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Hysterectomy post Operation
I went in for my hysterectomy at 5am. Waiting to be called back seems to take forever when youâre nervous.
There were two other women there waiting with their husbands as well. One was having bladder reconstruction or something. She said sometimes the bladder falls after a hysterectomy. Great, more possible surgery for me. I just pray that doesnât happen to me.
When my name was called, the nurseâŠ
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Today I saw my OB Doctor for my hysterectomy Pre-Op appointment. I have to be at the hospital Sept 27th at 5am and surgery will begin at around 7AM. My husband went with me so heâs in the loop about everything. I warned him my Dr is direct, descriptive, and very informative of everything he will do. Itâs his job to give me an honest breakdown of the surgery steps that will be performed, their desired outcomes, and possible risks involved. I could tell by my husbandâs face he was confused at times, grossed out at times, and worried in the end. He looked visibly sad in the end, but my doctor reassured him he would do everything in his power to keep me safe during and after surgery. I signed all the papers for surgery consent and got a two week follow up appointment made.
Before surgery plan: I have to keep doing my pelvic floor relaxation exercises and heat therapy (sit on a heating pad 20 min) twice a day. The day before surgery, I can have a light breakfast and then nothing, but liquids all day. No solids or milk products. I also have to drink 2, 8oz Bottles of Magnesium Citrate to clear out my colon. Because I have Diverticulosis (severe), my doctor does not want any stool in my colon that could burst my intestines when they move them around to get to my Uterus (more on that soon). I canât have anything to eat or drink after 3AM except a small drink in the morning to take my medications. I am to shower the night before and the morning of surgery, but use no make-up, nail polish, perfume, hair products, deodorant, or lotions. I am packing an overnight bag just in case I stay overnight and to have clean clothes to go home in.
Day of and during surgery: I will arrive at the hospital at 5AM. I will meet my anesthesia team and sign their consent forms. Since this is a âdirty surgeryâ (the vagina is cleaned, but still considered dirty), I will be given antibiotics through an IV during the surgery. I will be given a catheter and be taken to the operating room where the Da Vinci robot and my surgery team will be waiting for me. My doctor chose the robot because he can see my insides and move around my organs better than with regular, hand held, laparoscopy surgery. Since I have diverticulosis, the robot can go around my colon much easier and lower my risk of damage.
Once I am put under, the whole table I am on will be tilted back towards my head a little. A small incision will be made in my belly button or right above it and the robot arms will be placed inside me (see pictures below). My intestines will be moved to one side and might be exposed. Yes, thatâs gross and scary, but thatâs what my doctor said he would have to do to make sure they have a clear path to my uterus. The doctor will be looking at both of my ovaries and only remove one or both if they look abnormal. If they look good, just my tubes, uterus, and cervix will be removed through my vagina and the top of the vagina (where the cervix was) will be sewn shut. If any damage was thought to be done to my bladder, they will perform a Cystoscopy to look inside and make sure everything is ok. As with any surgery, organs have a risk of being damaged and blood loss could occur. I will be given a CBC before surgery to check my blood levels and to check my blood in case I might need a transfusion. A transfusion is only done if I lose a lot of blood. I will be sewn up after and sent to the recovery room. The whole process, I am told, is 3-4 hours long if no complications occur. My organs will be sent to pathology to 1: Make sure the doctor removed what he said he would remove, 2: Make sure extra items were not removed, and 3: to check for any cancers.
 I signed a consent form for them to take picture and video if they find anything out of the ordinary once inside. I will be given photos I can share if they take them, but only allowed to view the video on the office.
Recovery Room: If everything went ok, I can either choose to stay overnight, or go home after 6-7 hours. 6-7 hours after surgery, I will have my catheter taken out, asked to walk and use the bathroom. As long as there were no complications, I can walk enough to go to the bathroom, am urinating ok, and able to hold down food, I am allowed to leave that night if I wish. I will be given acetaminophen with oxycodone to go home with and am told I can do my pelvic therapy as tolerated to help heal faster. I am to take the narcotic pain meds only if the pain getâs very bad and regular Tylonal for minor pain. I will be given after care instructions I can share later, but told it will take 6-8 weeks to fully heal and I have to follow instructions to the T in order not to hurt myself after.
