Diapers & CRPS & Autism

I DO NOT WANT A MOMMY, A DADDY OR A DOMINATRIX, so don’t ask and don’t follow me! I will block you if you do. I am 50+ I have Autism and suffer from a little known degenerative nerve disease called RSD/CRPS that has recently gone full body. I also have degenerative disc disease. I also suffer from pain-insomnia, anxiety, panic attacks, sensory overload, PTSD, type 2 diabetes and now ARFID as a result of more nerve damage during my tonsillectomy. As a result of some of the meds I was on and the nerve damage from the RSD/CRPS I now have to wear diapers full time. I now enjoy wearing my diapers, this is a nonsexual comfort zone for me. I was never diagnosed as high functioning autistic as a child. I was basically trained to repress my ticks, other traits and forced to be just a gifted kid due to my intelligence level.

[nursenotes]

1. Fist: Make a fist around the epi-pen, don’t place your thumb/fingers over either end

2. Flick the blue cap off

3. Fire. Press down into the outer thigh (the big muscle in there), hold for 10 seconds before removing (the orange cap will cover the needle). Bare skin is best but the epi-pen will go through clothing. Avoid pockets and seams. 

- Ring an ambulance even if everything seems to be fine!

[sassyjavert-deactivated20151015]

Oh my god. So as someone who has to carry an epipen EVERYWHERE I am so happy to see that there’s an info post about them. Like in the extreme case that I can’t inject myself, somebody else would have to do it, but nobody knows how to do it! Thank you, this may just save my life some day.

[dontbeanassharry-deactivated201]

Don’t be wimpy about it, either. I know friends who are like, “but idk if I could stab you with a needle!” Please stab me with the needle, don’t be hesitant about it.

In my case (I can’t speak for all allergies), an epi buys me 20 minutes of breathing to get to the hospital. It is not a magic bullet, it’s a few critical minutes to help get me where I need to go.

[theroguefeminist]

For those who don’t know, people with serious food allergies carry epinephrine which is an adrenaline shot just in case they have anaphylaxis, which is a life threatening allergic attack. This shot is life-saving and must be administered to someone who is having an anaphylactic attack as SOON AS POSSIBLE, because an extra waited minute could mean their life.

It doesn’t hurt much at all to use this needle. The first time I used mine, I didn’t even feel it. But be sure to stab it IN THE OUTER THIGH. Do not stick it anywhere else or you could seriously hurt or kill someone. Just right to the outside of the thigh and then call the ambulance - even if your friend starts doing better, they could have a biphasic reaction, meaning a reaction that comes back (or they may need a second dose, be on the look out). If your friend has an epipen, then they have an epipen trainer that doesn’t have a needle and you can try it out just to be sure you know how to use the real thing if you have to. I’d also advise holding it a few more seconds then 10, maybe go for 14 just to be sure all the medicine is administered and that you didn’t count too fast - that’s what I did.

Here’s a graphic of where to stick it:

[unillustrated-man]

THANK YOU FOR THE GRAPHIC I was about to ask because my mom carries one around and so do some of my friends and I wanted to make sure I would do it right if I ever needed to!

[glutenfreethings]

Learn about this or get a refresher, if you’re not already familiar.

[ruby-white-rabbit]

“I don’t want to stab you” they’d be dead otherwise. Stab em.

[morbid-mordecai]

Something to add from someone who used to work in healthcare. You want to stab that fucker in. Don’t be gentle about it because it might not work! Firm pressure.

Also when you’re done you’re supposed to massage the area! It’s an important step that’s typically left out in these things

[anxious-and-in-pain]

[ID 1: a diagram with a photo of a stereotypical epi pen titled “epi-pen education”. It says “blue to the sky, orange to the thigh” as well as “1) Fist. 2) Flick. 3) Fire. Hold for 10 seconds. Ring for an ambulance.” End ID]

[ID 2: photo of a person holding the epipen mid-way up the side of their thigh (orange side against their jeans). End ID]

[auggie1971]

I just wish all the epi pen brands used the same steps, they’re not all the same. The one I have currently, twist off the cap at needle end, remove blue safety and inject.

[this-is-ableism]

The Lynden, Washington School District will not provide IEPs to the teachers. They sit in the counsellor’s file cabinet and no one reads them. They have students with dyslexia that don’t get help with reading! My nephew is a sophomore in high school and only has a reading and writing ability of a third grader because of his dyslexia. The schools basically told his family “Good luck getting help from us”

this is ableism.

[rocedmed]

[rocedmed]

[auggie1971]

It's my 11 year anniversary on Tumblr 🥳

[ultrafacts]

James Chadwick (1891-1974) being the best science and math student in town, he won scholarships to the University of Manchester. He intended to study math, but entered physics line by mistake in 1908. He was too shy to explain that he had made a mistake and stayed where he was. So the career of one of the last century’s most distinguished physicists began by accident. He later met & began working with Ernest Rutherford.

