Fandom And Spoons

Mid 30’s enby queer spoonie. I have many fandoms that I love, so expect to see a bunch of random things including personal rants. LibrarianLucy is my book blog so if you also have one that is where I'm following you from.

[angualupin]

I feel like I need to tell everyone how brilliantly the Globe incorporated a deaf Gildenstern into the 2018 Hamlet and then force all of you to watch it

ok, so Gildenstern is played by a deaf actor, Nadia Nadarajah. he* signs all his lines, and either Rosencratz interprets for him, or the person he’s talking to says something that makes it obvious what he just said, depending. how each character reacts to Gildenstern is completely in-character and often hilarious

Claudius and Gertrude are intensely awkward around Gildenstern. they obviously don’t know BSL so they just gesture emphatically but aimlessly when they talk.

Hamlet, who of course is friends with R&G, *does* know BSL. he starts off by signing fluently whenever he’s talking to them but, as his distrust of them grows, he signs less and less until he’s only signing the equivalent of “fuck off” whenever he talks

Polonius just shouts really loud whenever he tries to talk to Gildenstern

it’s all brilliant and adds another layer of humor and pathos and you should all watch it

*casting at the Globe right now is gender neutral so I’m just going to use the character’s pronouns

[angualupin]

guys I know I’m wittering on about this but the thing I want to emphasize is that there is no tokenism here. they didn’t just shove a deaf actor into a speaking role so they could pat themselves on the back about how progressive they are. they went to the effort of fully integrating Nadarajah’s deafness into the story so that it not only fit organically within the narrative but actually enhanced it. watching Hamlet’s signing disintegrate as his trust in R&G disintegrates adds a depth to that storyline I’ve never seen before. Claudius has exactly the awkwardness of someone who thinks of himself as a good person and therefore thinks he’s being kind and generous with his accommodations for disability, but has never even once actually asked a disabled person what they need, which is so on-point for his character it hurts.

I know Michelle Terry gets a lot of hate mail for her policy of race-, gender-, and disability-blind casting, but fuck all those people. long may that policy continue.

[lostsometime]

the glenda jackson production of king lear on broadway did something similar with the Duke of Cornwall, and it was actually the best part of the play, imo.  because when Cornwall was speaking to Lear or to the Court, he had a sign language interpreter to speak the actual literal words aloud, but when he was talking to and conspiring with Regan, his wife, they were just signing back and forth with no translation for the audience, and it emphasized the intimacy between the two even as they turn against literally everyone else in the play, which was fantastic.

and the best part of it was, by the second half of the play, you were so used to it, that you didn’t even blink anymore when watching him and listening to the spoken words come from the interpreter - you just watched the actor playing Cornwall and let the words come from the other guy, but the guy kind of fades into the background.  it didn’t hurt that the actor for Cornwall was one of the tallest on stage, and had bright red hair - it was easy to watch him, instead of his interpreter.

which is why it was so shocking and so perfect when the interpreter is the one who kills him.

See, they folded the character of the servant who kills Cornwall into the person of this character who had been such a non-entity that you almost forgot he was on stage - until you realize, no, this is another person, and he’s been here, watching all this the whole time, and he finally gets to the breaking point where he can’t stand by and translate anymore, he has to do something to stop the cruelty he’s seeing, and it’s not just a random guy who comes in for the scene and sees them blinding Gloucester, it’s the man whose been by his side for the entire play, the man who was his voice who finally has a line of his own.  who finally speaks on his own behalf to say “no.”

and then, of course, he gets killed, but Cornwall dies in the same scene so it’s not like they need to get a new translator or anything.  but it was the most fucking brilliant choice i’ve ever seen re: casting in a Shakespearean production, and the rest of the play pales in my memory in comparison.

[bookishdiplodocus]

The Neurodivergent Writer’s Guide to Fun and Productivity

(Even when life beats you down)

Look, I’m a mom, I have ADHD, I’m a spoonie. To say that I don’t have heaps of energy to spare and I struggle with consistency is an understatement. For years, I tried to write consistently, but I couldn’t manage to keep up with habits I built and deadlines I set.

So fuck neurodivergent guides on building habits, fuck “eat the frog first”, fuck “it’s all in the grind”, and fuck “you just need time management”—here is how I manage to write often and a lot.