I forgot to ask two questions today: How will I know when I hit menopause after? What happens to my ovaries? Do they just float around on their own? Do they stay in one place? Itâs kind of weird to think of them just free floating inside me.
A note on keeping my ovaries: He told me it was up to me to keep them or not since I am so close to 45 years of age (43 this year). He said studies show women have less of a chance of cancer who keep their ovaries, but itâs still up to me in the end. I asked him if it would help my Hidradenitis to remove them since my hormones flare me up. He said, no. I was told that it may help some, but not make the HS go away. He said that keeping my ovaries will actually help calm it down anyway because there is no signal being sent to my uterus and ovaries to start trying to make a baby or have a period. My hormones should even out and be lowered with them kept. If they remove them, I will be thrown into menopause and have a whole host of other symptoms to deal with. Keeping the ovaries allows me to gradually go into menopause, even out my hormones, and lower my risk of breast and other cancers. I chose to keep them if they look healthy. I also made an advanced directive and had that scanned into the hospital files. All my doctors and hospital will see that from now on. If something bad happens, I donât want to be a vegetable.
I know I promised a while back I would take after pictures of my hidradenitis. I had surgery May 31st, 2018 and had 9 areas opened up in my left arm and both sides of groin. I started Humira July 24th because the HS started coming right back. Since then, I have some small, new areas and slight pain, but everything in about 90% better. I am posting the new pictures here for you to see as promised. You can see some new areas, but thatâs mostly due to the fact that I have been bleeding for 22 days due to the fibroids and had to constantly wear a pad because tampons hurt my uterine prolapse and fibroids. I plan on staying with Humira once a week unless the HS gets bad again. My hopes is that not having a period will help with at least not having to wear a pad and being irritated so much.
Pre-Op Visit & HS Surgery 5 Months Later Today I saw my OB Doctor for my hysterectomy Pre-Op appointment. I have to be at the hospital Sept 27th at 5am and surgery will begin at around 7AM.
Apologies
I am very sorry I havenât blogged in a while, I just needed some time for me. Iâm a little overwhelmed at the moment with my and my husbandâs health issues. I keep busy to keep my mind off this by watching movies, cleaning, spending time with my family, reading, and working on my family tree.
I have a hysterectomy Sept 27th and, while I am very nervous about it, I am excited because I have beenâŠ
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My DNA Part 1 and a Surprise
My DNA Part 1 and a Surprise
Before my DNA story, I have a surprise for you. I have a good friend who writes an HS (Hidradenitis Suppurativa) Journal. She asked me a few weeks ago if she could interview me for her September Issue and I gladly agreed. Here is my story:Â Â HS Journal
Several days ago, I got my DNA results from AncestryDNA. What I found was not too much of a shock based on what I knew about where my family cameâŠ
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Humira for HS Update #2
Humira for HS Update #2
Since being on Humira (July 24th) for my Hidradenitis, I have been having such good results. Itâs my âtime of the monthâ (Period) and I am only spotting a little. Usually, my hidradenitis flares up and I may get new boils.
My left arm had the worst HS and failed in surgery because they surgeon didnât go deep enough. Every month, it opens back up and hurts to the point I canât raise my arm. OnâŠ
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Humira Hidradenitis Update
Iâve been on Humira since July 24th 2018 and, so far, itâs working beautifully. The first dose was a loading dose of 4 shots, followed by 2 more shots 15 days later, and my once a week maintenance dose on day 29.
The first loading doses made me very tired and I had a headache. I also needed a lot of water and peed a lot. This lasted for a couple days. The second loading doses had the same sideâŠ
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The Gynecologist part 2 (more surgery)
The Gynecologist part 2 (more surgery)
I had my follow up appointment with my OB/Gyn yesterday to go over my sonogram results. The Dr said I have 3 fibroids they could measure, but otherâs forming and my uterus has tilted (fallen). One fibroid inside the uterus, one in the muscle itself, and one on the outside. They couldnât view my right ovary well enough, but the left was a little enlarged due to two cysts. He said my badder issuesâŠ
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DNA conspiracy, Family Tree, and More.
