My Heads Falling off

Surgical intervention needed

[zmariaelliott]

Link in bio #charitablegiving #cranialcervicalsyndrome #painintheneck #charitysector #charityfundraising #charitypot #elhersdanlosawareness #elhersdanlossyndrome #elhersdanlossyndrome (at Salisbury Plain) https://www.instagram.com/p/CA1EoNejd-f/?igshid=13im0ihejzbq2

[zmariaelliott]

Oh no. My head is falling off.

Oh no. My head is falling off., Salisbury, Wiltshire. 2,101 likes · 54 talking about this. Diagnosed with CCI and AAI. Now I need a metal he

[zmariaelliott]

#ehlersdanlos #epilepsy #elhersdanlossyndrome #epilepsyfighter #ehlersdanlossyndromeawareness #seizures #seizuressuck #cci #CCI #cranialcervicalinstability #painwarrior #pain #chronicillness #chronicillnesswarrior #disabledandcute #disabledandproud #dislocation #dislocationssuck #disautonomia #funding #fundraising #gofundmedonationsaccepted #gofundmeplease #fundraising #helpme #helpinghands (at Shrewton, Wiltshire, United Kingdom) https://www.instagram.com/p/B_0ntJ5jxgC/?igshid=r2c89u93nj6o

[zmariaelliott]

#cranialcervicalinstability #CCI #elhersdanlos #elhersdanlossyndrome #chronicillness #chronicpain #chronicillnesswarrior #chronicfatigue #thefibrochronicles #fibromyalgia #zebra #gofundmeplease #gofundmedonationsaccepted #fundraising #surgeryhelp #neckfusion #painwarrior (at Shrewton, Wiltshire, United Kingdom) https://www.instagram.com/p/B_xqos-DCut/?igshid=7tvc1rxn3mfb

[zmariaelliott]

#beforeandafter #beautiful #beforethestorm #ehlersdanlos #EDS #cci #CCI #cranialcervicalinstability #tookmylife #pain #painwarrior #painmanagement #seizuressuck #seizures #seizuredisorder #vertibrae #neckfusion #neckbrace #neckbracelife #disabled #disabledandcute #disabledandproud #numbness #numbnessandtingling #gofundmedonationsaccepted #gofundmeplease #gofundmedonation #gofundmehelp #charity #gofundmeinbio https://www.instagram.com/p/B_sKyqij-t3/?igshid=10d1gekf4mv2y

[zmariaelliott]

Oh No! My Head Is Falling Off organized by Zoe Maria Elliott

Hello, my name is Zoe Elliott and my paypal is - https://www.paypal.me/ZoeMariaElliott… Zoe Maria Elliott needs your support for Oh No! My H

[zmariaelliott]

Please give me a hand https://www.instagram.com/p/B_lA0WzHWUv/?igshid=iogliyqnmf0a

[zmariaelliott]

I would love it if you would read my CCI article to share.

You can find the GoFundMe the Facebook page and any other important links in the article.

Anyone can also follow my journey on my page bobbleheadgirl facebook

https://www.leeds-live.co.uk/news/leeds-news/woman-fear-head-detach-body-18087487?utm_source=facebook.com&utm_medium=social&utm_campaign=sharebar

[zmariaelliott]

I would love it if you would read my CCI article to share.

You can find the GoFundMe the Facebook page and any other important links in the article.

Anyone can also follow my journey on my page bobbleheadgirl facebook

https://www.leeds-live.co.uk/news/leeds-news/woman-fear-head-detach-body-18087487?utm_source=facebook.com&utm_medium=social&utm_campaign=sharebar

[zmariaelliott]

I haven't raised too much. But have had a lot of donations and support from strangers. If you want to chat find my facebook and chat.

I am dreading going to bed because its always worst during the night and in the morning. I feel like I am going to die.

A donation would mean everything to me. Even if it was just £1 a late night message to chat would be great too.

https://www.gofundme.com/f/Bobblehead?sharetype=teams&member=3821974&utm_medium=copy_link&utm_source=customer&utm_campaign=p_na+share-sheet&pc_code=ot_co_dashboard_a&rcid=c8187c10d94f45c1b6adb95420aba8ec

Zoe x

[zmariaelliott]

https://www.salisburyjournal.co.uk/news/18336058.go-fund-campaign-launched-shrewton-woman-raise-money-surgery/

[zmariaelliott]

So I grew up with EDS, I always thought it was normal but it because obvious as I got older it wasn't. Stuff happened, I got seizures, lots of them, sometimes once a week every week, sometimes several a day.