Focus on having fun, not on the outcome

This was the groundwork I had to lay before I could even start my streak. At an online writing conference, someone said: “If you push yourself and meet your goals, and you publish your book, but you haven’t enjoyed the process… What’s the point?” and hoo boy, that question hit me like a truck.

I was so caught up in the narrative of “You’ve got to show up for what’s important” and “Push through if you really want to get it done”. For a few years, I used to read all these productivity books about grinding your way to success, and along the way I started using the same language as they did. And I notice a lot of you do so, too.

But your brain doesn’t like to grind. No-one’s brain does, and especially no neurodivergent brain. If having to write gives you stress or if you put pressure on yourself for not writing (enough), your brain’s going to say: “Huh. Writing gives us stress, we’re going to try to avoid it in the future.”

So before I could even try to write regularly, I needed to teach my brain once again that writing is fun. I switched from countable goals like words or time to non-countable goals like “fun” and “flow”.

Rewire my brain: writing is fun and I’m good at it

I used everything I knew about neuroscience, psychology, and social sciences. These are some of the things I did before and during a writing session. Usually not all at once, and after a while I didn’t need these strategies anymore, although I sometimes go back to them when necessary.

I journalled all the negative thoughts I had around writing and try to reason them away, using arguments I knew in my heart were true. (The last part is the crux.) Imagine being supportive to a writer friend with crippling insecurities, only the friend is you.

Not setting any goals didn’t work for me—I still nurtured unwanted expectations. So I did set goals, but made them non-countable, like “have fun”, “get in the flow”, or “write”. Did I write? Yes. Success! Your brain doesn’t actually care about how high the goal is, it cares about meeting whatever goal you set.

I didn’t even track how many words I wrote. Not relevant.

I set an alarm for a short time (like 10 minutes) and forbade myself to exceed that time. The idea was that if I write until I run out of mojo, my brain learns that writing drains the mojo. If I write for 10 minutes and have fun, my brain learns that writing is fun and wants to do it again.

Reinforce the fact that writing makes you happy by rewarding your brain immediately afterwards. You know what works best for you: a walk, a golden sticker, chocolate, cuddle your dog, whatever makes you happy.

I conditioned myself to associate writing with specific stimuli: that album, that smell, that tea, that place. Any stimulus can work, so pick one you like. I consciously chose several stimuli so I could switch them up, and the conditioning stays active as long as I don’t muddle it with other associations.

Use a ritual to signal to your brain that Writing Time is about to begin to get into the zone easier and faster. I guess this is a kind of conditioning as well? Meditation, music, lighting a candle… Pick your stimulus and stick with it.

Specifically for rewiring my brain, I started a new WIP that had no emotional connotations attached to it, nor any pressure to get finished or, heaven forbid, meet quality norms. I don’t think these techniques above would have worked as well if I had applied them on writing my novel.

It wasn’t until I could confidently say I enjoyed writing again, that I could start building up a consistent habit. No more pushing myself.

I lowered my definition for success

When I say that nowadays I write every day, that’s literally it. I don’t set out to write 1,000 or 500 or 10 words every day (tried it, failed to keep up with it every time)—the only marker for success when it comes to my streak is to write at least one word, even on the days when my brain goes “naaahhh”. On those days, it suffices to send myself a text with a few keywords or a snippet. It’s not “success on a technicality (derogatory)”, because most of those snippets and ideas get used in actual stories later. And if they don’t, they don’t. It’s still writing. No writing is ever wasted.

A side note on high expectations, imposter syndrome, and perfectionism

Obviously, “Setting a ridiculously low goal” isn’t something I invented. I actually got it from those productivity books, only I never got it to work. I used to tell myself: “It’s okay if I don’t write for an hour, because my goal is to write for 20 minutes and if I happen to keep going for, say, an hour, that’s a bonus.” Right? So I set the goal for 20 minutes, wrote for 35 minutes, and instead of feeling like I exceeded my goal, I felt disappointed because apparently I was still hoping for the bonus scenario to happen. I didn’t know how to set a goal so low and believe it.

I think the trick to making it work this time lies more in the groundwork of training my brain to enjoy writing again than in the fact that my daily goal is ridiculously low. I believe I’m a writer, because I prove it to myself every day. Every success I hit reinforces the idea that I’m a writer. It’s an extra ward against imposter syndrome.

Knowing that I can still come up with a few lines of dialogue on the Really Bad Days—days when I struggle to brush my teeth, the day when I had a panic attack in the supermarket, or the day my kid got hit by a car—teaches me that I can write on the mere Bad-ish Days.