DNA conspiracy, Family Tree, and More.
I know itâs been a while since I posted. I have been a very busy person lately. I ordered my 23andMe DNA kit last month and they lost mine and a bunch of other peopleâs kits after they were delivered. Well, they say they didnât, but they never logged it in as received and couldnât tell me or many otherâs where their kits went after delivery. I tracked and verified my delivery to them and so didâŠ
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Leoâs Surgery and Humira
Leo got his booster shots today and neutered. He didnât even need gabapentin to get in his carrier! I got us early to give it to him and he refused to eat the area of her s food with the powder in it. I think he knew something was up ha ha.
His surgery went well and the veterinarian noted a huge improvement in his behavior for the better. Heâs healthy and doing well at home now. Heâs a bit woozy,âŠ
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While searching for a scratching post for Leo last week at Petsmart, we saw a few cats for adoption in the back. We werenât in search for a new addition to the family, Charmain found us. She was the only one who came right up to the glass wanting to meet us. She was so adorable! She was black and gold colored Tortoiseshell with a hint of tabby. We already had an adoption application on file with the shelter Petsmart was partnered with. I told my husband we should go home and think about it first.
I went over our finances first and saw that we could afford a second cat, but no more. However, I worried about Leo being around a new cat since he was so scared of everything and everyone. His former owner also warned us he was not good around other cats. I called the shelter to talk to them about this issue. They told us that Charmian was a good fit for Leo and did well around other cats. She told me we had a week âsleepoverâ with her and, if it didnât work out, we would be refunded or could chose another cat more suited for us. We were also given a discount on the adoption fee so, I arranged to meet them at the store to adopt Charmian.
She is a one year old, fixed, healthy, cat who has had all her shots and even chipped. Sheâs playful, curious, independent, and loving. When we got her home, we shut the door to our bedroom (Leoâs room) and just let her roam around first to feel things out. She has no problem getting right in your face if you have food. We realized that needs to be tamed as she seems to want to overeat. At the end of the evening, we opened the door to our room and sat in there for a while to see what they would do.
When Charmian entered the bedroom, Leo came right out chirping to meet her. She, however, was not so happy to meet him. She growled and hissed at him any time he got near. I was happy to see he wanted to play and was accepting of his new housemate. I worried Charmian wouldnât accept him, though. We agreed to just let them work it out since there were no fights breaking out and, by the next day, they were getting along fine. She does get a little jealous and will bop him in the head to let her lay closer to us AND she does try to eat up Leoâs food after eating hers. Leo hasnât braved up enough to stand up for himself and we have to rescue his food from her. Itâs just so nice to see Leo walking around the whole house, sleeping out in the living room at night to be near her, and just being a normal cat. He still fears anyone coming over and, when the front door opens, he runs to hide until he sees itâs just one of us.
Tomorrow, Leo is getting fixed at the vet and getting his booster shots. Weâre not looking forward to trying to get him in his pet carrier in the morning. Thatâs the only time he has ever been violent and it took him two weeks after the first vet visit to trust us again. We were given gabapentin from the vet to give him an hour before we take him. I hope that calms him enough to get him in his carrier without as much issue. I already have the carrier next to my bed so itâs not a surprise later.
As far as my updates, I am negative for HPV, my PAP was normal, and my uterine biopsy was ok too. I have a sonogram next week on the 15th and see the OB/GYN the 20th to go over my options. If nothing shows up on my sonogram, my Dr said I am just in Perimenopause and he will discuss my options then. I looked up the symptoms of Perimenopause and I am having all the symptoms listed here: PeriMenopause Symptoms.  I had a mammogram and still waiting for those results. I honestly feel I am going to be fine, I am now taking Zoloft for depression and anxiety since Prozac made my anxiety worse, and I am taking gabapentin at night and trying to work up to 3 times a day. 300MG was way too much for me to start with so, my Dr lowered it to 100mg for now. That worked better, but I only tried it one night so far. I hate pills and, honestly, just need to suck it up and take them. It helped so much with the hot flashes and night sweats! If you read the link I posted, gabapentin is often used for hot flashes. I will be starting therapy this month too.
