Destinys osteogenesis imperfecta page

The name is Destiny Dyer 22 years and living with osteogenesis imperfecta, scoliosis and asthma plus many other things. were all just angels in waiting to return home to the big place in the sky and there i know ill be free of all of the pain, be able to breath free and walk.

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So I haven't posted in here forever but I have been posting lots of new youtube videos! This one is all about the spoon theory and my take on it!

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wishbone day/ my oi journey

so here's a video for wishbone day! I hope you all liked it! If you have an questions about oi or wishbone day please let me know!!! if you can not view this...

please reblog, tweet, facebook share this video or whatever you can this week is osteogenesis imperfecta week where i try and raise awareness for my disease as often as i can!!

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Please go and watch then reblogg this link I'm trying to get this video to 300 views by the first to help spread awareness for brittle bones!

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New YouTube video is up on my channel!! :) it's a life update! http://youtu.be/4cSRI77d-G0

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would you like to take part in a spoonie video project? Details are on my blog. please reblog if you can =)

Reblogged when is the clip due

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Ok so in the past I made collaboration videos on my youtube channel->

https://www.youtube.com/watch?v=lT689rlZ4Uc&list=UUuQPVg9xoc8dTQxTYNPGOWQ

You can see the one I did for Lady Gaga (Im a huge fan of hers haha) but basically what I aim to do in this video is to...

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Sounds cool

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Waiting...

The worst feeling is being so excited for a Drs appointment are the last few hours! It seems like it goes by so slow!

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i have oi, i am not oi!!!!

so with all the drama in the osteogenesis imperfecta community (brittle bones) i decided i needed to get something else off my mind. i hear all the time oh you have brittle bones oh so sad or your so brave yata yata ya, yall know how it goes lol. but i just wanted to take a second to point something out here real quick yes i have brittle bones but thats the key word i HAVE brittle bones but i am NOT brittle bones, what i mean by that is that my bones and illness do not define me i am destiny god has a plan for me! yes my bones break but my spirit and personality never breaks. in the future my bones will break but i will be happy, i will be a wedding planner, a sister, a daughter and a niece these things define me not my bones. did my bones get me to meet some awesome people from it? yes! did my bones and illness make me mature faster and think differently from the world? yes it sure did! would i change how i am? no!! would i take away the pain from myself if i could? yes!! but i dont know one person who would say other wise!! the key thing is that i am no different than anyone else i have one thing about my self that on my weakest days i hate! but on other days its just a part of me but it doesnt define me!

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#fuoi

Okay so if you personally know me then you know i tend to never bite my tongue especially when drug into something i should be in the middle of well this week i have been tested on how to properly handle these situation again. this week a fellow oi parent made a shirt that said #fuoi..... as many of you can probably guess it caused some controversy but me personally i liked the shirt not because i hate who i am or because i truely hate oi, but because i hate the pain and sickness it causes me. i personally got called out because i comment on the picture on instagram saying to the mom that i wanted one and i was told by another person to think before buying the shirt and i have i spent a few days before posting this and my thoughts on my shirt. my question to the lady that is causing this to be a big deal is what do you say to those parents that use the hashtag fucancer?? to not do that because it teaches kids the wrong message? what about the kids that say they hate cancer as their crying in pain or because they lost all there hair?? or the cf people that say they hate cf because they just want to be able to breath without hurting??? everyone has something they hate and wish they could change!! i have came to terms with my oi i say it all the time i wouldnt be who i am without oi but i also have my days where i say fuoi when im in pain or sick. so yes i am proud of oi but i will say fuoi with pride too just as im sure cancer patients will say fucancer with pride because i am human and i have my weak days just as i think everyone is allowed to have!

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lack of friends, due to my health

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juipiter:

So true

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Faith

No matter what you believe in it will help you get through the darkest days.... My faith is one of the few things that has gotten me through the worst physical and emotional breaks. When I break I know to pray even when I'm not broken I still pray it makes me stronger, even when I went through a phase of questioning my beliefs I believed in higher powers so no matter what you believe in keep the faith strong it gives you something to hold on to 😃💜

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Okay guys so I am having a fundraiser for osteogenesis imperfecta all items on our website that say wish on them are going to be sold and then half of each item will go to the osteogenisis imperfecta foundation! Each item is yellow and black in honor of wishbone day which is may 6 so please help me spread awareness and raise money :)

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I just found your blog and I think it's amaizing. But I wish to ask something. I have Type 1 OI and I had an accident a few months back which may have cost me functionality of my arm. I've been a little depressed and thought I'd like to meet other people with brittle bones. But I'm really nervous since everyone there have more severe cases than me and I don't feel welcome. My worrying is propably pointless but I still feel unconfortable.

Oh my I'm so sorry to hear about your arm!! Brittle bones is a silly things sometimes. Please know that there are support groups on the internet on Facebook and there are a lot of welcoming people!! And of course feel free to contact me anytime and check out my youtube channel too :)

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Please help me! Even just a reblog helps!! :)

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Guys this is really important okay even if you just have a few dollars to give or just a reblog, please help her raise money for a wheelchair

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Please help me raise money for a new chair!!! Even if it's just reblogging!!

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If you have oi or chronic pain then you know how true this quote is that someday we won't be in pain even If it's just for the day!!!! :) hold strong spoonies well get through this one day at a time :)

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Ugh

Just one morning it would be nice to wake up and not feel like I'm going to cough up a lung....