The more I do it, the more I do it

The irony is that setting a ridiculously low goal almost immediately led to writing more and more often. The most difficult step is to start a new habit. After just a few weeks, I noticed that I needed less time and energy to get into the zone. I no longer needed all the strategies I listed above.

Another perk I noticed, was an increased writing speed. After just a few months of writing every day, my average speed went from 600 words per hour to 1,500 wph, regularly exceeding 2,000 wph without any loss of quality.

Talking about quality: I could see myself becoming a better writer with every passing month. Writing better dialogue, interiority, chemistry, humour, descriptions, whatever: they all improved noticeably, and I wasn’t a bad writer to begin with.

The increased speed means I get more done with the same amount of energy spent. I used to write around 2,000-5,000 words per month, some months none at all. Nowadays I effortlessly write 30,000 words per month. I didn’t set out to write more, it’s just a nice perk.

Look, I’m not saying you should write every day if it doesn’t work for you. My point is: the more often you write, the easier it will be.

No pressure

Yes, I’m still working on my novel, but I’m not racing through it. I produce two or three chapters per month, and the rest of my time goes to short stories my brain keeps projecting on the inside of my eyelids when I’m trying to sleep. I might as well write them down, right?

These short stories started out as self-indulgence, and even now that I take them more seriously, they are still just for me. I don’t intend to ever publish them, no-one will ever read them, they can suck if they suck. The unintended consequence was that my short stories are some of my best writing, because there’s no pressure, it’s pure fun.

Does it make sense to spend, say, 90% of my output on stories no-one else will ever read? Wouldn’t it be better to spend all that creative energy and time on my novel? Well, yes. If you find the magic trick, let me know, because I haven’t found it yet. The short stories don’t cannibalize on the novel, because they require different mindsets. If I stopped writing the short stories, I wouldn’t produce more chapters. (I tried. Maybe in the future? Fingers crossed.)

Don’t wait for inspiration to hit

There’s a quote by Picasso: “Inspiration hits, but it has to find you working.” I strongly agree. Writing is not some mystical, muse-y gift, it’s a skill and inspiration does exist, but usually it’s brought on by doing the work. So just get started and inspiration will come to you.

Accountability and community

Having social factors in your toolbox is invaluable. I have an offline writing friend I take long walks with, I host a monthly writing club on Discord, and I have another group on Discord that holds me accountable every day. They all motivate me in different ways and it’s such a nice thing to share my successes with people who truly understand how hard it can be.

The productivity books taught me that if you want to make a big change in your life or attitude, surrounding yourself with people who already embody your ideal or your goal huuuugely helps. The fact that I have these productive people around me who also prioritize writing, makes it easier for me to stick to my own priorities.

Your toolbox

The idea is to have several techniques at your disposal to help you stay consistent. Don’t put all your eggs in one basket by focussing on just one technique. Keep all of them close, and if one stops working or doesn’t inspire you today, pivot and pick another one.

After a while, most “tools” run in the background once they are established. Things like surrounding myself with my writing friends, keeping up with my daily streak, and listening to the album I conditioned myself with don’t require any energy, and they still remain hugely beneficial.

Do you have any other techniques? I’d love to hear about them!

I hope this was useful. Happy writing!

[adhd-alien]

Remember when I came up with "buttons" to explain executive dysfunction just because I had an argument with my partner about getting things done?

I made an entirely new series for ADHD Awareness Month explaining motivation & ADHD. Coming next week 👀✨

[bookspark]

So since it looks like Tumblr might be coming back to life, I guess I’ll start a new author tumblr, since my old one/pen name doesn’t match any of my current author socials.

The question is, way back when in ye olden days of tumblr anytbing comments or follows showed up as your primary blog. Does it still do that?

Also, lemme know if you want me to link it when I’m done?

[thehopefulquotes]

“You sometimes think you want to disappear, but all you really want is to be found.”

— Kid Cudi

[skatinginfinitelywithyourmom]

Demon Hunters through generations 🎶 K-Pop Demon Hunters (2025)

[midwinterhunt]

Please play test this for me?

What it says on the tin, I have MANY characters, some better some worse. I am mostly making this for ArtFight so i'm only including the OCs

Reblog with your results!

[bookspark]

I heard tumblr is coming back and fuck have I missed it so yeah, let’s make this the fist post in ages, lol.

