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@autism-thoughts
*swings a pendulum in front of you* oooooh you wanna stop using psycho/psychotic as insults so badly. and psychopath. and sociopath. and antisocial. and homebound. and schizo. and narcissist(ic). and braindead. and mouthbreather. and delusional. and
It bothers me so much that the healthcare system relies so much on the patient's ability to advocate for themselves, organize their history, and be so persistent against every medical “professional” who says there’s nothing wrong/they can do. But so many struggle with fatigue, brain fog, and face such ingrained systemic barriers, that the people who need and deserve help and support can’t access it.
I saw something recently that resonated with me: “Access shouldn't depend on who has the energy to fight for it.” And I’ve never agreed with anything more.
As a disabled person: a society with no modern tech, no modern medicine, no electricity, and no single-use plastics is a world that cannot keep a great many disabled people alive
Disabled people have always been a part of humanity, and we always will be
And if an imagined future doesn't involve keeping us alive, I want no part of it
Actually, as an autistic person, I consider myself to be breaking stereotypes by using the word fuck like a comma,
Also, that was a joke, but this isn't: Let disabled people cuss with AAC devices right the fuck now!
Actually, as an autistic person, I consider myself to be breaking stereotypes by using the word fuck like a comma,
If you work in health care - and especially if you're a nurse, a doctor, or a therapist - you often straight up have the power to ruin a LOT of people's lives, especially disabled people's lives
So you don't get to be bitchy about it when patients need some time before they're willing to trust you
If you work in health care and/or mental health, and you are unwilling to recognize the massive the amount of power you have over your patients, then your patients are right to not trust you, because you have rendered yourself unable to actually protect them
Or you could add yourself to someone's list of major medical traumas and potentially ruin their ability to access adequate treatment for years by putting wildly incorrect diagnoses on their paperwork. You could do that too. You'd be in extremely plentiful company
Stop mistaking autistic people's fear, confusion, and pain for anger
"Reacting to things allistics don't notice" is literally like 5 different autism traits combined or something!!!!!
If an autistic person is yelling, but you can't see any reason why, please consider that that's the entire problem, and stop moving / talking / gesturing to give the person who is probably in huge sensory overwhelm a few actual seconds
Especially if the answer to "why are they reacting like that???" determines whether or not you're angry
i think people really under sell the physical side effects of mental health disorders sometimes. like sure the depression and anxiety may be 'just in your head' but when what's in your head happens to disrupts your sleep schedule and prevent you from going outside regularly and eating consistent meals and exercising and generally taking care of your body. well it sure takes its toll huh.
I feel like not enough people realize that people under enormous strain act really really fucking Weird
There was a parenting-kids-with-trauma book I remember running into around 2010 (I was not and am still not a parent, but I am an older sibling) that had a lovely little slogan I like to quote all the time:
“It’s not about the Cheerios.”
This was in reference to a story about a kid flipping the HELL out into a full-blown panic about running out of their favorite cereal. Not a tantrum, not a whine-fest, but an all-hands-on-deck, code-red, world-is-ending blowup.
The kid had originally come from a very unstable situation and experienced food deprivation. The new adoptive parents were stumped, because look at all the other food! You’re safe! We can get the Cheerios tomorrow!
But it wasn’t really about the Cheerios, it was about that first flicker of unease triggering all the old trauma. From the outside, it looked ridiculous. To the trauma-trained reaction of the kid’s brain, it made perfect sense.
Human brains are weird, and we’re all out here trying to survive. Sometimes our brains do this in socially acceptable, convenient ways. But not often.
(The book was titled “Beyond Logic, Consequences or Control” I think, I’ll look it up and edit this in a bit.)