Intrigued by Rutherford’s speculation about a subatomic particle with no charge, Chadwick began a series of experiments to demonstrate its existence. The discovery of the neutron earned him the 1935 Nobel prize in physics. [x]

(Fact Source) Follow Ultrafacts for more facts

[fibro-memes]

[quixoticanarchy]

damn people rly hate type 2 diabetics don't they

[quixoticanarchy]

i (type 1 diabetic) was explaining autoimmune diseases to someone and she was like ohh right so yours is the good kind of diabetes where you didn't do it to yourself. to which i objected that's not how type 2 works either. and she said well that's the fat old people disease. and i was like you can't say that, a) not how it works and b) extremely rude. and her defense was her grandparents have type 2 and "did it to themselves" and since they're fat old people she reserves the right to hate on them. i understand hating shitty grandparents but YOU are the shitty one here to hate on them for their medical conditions and weight rather than literally anything else. hello?!

anyway type 2 diabetics i'm sorry about the world. everyone* be kind to type 2s or else

*note to type 1 diabetics especially we need to be better at solidarity and not cling to being the "good ones" at type 2s' expense. what the fuck is a good kind of diabetes anyway

[quixoticanarchy]

also worth saying diabetes is a complex reaction to a not-yet-fully-understood set of factors and environmental pressures and genetics and it's reductive and fatphobic to say fat=diabetes BUT EVEN SO no matter if someone did incontrovertibly "give themself diabetes" that's not a free pass for dehumanization. shut upppp

[auggie1971]

I’ve been borderline type 2 since I was a teenager. Now I’m in my 50’s and I am now diagnosed as a type 2. A lot of type 2’s are insulin resistant, so our bodies are producing insulin, it just doesn’t use it properly.

[sprinkleofquirk]

“I don’t think people with disabilities should be in [insert occupational field]”

Okay. Have you taken time to consider how many disabled people you have already worked with in that field that you didn’t realize are disabled?

I know able-bodied people like to think that disability is obvious and visible all the time, but it’s not. The fact is, you don’t know what someone else is capable of in their own body, even if you know everything there is to know (not possible) about their disability/s.

I’ve helped with medical emergencies with my own equipment, I’ve had to administer medication or do extra checks at work, I’ve had to explain that I’m not being rude when I’m eating fruit snacks during a meeting, I’m just trying not to die, and every time someone (not everyone, but always someone) finds it incredibly difficult to comprehend that I am disabled.

I’m young. I’m skinny. I’m active. I do a very physically demanding job. They can’t understand how I’m disabled and all of those other things, nor how they didn’t know about it until that moment.

I had this discussion very recently with a coworker at a new job. She said disabled people shouldn’t be in archaeology; it’s too physically demanding and when they inevitably can’t live up to the standards, the people around them have to “pick up their slack”.

I explained my view as above and she said “I’ve been doing this longer than you, I don’t think you understand.” I said “I understand perfectly; you think I can’t or shouldn’t be doing this job.”

She stared at me. Dumbfounded.

People never stop to consider who they are having that conversation with. When able-bodied people think “disability” they think they are the all-knowing authority on who that applies to, but most have a very limited grasp on the sheer coverage of that word.

And even if they understand, they should not be the authority over our lives.

[pettyrevenge-base]

PE teacher kept making fun of me because I was not athletic and I made him vomit from exhaustion in front of the whole class.

This was well over a decade ago but I wanted to share…

I was born with a congenital heart disease and had surgery as a kid. I am completely okay, but sports was obviously not my thing. I was small, skinny and clumsy because I never really could do the typical outdoors stuff like most kids. Got teased and bullied and all that. Typical for a geeky kid who doesn’t excel with a football.

In high school we had a mildly problematic PE teacher, a typical sports dude who would make fun of the slower kids. I still remember how he ordered my overweight friend to do a gymnastics jump from a trampoline over a stool (which he obviously couldn’t do) and he fell so hard he cracked his head.

I found peace with myself long before and mostly didn’t care and just took it. But it was stupid and i hated how he always encouraged the jock culture of making fun of “the nerds.” We would constantly do basketball or soccer/football. Thing about my specific condition is i don’t do explosive and reactive sports at all - so i would have to sit down every few minutes to catch my breath. You would think what’s wrong with that - but i was shamed about being the weakling of the class every week.

I like sports, though. A lot. I was just always told by my parents and doctors to take it easy - and growing up i noticed i had no problem whatsoever with endurance and steady, long distance efforts. As long as i don’t go into red, i could keep it up for quite a while.