[cosmeretrek]

Above image is a pride flag with every color band represented by a NASA image. White is Earth clouds, pink is aurora, blue is the Sun in a specific wavelength, brown is Jupiter clouds, black is the Hubble deep field, red is the top of sprites, orange is a Mars crater, yellow is the surface of Io, green is a lake with algae, blue is Neptune, and purple is the Crab Nebula in a specific wavelength.

[tinymintywolf]

blorbovember day 9: angst

can this girl ever CATCH A BREAK!!!

[vacanthive-deactivated20150628]

[bookspark]

@wolfpotion12 @stellanotecor

[hearthcentereddevotions]

Simple Ways To Honor Hestia

I haven’t always erred on the side of historical accuracy (I started out as a Wiccan, which essentially means that I relied a LOT on UPG experiences and less on historical accuracy), so I can’t guarantee the following are all historically correct or that you feel it’s appropriate to your own practice with Hestia.  But I thought that writing up a post about how I have honored do honor Hestia, whether historically accurate or not, might help others!  

Tea.  Best in the morning, as part of a healthy morning ritual, fire up your stove/electric tea kettle and make a cup of tea, both for you and Hestia.  If you don’t want to give a full cup of tea to her, you can always pour a little into her own cup first.  I just share whatever tea I happen to like, and I try to discard it daily with a prayer.  

Food.  I have cats, so I really don’t do this (because I don’t want my cats eating unhealthy amounts of table food), but you could set aside the first bite or portion of a meal as an offering to Hestia.  Alternatively, you could always set aside a portion, go to your altar/shrine, state that it’s an offering for her, and then refrigerate it until you’re ready to eat it.  This, I do pretty often - I even have a container that’s used solely for Hestia offerings.  I know some people feel you shouldn’t eat offerings reserved for the gods, but I don’t have the money to dedicate food in such a way; so I usually eat this as part of my breakfast, or whenever I do a daily devotional to/for her.  

Candles & Flames.  This is probably the easiest, most simple way to honor Hestia.  I find that she likes all sorts of fire - and even fire representations!  So feel free to use an electric nightlight instead of a candle, or an electric candle, or even a lamp.  Traditionally, her fire was never let out, but I just don’t feel safe (or confident) in letting fires burn - because I have cats, and if you’ve ever had a cat, you know that they like to investigate things and knock them over - and we’re on a budget, so I prefer not to leave things on 24/7.  I prefer to light a candle (if I’m at the altar saying prayers) or rely on an electric candle (if I know I need to walk away, but want her symbolic hearthfire to burn for a specified time).  

Kitchen Altar.  If it were up to me, my house would be FULL of altars just about everywhere.  One space I really love to devote to Hestia is a space in the kitchen, preferably near the stove.  I have an electric stove (it came with our apartment), so it’s not quite the same as having an open flame, but I do like to set aside a candle just for her in that space.  If a candle isn’t your thing, or you’re trying to keep things from getting too cluttered, you could always leave her an offering bowl or dish there, or anything that you feel symbolizes Hestia.  

Veiling.  Many followers of Hestia advocate veiling, and I would really suggest giving it a try!  If you’re feeling a little self-conscious about veiling, you can always just put it on as an act of devotion right before prayer, and take it off right after.  If veiling puts you off completely (it’s not for everyone), you can try using a specific clip, ribbon or scrunchie that you use to pull your hair out of your face for devotional purposes.  

Prayer Beads.  You can do this with just about any deity, but consider making your own prayer beads or purchasing a set in honor of Hestia.  As part of your daily/weekly/monthly/yearly devotions, you can meditate on this goddess, chant, or recite prayers with every bead.  It’s a great way to really feel connected to a deity, and a great memorization technique when you’re working with a new prayer.  

Fireplace.  The hearth is the traditional center of the home, and the traditional symbol of Hestia.  If you have a fireplace, fire it up!  It doesn’t have to be a daily occurrence, but it would be nice to occasionally remind Hestia how much you love her through fireplace maintenance a roaring fire.  If you rather do this outside in a fire pit, go ahead!  If your fireplace is purely decorative (or you’re otherwise not allowed to use the fireplace), try putting a candle in there and lighting it instead.  If you don’t have a fireplace, you can always pull up a crackling fireplace video on roku, or stream a video of such from youtube on your computer, laptop, tablet, TV, or phone.  It makes for a meditation session!  