Empathy is not a requirement for morality or humanity
Claiming otherwise is both extremely untrue and extremely ableist
When you claim otherwise, first of all be aware that you are saying vast swaths of autistic people and other neurodivergent people are incapable of having morals
Secondly, you literally sound like those religious people who can't believe that atheists are capable of having morality* lmao, it's not a good look
*if you haven't been witness to this - lucky, I was gonna link a source as an example but I have not the spoons and have no intention of giving major evangelical (mostly) news outlets any more traffic than they already have
Empathy is not a requirement for morality or humanity
Claiming otherwise is both extremely untrue and extremely ableist
I'm still thinking about the guy who saw me realize my wheelchair wouldn't fit in the elevator because he (also a wheelchair user) was already inside it and immediately quipped, "This elevator ain't accessible enough for the both of us."
before my egg cracked, i had noticed that trans people were often pro-accessibility and up-to-date on the needs of disabled people, but i hadn’t seen any inherent connection between the two (other than the obvious minority-looking-out-for-other-minority thing). but now that i’m trans and medically transitioning, and i have to constantly repeat myself while talking to doctors and nurses, and explain things about my own anatomy to medical staff who should already know this, and having every single problem i might have blamed on my “condition” so nothing i say is taken seriously, all of the sudden i have a little sneak peak into the life of someone who has to deal with this all the time. like shit bro, being disabled probably sucks ass, someone should do something about this
happy disability pride month, we all deserve autonomy and respect and access to medication
I wasn’t going to derail the disability pride month post for people with peanut allergies but in relation to that topic
I have never seen another allergy that has been so viscerally hated and mocked by people working in education like nut allergies. I’ve seen fellow teachers cringe that their classroom was the “nut free” classroom that year. Support staff that are trained and willfully don’t follow cross contamination protocol in the lunchroom because it’s too “tedious” or “time-consuming”. Full preschools + childcare centers that refuse to accommodate nut allergies. Schools where the only free lunch is a PB&J. Before/after school programs and summer programs whose food curriculum has nuts and doesn’t provide an alternative activity.
Allergy discrimination is so so insidious and prevalent. It’s happening behind their back and it is everything from the exposure joke to possibly causing someone to go into anaphylaxis from willful ignorance.
Also other parents in the classroom are guilty too. The “not my child not my problem” brain rot means that those lunchboxes are like bombs for airborne exposure allergies
A 22-year-old woman said Lufthansa staffers were not sympathetic to her condition when she tried to explain her life-threatening peanut alle
I was not downplaying this. The stigma is real, and people are 100% willing to let people with allergies die.
This woman was laughed at for asking for allergy accommodations at multiple points in her trip, and was denied to the point that she was practically told she’d be refused care in the event of anaphylaxis.
I work in healthcare. I cannot get my coworkers to consistently change their gloves after handling a PBJ. They literally do not think of it, and I don’t understand why. I also don’t know how to make it stick in their brains that this is a thing they need to do.
I grew up in the early 2000s with severe allergies to not just peanuts, but ALL nuts as well as beef, pork, shelfish, seeds, kiwi, and some food dyes. The resistance that my family faced from educators in the early 2000s is frankly bananas, not to mention the shit other parents and kids got up to.
When my mom tried to enroll me in preschool, the school principal refused any basic accommodations like asking everyone to wash their hands after lunch before re-entering the classroom, not bringing straight up peanuts to snack time, etc. There was no such thing as a nut free classroom at the time. The principal told my mom and me (I was 4 at the time and definitely in the room when this happened) “if she’s so sick, she belongs in a bubble, not at school.” THE FUCKING PRINCIPAL! My mom had to threaten legal action under the ADA to get them to comply.
