limitations with the social model as it pertains to sickle cell. We as Warriors must understand what these limitations are and how they would affect us compared to someone who doesn't have sickle cell. That being said, my own reading of the book leads me in favor of using the social model of disability in sickle cell organizing. This is a must-read if you are in the sickle cell community or the disability or vulnerable rights communities, you will not regret it!

[worldwarriorsorganization]

"Sickle Cell Anemia: An Optimistic View" (1993)

The first article I've embedded in this blog comes from The Felix Letter, a publication from which I will be deriving many more pieces. It delves into the protection that cyanogens, also known as nitrilosides, provide against red blood cell sickling and malaria.

(Screenshot below)