Hospitality.  As the goddess of hearth and home, Hestia is a goddess who would have gone out of her way to make everyone feel warm and welcomed in her abode.  You should do the same!  The next time you have visitors, offer to take their coats, grab them a drink, and make them feel welcomed, comfortable and loved.  

Generosity.  I feel that Hestia is a generous, charitable sort who would give you the clothes off her back if you were in need.  Practice generosity; think of ways that you can help out your relatives, friends, neighbors and community.  Do you have a yearly block party or monthly potluck for your neighbors?  Why not try to start one up?  Is there someone that could really use some extra help - maybe a babysitter in the evening, a tutor for a child, a little extra help cleaning their home, or just a shoulder to lean on?  Maybe there’s a new neighbor you haven’t met yet - why not bring a batch of cookies as a gift and introduce yourself?  

Food Drives.   Lots of stores have food drive promotions (and sometimes for clothes and school supplies).  The next time you notice one of these going on, donate.  Maybe go through your house and purge what you don’t want/need and donate it.   Donating time to a food shelter or a homeless shelter are also excellent ways to honor Hestia!  

Meals.  In the old days, people would use the hearth for cooking.  Now, we have lots of contraptions that aid in cooking - blenders, stoves, grills, microwaves, etc.  Instead of ordering take out or microwaving a frozen dinner, try cooking your meal.  Dedicate the time spent preparing and cooking to Hestia - make it a devotional act!  

Prayers.  You don’t need to have a shrine or altar to pray to Hestia, and nor do you need candles, statues or a physical representation.  All you need is you and your intent.  Using things like Homeric or Orphic Hymns are perfectly fine, but so is just speaking from the heart.  

Cleaning.  Turn boring, monotonous, daily chores into an act of devotion.  Meditate on Hestia while you clean, or chant, speak prayers, or simply keep her in mind while you do your rounds.  Some like to combine the veiling technique above - put your hair up or veil while cleaning as a devotional dedication.  Don’t focus on perfection; it’s better to develop a daily cleaning routine where a little is done at a time but very frequently rather than an occasional cleaning day spent obsessively scrubbing floors and organizing.  

Family Reunions.  Have you gotten together with your family recently?  Organize a family get-together!  This can be in the form of a family game night, a movie night with you and your closest friends/relatives/significant other, or a big party for all of your relatives.  So many of us only speak to our relatives around the holidays, but Hestia emphasizes the importance of building strong family ties and keeping those bonds strong.  If getting together with family is impossible (due to transportation issues, living out of state, etc), pick up your phone and give them a ring!  

Healthy Boundaries.  If you’re like me and you struggle with having healthy boundaries between yourself and your family, you can always go to Hestia for help in this area.  You should never feel pressured to always say yes to everything people ask of you - especially if you feel unappreciated or are being taken advantage of or abused.  Hestia can help!  

Meal Planning.  A great way to make sure you spend some time with Hestia everyday of the week is through meal planning.  One day each week, every other week, or once per month (depending on how often you go grocery shopping), sit down and plan out in advance the meals you plan to cook.  You should aim for at least one home cooked meal a day, preferably breakfast, lunch and dinner (and factor in a few snacks).  The very act of meal planning can be a devotion to Hestia, and it helps you budget, make a grocery list, and keep things organized.  Plus home cooked meals are delicious!  

Budgeting.  A big part of running a househeold is dealing with budgeting issues.  You can devote the time spent on balancing checkbooks, paying bills, and going over savings and expendable income to Hestia.  

Household Notebook.  Remember the suggestion of meal planning, budgeting and cleaning?  You can utilize all this - and more - through a household notebook.  All you need is a binder and some paper - and if you have a printer with a hole punch, you can even find beautiful decorative templates to help you out!  A household notebook is basically where you keep everything you need to help run your house.  I have a section for recipes and meal planning, a section for local take out places (with menus, if possible) and their address and numbers, a section for emergency medical information (there’s even a section with receipts for every time our cats have been to the vet).  I keep lists of things that need to be done on a daily basis, weekly basis, monthly basis, and seasonal basis (which I change up as needed).  I even have a section on how to remove different kinds of stains from different surfaces, and how to clean specific things (like electronic equipment, appliances, cleaning supplies, etc).  I even keep track of the recipes I use for homemade cleaning recipes (like homemade dishwasher tabs, or glass cleaner for my eyeglasses, simple disinfectant, etc).  If you have trouble remembering birthdays, anniversaries, and annual celebrations, put it in here!  You can even go one step further and add sections to your household notebook for daily to-do lists, a prayer section for Hestia, and if you’re more along the lines of a pagan vs Hellenic reconstructionalist, you can even include things like spiritual cleaning, altar dedications, statue consecration, etc.  I’m not saying go full blown BoS with this binder, but keeping things that you use on a daily basis as part of your everyday life all in one spot is just practical and convenient.  