So it’s not a surprise i fell in love with road cycling when i first saw the Tour de France on TV. I was super skinny, couldn’t sprint, but i could climb a long mountain any day, pacing myself and blowing nearly anyone off my wheel on endurance. I got myself a road bike and never told anyone at school about my rides.

Here comes the revenge.

We had a class “sports day” and there was a bus arranged to take us to the top of a mountain about an hour away, where we were to go on a hike. Our PE teacher said that if anyone wants, he will cycle up there and we could join him on the climb instead of the hike. I was the only one to volunteer. He was surprised and commented something to the effect of “keeping up” and “not gonna wait for you” but i insisted.

He couldn’t know i was more than capable to climb that mountain because he only saw me struggling with sports with him. He also couldn’t know that was my home hill, literally starting a kilometer from my house. I did that climb 100+ times and knew it blind, knew my pacing and while i was no Tadej Pogacar i knew i could probably drop my PE teacher at will there. For cyclists out there the climb is 12,5km, 6,9% gradient, super regular. For non cyclists: a perfect climb for a lightweight rider with good pacing and stamina.

So the day arrives and i did my warmup, nutrition and everything as if it was a life or death mountaintop time trial and rock up at the school in my full racing kit and my racing bike. I was 17, weighed 55kg and totally prepared. He was a typical middle aged overconfident ex soccer player probably weighing 90kg, on a standard mountain bike. Super perfect situation.

He sets a relatively hard pace on the 10km flat before the climb and i don’t speak or take the front. I take my good time to get back on his wheel after intersections and he probably thinks he will drop me the second we start going uphill.

Then the climb starts and it becomes very apparent to me (but not to him) that he is near his limit but that it’s at least 5km/h slower than what i could do on that mountain.

But i don’t attack him. That would not be satisfying. Instead i start bantering how someone’s getting dropped today and it would be embarrassing if the whole class sees how i beat him. And then i take over the pace and slowly, slowly start turning the screw on him.

I went only a little faster. Then a bit more. I knew after about 3km he was in the red. So i ease off, keeping him just slightly over his limit for the next half an hour. I wanted to make him suffer but without dropping him. I let him recover for a tiny bit if he starts looking too bad, but then i would slowly push the tempo up to make it as painful to him as possible. It was Tour de France level mind games, i don’t think i’ve ever enjoyed myself on my bike more.

We made it near the top together and i let it rip on the last 300m or so and it was that typical humiliation attack every amateur group ride cyclist knows. He dropped like a stone. I got my revenge and was very happy with myself. He said something about his heavy bike and i kept my mouth shut.

But it got better. On the top, he was clearly dead. So much so he had to vomit in the parking lot and even if only a few classmates saw it, everyone knew. He had to sit out the hike after and i just quietly sat there with him (because i didn’t need to do the hike, like he promised) and just looked at him enjoying the sweet revenge.

I didn’t say anything after that, nor did he. He never made any comments to me in PE class again.

Lesson: don’t bully your students - they might surprise you :)

Source: reddit.com/r/pettyrevenge

[auggie1971]

I wish I could have gotten revenge on my PE teachers like this. All my PE teachers treated me like crap because I couldn’t keep up, didn’t have strength, coordination or endurance. None of them ever noticed that I passed out a few times after hard timed runs. When I complained about not being able to breathe I was told I was just out of shape and needed to try harder. Turns out I have asthma.

[daddyblazed]

[ultrafacts]

[jemilysamour]

its crps awareness day! awareness is exactly what this condition needs. crps is a condition where your brain tricks itself into thinking its in extreme pain in the affected area even if its not. its commonly nicknamed the suicide disease because its ranked so high on the mcgill pain index: 46 (7 above amputation of a digit). i was diagnosed in 2022 (though ive had it since 2016) and to even get the treatment i needed (which was just occupational and physical therapy as its not curable) i had to go out of state. no one ever knows what it is and its extremely frustrating getting told its constantly in my head because theres nothing “physically” wrong with me. please please educate yourself on it because its so so important more people know about it so more doctors can treat it. its ruined my life and im in constant pain and all i want is more people to know about it. if anyone has any questions about it im an open book and ill answer anything :D

[auggie1971]

So what was your funniest introduction?

My step child came over to introduce me to his new partner. He had no problem introducing him to his mother but started stumbling for words to introduce me. I just said, “Hi, I’m Jack’s mean, evil and cruel step father, Auggie, nice to meet you”

Everyone busted out laughing

[identitty-dickruption]

somatic symptoms of anxiety are so fucked. what do you mean I got so scared my body decided that it needed to add nausea and headache and dizzy to the situation. how is it helping

[auggie1971]

Our bodies didn’t claim that they were helping, they just weren’t done torturing you yet.

[auggie1971]

[auggie1971]

Thank you for your likes.

You’re welcome