Look, I was on a 504 accommodation plan under the ADA for the entirety of my formative education (elementary thru high school). That’s all 12 years!!! And yet I have had teachers hand me items I’m allergic to as a “reward”. I have had other kids intentionally try to send me into anaphylaxis. One girl in 3rd grade asked me why I “wasn’t dead yet” when she had put on a lotion with almonds in it and then held my hand. I’ve had other parents write letters to the school saying what a terrible inconvenience it was to them to not be able to send their kiddo to school with PB&J, demanding I be Removed to a special education only class if my “needs” were such a “burden” to others. During elementary school “parties” held in the classroom on holidays and for student birthdays, I was always sent to sit out in the hallway or go to the library, because even though parents were only supposed to bring safe foods into the room (they had a list of all my allergies) they never once got it right. Administrators fought me tooth and nail for the right to carry my epi pen and other meds on my person at all times. Why they thought I would start dealing benadryl on the playground, I do not know. At lunch, I was always sat at a specific segregated table labeled the “Nut Free Table” alone because who the fuck is going to sit there with the literally segregated outcast? But ONCE notably I was sat on one side of a line of blue masking tape down the table top with the rest of my class on the other. One side was the NUTS side!!! As if allergens would respect that tape barrier. (Spoiler alert: they do NOT!)
Literally from preschool to my senior year of high school, I was “the peanut kid”. Other parents gave my mom books about how to “cure your child’s food allergies from HOME” by micro dosing with things they are allergic to (please never ever ever even attempt anything like a food challenge with a known allergen outside of the care and supervision of a medical professional, holy shit that’s so dangerous). My mom joined the PTA in my last year of high school so that I could maybe participate in all the senior-focused events like pool parties and breakfast at school on the first Friday of the month. The number of times another parent either (a) decided it wasn’t worth it to care or (b) intentionally brought peanut products to an event to spite either me or my mom??? I literally could not count. It happened constantly.
College was better, but I still occasionally had people BALK when I asked them to please not eat a Nature Valley bar with whole nuts in it right the fuck next to me in lecture, thanks. Work parties and catered lunches were always impossible. A few conferences I went to as an undergrad were SUPPOSED to be nut-free, but always fucked up the catering. At one, they set up snack tables by every exit of the conference auditorium so that when people left after the talk, they all congregated around the exits and opened macadamia nut cookies and granola bars. When I had subsequently had a massive allergic reaction and needed help getting home (I’d walked) after taking like 200mg of benadryl, the staff offered me a stack of napkins and a lukewarm apology.
Food allergy is a disability which touches literally every aspect of a person’s life. Everytime I share with someone new about what it was like growing up with my allergies, they have never heard anything like it in their lives. They’re always like “holy shit, seriously??? People did that??? Kids tried to kill you??? Parents wanted you kicked out of the classroom????” Yeah, man. Yeah. My own brother (who doesn’t have any allergies at all) doesn’t understand why I don’t “eat more adventurously” and why I won’t travel internationally. So, saying it REALLY LOUDLY for people in the back:
FOOD ALLERGY IS A DISABILITY FOR WHICH EVERYONE SHOULD BE ABLE TO ACCESS ACCOMMODATIONS AND HAVE THEM TAKEN SERIOUSLY.
your powerchair does not take up too much space!
Powerchairs can easily be snazzy or beautiful or cool colours. People who use powerchairs are not taking up too much space. you don't need to be smaller or tucked out of the way for others' convenience. Powerchairs can do so much that manual chairs can't (even with a power assist) and that's a good thing! So many people are supported by their powerchairs, and the world has been changed many times by someone living their life using a powerchair.
It will never be a bad thing for disabled people to have access to their homes and their communities. Using a powerchair isn't a "lesser option" to a manual chair, it isn't "giving up", and it is never taking up too much space. You're taking up exactly as much space as belongs to you already. It's great to see you around 😊
this blog loves all the mobility equipment disabled people may need, and I think people using group 3/CRT powerchairs don't get enough positivity about their mobility aids.
Not to derail but I haven't seen this version of the disablity pride flag before so I made this for you & your local disability group ♡
Oh wow, that's so pretty, thank you so much! For those who didn't see in the notes, this version of the flag has a purple stripe added to represent neurological disability, which isn't on the original flag, making it more inclusive. Adding a sixth stripe also means they're symmetrical without any stripe centred, which has more of a message of unity.
... it's in the original post because I got the wrong version from my desktop when making the picture. But I'm committing to it now so might as well explain it!