Seasonal Cleaning.  Everyone knows about spring cleaning, but I wholeheartedly feel that we should do a version of spring cleaning at the change of every season.  This can be a devotional act to Hestia!  

Cooking Class.  Hestia is all about hearth and home, and what better way to show your love and appreciation to yourself and to your family and friends than by learning how to cook (better)?  Any time you cook can be a dedicated act to Hestia.  

Musical Playlist.  Try putting together a list of songs that really reflect how you feel about Hestia, or put you in a Hestia-like mood.  

Domestic Bliss.  Even the time you spend bonding with your significant other and working out your issues can be considered devotional time.  Keep your home happy and filled with love by being open, communicative, and supportive of your partner.  

Relaxing Night In.  There’s nothing wrong with occasionally spending a night at home with a relaxing atmosphere, take a bubble bath, read a good book, watch a favorite movie, binge watch a neglected series on Netflix, or doing a hobby that you love.  Give yourself permission to take it easy and practice self-care!  

Dinner Parties.  Much like a family reunion, a good way to express appreciation to your friends and family is to have a dinner party.  It doesn’t have to be formal, and you don’t have to be a slave in the kitchen - what matters is that you open your heart and home to those you love.  

Prayer Book.  If you work closely with Hestia, consider starting a little prayer  book for her.  There are tons of ways to do this - you can use a diary, a binder, a pronged folder, or even try some simple bookbinding.  I’ve had great success with cutting computer paper in half, punching holes along one side, and binding it together with ribbon.  If you work with other deities, you can make a prayer book for each individual deity, or one large one for all of them.  Keep it on or near your altar/shrine for easy access!  

Cookbooks & Recipe Collections.  Another excellent devotional to Hestia!  Track the recipes you try with a cookbook or a recipe collection.  This can even be digital through sites like All Recipes or tracked through apps like Google Drive (which can be synced between your phone and computer).  

Home Remedies.  I don’t know about you, but I grew up in a household where my mother always had an aloe plant for burns and irritated skin, salt and water for gargling when I had a sore throat, orange juice and garlic when I felt under-the-weather, and fresh mint leaves for an upset stomach.  If you have holistic or natural remedy leanings, consider devoting the time spent to researching and creating homemade remedies as sacred to Hestia.  

Sewing, Knitting, Crocheting, Weaving & Embroidery.  Cottage industries involving thread has always seemed so very Hestia to me.  Learning how to properly darn a sock, sew on a button, or repair ripped seams are things that are SO valuable that extending that over to something like sewing, knitting, crocheting, weaving or embroidery only seems natural.  It’s okay if you discover you don’t like it - what matters is that you gave it a try!  

Crafts.  We’re in an trend where having crafts in the home is very much in!  Take advantage of this by looking up different crafts that you can do for your own home to save money, make it look nicer, and give it the aesthetic that fits your - and your family’s - personality.  Time spent creating these things can definitely be dedicated to Hestia.  

Interior Decorating.  Just like with crafts, interior decorating can be an exhausting process, but one that is very important.  Most of us want a warm, comforting home, and in order to have that, we need to do what we can to look - and feel - that way.  For some of us, this means investing in a fireplace and mood lighting, while others feel a puffy, comfortable couch is the way to go with a nice flat screen tv.  Others are more bohemian and rustic in their decor, while some like shabby chic touches and refurbished antiques.  Even if you’re a minimalist by nature, using the right combination of colors and accents can really give a homey, comforting feeling.  Take the time to discover your own personal style and figure out ways to translate it into your home.  Anything you do to make your home a loving, comforting environment can be a dedication to Hestia!  

[noisemx]

Chris Schweizer - “Important Life Lessons That I Learned from Raul Julia’s Portrayal of Gomez Addams”

[thebibliosphere]

COVID Long-Haulers Are Organizing And Demanding Better Care — And They Just Got A Meeting With The WHO

Across the globe, scores of COVID “long-haulers” have been fighting for doctors to believe and help them. On Friday, they finally got a meeting with the World Health Organization.