My mum got ill, they cannot make her better, none of my pills were working and the pain I was in got worse.

My joints were dislocating all the time, i never really thought of what my neck was like or if that was why my head hurt. Then I started to lose strength in arms and legs, sometimes I use a stick or a wheelchair.

Eventually I god some upright scans of my neck, I found out what is wrong. I really need help to spread this.

I have CCI AAI and EDS, my ligaments are so slack that there is no point in them being there, this has made my Cervical vertebrae just go slack really, I am not sure how to explain the feeling of being able to see your C1 bouncing up and down like it were on a string and your C4 and C5 degrading. Everytime it "bounces" it hits my brainstem, which causes weakening, pain, pins and needles, sickness, so many more problems, beside possibly causing my seizures.

Theres more info here, and please watch the videos if you can

https://www.gofundme.com/f/Bobblehead?sharetype=teams&member=3821974&utm_medium=copy_link&utm_source=customer&utm_campaign=p_na+share-sheet&pc_code=ot_co_dashboard_a&rcid=27f6090ec3714aecac86b365e1159c8b

https://zoemariaelliott.wixsite.com/losingmyhead

[zmariaelliott]

So I grew up with EDS, I always thought it was normal but it because obvious as I got older it wasn't. Stuff happened, I got seizures, lots of them, sometimes once a week every week, sometimes several a day.

My mum got ill, they cannot make her better, none of my pills were working and the pain I was in got worse.

My joints were dislocating all the time, i never really thought of what my neck was like or if that was why my head hurt. Then I started to lose strength in arms and legs, sometimes I use a stick or a wheelchair.

Eventually I god some upright scans of my neck, I found out what is wrong. I really need help to spread this.

I have CCI AAI and EDS, my ligaments are so slack that there is no point in them being there, this has made my Cervical vertebrae just go slack really, I am not sure how to explain the feeling of being able to see your C1 bouncing up and down like it were on a string and your C4 and C5 degrading. Everytime it "bounces" it hits my brainstem, which causes weakening, pain, pins and needles, sickness, so many more problems, beside possibly causing my seizures.

Theres more info here, and please watch the videos if you can

https://www.gofundme.com/f/Bobblehead?sharetype=teams&member=3821974&utm_medium=copy_link&utm_source=customer&utm_campaign=p_na+share-sheet&pc_code=ot_co_dashboard_a&rcid=27f6090ec3714aecac86b365e1159c8b

https://zoemariaelliott.wixsite.com/losingmyhead

[zmariaelliott]

[zmariaelliott]

[zmariaelliott]

https://www.gofundme.com/f/Bobblehead?sharetype=teams&member=3821974&utm_medium=copy_link&utm_source=customer&utm_campaign=p_na+share-sheet&pc_code=ot_co_dashboard_a&rcid=27f6090ec3714aecac86b365e1159c8b

[zmariaelliott]

So I grew up with EDS, I always thought it was normal but it because obvious as I got older it wasn't. Stuff happened, I got seizures, lots of them, sometimes once a week every week, sometimes several a day.

My mum got ill, they cannot make her better, none of my pills were working and the pain I was in got worse.

My joints were dislocating all the time, i never really thought of what my neck was like or if that was why my head hurt. Then I started to lose strength in arms and legs, sometimes I use a stick or a wheelchair.

Eventually I god some upright scans of my neck, I found out what is wrong. I really need help to spread this.

I have CCI AAI and EDS, my ligaments are so slack that there is no point in them being there, this has made my Cervical vertebrae just go slack really, I am not sure how to explain the feeling of being able to see your C1 bouncing up and down like it were on a string and your C4 and C5 degrading. Everytime it "bounces" it hits my brainstem, which causes weakening, pain, pins and needles, sickness, so many more problems, beside possibly causing my seizures.

Theres more info here, and please watch the videos if you can

https://www.gofundme.com/f/Bobblehead?sharetype=teams&member=3821974&utm_medium=copy_link&utm_source=customer&utm_campaign=p_na+share-sheet&pc_code=ot_co_dashboard_a&rcid=27f6090ec3714aecac86b365e1159c8b

https://zoemariaelliott.wixsite.com/losingmyhead