Listen, I know it’s a B*zzfeed article, but if you listen closely you’ll hear the neglected screams of the Myalgic Encephalomyelitis community and all the researchers who fought for decades to get funding for this sort of thing, but because the illness got re-branded as “chronic fatigue syndrome” and WRONGLY classified as a purely psychological disorder, and not a complete autonomic nervous system collapse following a major event (trauma, prior viral illness etc), we’re both woefully behind and wholly unprepared for the mass disability event that is about to follow Covid-19 if steps aren’t taken Immediately to correct the guidelines being handed out by doctors to “long haul” Covid-19 patients when it comes to self care and long term recovery.

Jennifer Brea over on Twitter has been talking extensively about her experiences with having ME/CFS and then contracting Coronavirus on top of that (source). She also regularly boosts the experiences of others, and is one of the most forefront advocates for ME/CFS to be taken seriously by medical professionals worldwide, and her documentary www.unrest.film/ has been paramount to raising awareness to the neglect and medical abuse many people with chronic conditions face. 

If you’re a “long haul” Covid-19 sufferer and you’re finding my blog because of the various chronic fatigue things I’ve posted over the years, I’m so sorry. We think I got it back in March/April, and while we also think my MCAS meds might have helped me recover better, it’s been a rough few months, even by my standards. But please know you are not alone. Reach out to the ME/CFS communities online. You’ll find support and resources that may help you affirm that you’re not alone or crazy and that yes, some of the things your doctors are recommending you to do, like “kick starting your recovery with exercise” is in fact making you worse. Many, many, many people with ME/CFS suffer from severe and debilitating exercise intolerance, especially if their ME/CFS comes with a side helping of POTS (Postural orthostatic tachycardia syndrome). My exercise intolerance is made doubly worse by suffering from a mast cell dysfunction (MCAS), which means if I exercise too hard or too much, I can trigger an episode of anaphylaxis and go into shock. Sounds bonkers I know, but as anyone with a chronic condition can tell you, the body is capable of wild and often terrifying things that as many, many people are now finding out, most doctors are either ill equipped to deal with or even believe in.

But for whatever it’s worth, I believe you. I believe you got sick, and you’re still sick, and if I can give you one piece of advice from one chronically sick person to another, rest. Please, rest, please don’t push yourselves. Be kind and gentle to yourself. Yes you might end up with some deconditioning, but you cannot show this thing who is boss by running a marathon or climbing a mountain. Health doesn’t work that way, no matter what the moral purists and healthful bloggers say. Be gentle, be kind. Your body is going through a trauma not yet fully understood by medical science, and you cannot expect to bounce back the way you once did. I’m sorry. You didn’t do anything wrong. You didn’t do anything to deserve this. It’s just how things are. But you’re not alone, and I hope there is some comfort in that for you.

[thebibliosphere]

Hey fam, thank you for the comments and reblogs of this post, I’m glad it’s helping people. I am going to gently request before any of you email me any further about what to do, that you read the link I provided to Jennifer Brea’s twitter where she explains that rest is paramount to recovery. She also details a few other things (especially helpful to those of us with MCAS). Most of the questions you are asking me are answered in that thread, as well as a few others which you may not realize but find useful to know.

Like me, Jennifer is not a doctor, she’s just an extremely sick person who has learned over the years how to Macgyver her body back together when doctors refused to treat her health seriously. Like me, she also does not endorse mystic woo-woo cures. She’s extremely knowledgeable about the actual science aspect of these things, but like all of us, is piecing this shit together as we go. None of us have concrete answers, merely our shared experiences of what it is like to live with a long term chronic illness for which there is little to no relief. 

If you are rightfully angry that you are just now learning about Myalgic Encephalomyelitis and the neglect and abuse endured by the sufferers spanning decades, please stay angry and prepare to fight for yourselves and the ones you love against the systemic ableism that prevents research and adequate treatment of this debilitating illness and the mass disability event that is about to occur. I am genuinely sincere when I say I hope I’m wrong about ME/CFS being the outcome of long term Covid-19 complications, but I don’t think I am. The only silver lining through all of this that so many people are being affected that it is now impossible for doctors to ignore, and while it breaks my heart to know that so many people are suffering in this way, it’s also a relief to no longer feel like we’re screaming alone in the dark.

Stay safe out there. And rest. Please rest. Let yourselves heal. Give yourself the time to climb that mountain in the future.

[noping-out-deactivated20241117]

My ME/CFS specialist - who is one of the top experts in the world - has forbidden all of his patients from exercising. Not only can it make you worse, if you push too hard it can literally kill you.

His #1 piece of advice for ME/CFS patients is “Never ever under any circumstances ever push yourself.”

Rest. Rest rest rest. Anytime you’re even slightly tired, rest. If you think you might be getting tired, rest. Do not, under any circumstances, push yourself. Rest.

[do-you-hear-the-fans-sing-deact]

I get told to just push through it and doing excerise will give me energy, I never thought it could be harmful.

Is it okay to do excersise if you love it though? Dance is the biggest thing to my mental health recovery so, I always get tired but I now look after myself instead of feeling guilty

[thebibliosphere]

Regrettably that is often the advice given by doctors still operating under outdated criteria. I know it’s the advice still fully endorsed by the NHS in the UK, which is both unfortunate and appallingly harmful for all concerned.

I can only speak to my own experience and recovery, but gentle exercise is the end goal of recovery once you’ve got your ME/CFS under control, if you are able to get to that stage. “Pushing through” the fatigue and pain however with ME/CFS is now generally accepted to be harmful, and can potentially worsen symptoms if you are in the active phase of illness or may prompt a relapse (Jennifer mentions this briefly in the twitter thread. She realized even going for short 15 minute walks was putting her at risk of relapse during a flare up.) 

General advice from my doctors has been to avoid anything that might break a sweat or anything that tires me out, so even my physical therapy had to be modified to be less strenuous to avoid relapses. If you really do love dance and need it for your mental health (and I understand that fully) something gentle like tai chi might be a good option for you. It’s been rec’d to me by umpteen doctors at this point as being a good gentle source of movement to help stave off further deconditioning, whilst also not wrecking my joints/spine/obliterating my  autonomic nervous system dysfunction. 

If you’re able to dance without worsening symptoms, it may well be fine for you, but you might also be setting yourself back and not knowing it. It’s a tough call to make :(

[thebibliosphere]

More of our friends are getting sick, so I’m reblogging this.

If you have a Covid diagnosis or suspect you had it and are struggling with extreme fatigue, please do not try to power through or think you can beat the fatigue through sheer stubborn will. You are setting yourself up for long term illness and possible disability.

The long haul symptoms of Covid are real.

Post viral fatigue syndrome is real.

ME/CFS is real.

There is no nobility in suffering. Physical exhaustion is not a moral failing to overcome. That’s the ableism inherent in late stage capitalism talking. Fight the system and take a nap.

[bookspark]

@hotchocolateandpillowforts ??

[bookspark]

Hi Tumblr

I’m not dead. I just wish I was.

[pencilscratchins]

my brother opened my eyes to this. you know katara sent bumi to train with the kyoshi the second he said something stupid 

[theboxer1261970]

[ID: a three panel comic of kya, bumi, katara, and suki. in the first panel / image, bumi is crowing, “can’t believe tenzy got beat so hard by a girl!” i’m assuming lin (?). kya is elbowing him, saying, “watch it, bumi, or your ass is grass, fucker!” katara is watching this silently. 

in the next panel, katara looks annoyed and says in small text, “what did you just say, bumi[?]”

the next panel, bumi has arrived at kyoshi island. bumi, sheepish, says, “heeey, aunt suki”. suki, in her usual getup, has her arms folded. she says, “said something sexist in front of your mom, huh?” bumi replies “hahaa uh yeaah”.

/ID]

[bookspark]

🤍🤍 List 5 things that make you happy, then put this in the ask box of the last 10 people who reblogged something from you (or whomever you want or not at all). Spread the positivity! 🤍🤍

Painting

Writing

Reading

gardening

My cats

[bookspark]

An Archive of Our Own, a project of the Organization for Transformative Works

Chapters: 3/? Fandom: Harry Potter - Fandom Rating: General Audiences Warnings: No Archive Warnings Apply Relationships: Sirius Black/Remus Lupin, Draco Malfoy/Harry Potter Characters: Harry Potter, Remus Lupin, Sirius Black, Draco Malfoy Additional Tags: Muggle AU Summary:

Remus and Sirius own a bookshop that’s the local haven for LGBTQIA teens. One day, a black haired, green eyed teen walks in…