I have to say, hot flashes SUCK! I used to just get night sweats around my period that included insomnia issues. Now, I have hot flashes in the day and night! They come on strong and start in the chest and radiate all over! Itâs like someone turned on the oven and stuck me in there, chest first. My face gets red, my eyes burn, and even my lips get hot at times. I sweat and feel dizzy. The first couple times I had this happen, I freaked out and thought for a second I was having a heart attack or something. Now that I know what they are, itâs easier to handle. My poor husband says I have it freezing in the house and he sleeps on the couch a lot because I keep tossing and turning. I donât mind because heâs a snorer and a furnace himself! When I took the gabapentin, I was able to lose the heat and sleep better. His snoring didnât bother me, I was knocked out HAHA. Yes, I am taking it tonight for sure!
I did my second loading doses of Humira yesterday. The two shots were fast and easy to do now that I know the drill. Even my Humira nurse who called to check up on me was proud of my success. I had the same side effects as before with only one added issue of having my skin be more sensitive than usual. Everything made me itch more than usual, but nothing too big. I wanted to sleep all day yesterday and had a headache today that went away with a nap. I am also getting used to Zoloft and that might have made the side effects more prominent. All I know is that this drug is a miracle drug for my skin. My Hidradenitis is not flaring up as bed and, when I got a new boil or started to flare, it went away in a day or to instead of a month or two. My face, neck, head, and back doesnât break out as much if at all now. My skin is smoother too! probably because Iâm not breaking out as much and drinking more water. I canât wait to see if this will heal my old lesions more or all the way. The one that wouldnât close after surgery under my arm is starting to close up more. Iâm just overall happy with Humira so far and hope this keeps working for me.
I saw my primary care doctor about my issue with the pain clinic doctor and he said I should have at least been offered a shot like I asked for for pain. He said a shot of at least cortisone would have helped me some than nothing at all. He is referring me to a orthopedic specialist for my back and joint issues and I hope to get a call soon to schedule this. I did make a formal complaint on how I was treated and asked that it be added to my medical records since he stated in mine that I called him a quack and got mad at him. He left out why I said what I said and even lied and said I told all the patients in the waiting room that he was a quack. That didnât happen and video will show that didnât happen. I asked for my rebuttal and complaint to be added to my file so new doctors and the newer ones I am working with do not think badly of me and fully understand both sides fairly. He failed to mention the only treatments I asked for was a pain blocking shot to be able to walk and physical therapy. I do not need drâs thinking I was just there trying to get pain meds or something. I HATE pain pills! Opiods make me very sick to my stomach and I do not want to become addicted to them. Thatâs why I have only taken them 5-6 times in the last 13 years for back and surgery pain. I have probably been more deserving of those pills considering I can hardly walk at times and, yet, never ask for them. I, instead, took NSAIDS like candy for the pain and ended up with stomach ulcers. My Primary Care dr has known me since the early 2000âs and told me not to worry about that guy. I am glad heâs got me covered. He agreed with my rheumatoid Dr that I have fibromyalgia on top of the degenerative disk disease, scoliosis, and osteoarthritis. This pain doctor didnât agree, but he also didnât check the classic pressure points of fibro pain either! My PCP even put on my gabapentin prescription âfor fibromyalgiaâ. I digress.
My husband and I went to Hobby Lobby the other day and got some fun things to do in our free time. He got some yarn to make me a few bracelets and I got a paint by number he picked out for me to do. He loves horses and picked out this pretty horse painting for me to put above the bed. I also made a beautiful vase with the sea shells my daughter sent me when she lived in Florida.
Bonus: I thought I would share a happy photo of my youngest grandson I was lucky enough to baby sit the other day. I also want to share my new hair perm! I love the new look. Iâll be dying out the grays in a few weeks at home.
Meet Charmian +Â Updates While searching for a scratching post for Leo last week at Petsmart, we saw a few cats for adoption in the back.
I grew up with horror movies thanks to my dad and loved them. I started out with just Stephen King books and movies but, since the Ghost Hunterâs first started in 2004, I always wanted to go on a ghost hunt. My husband and I went on a couple ghost hunts in St. Augustine, FL last year. This year, we invited my youngest brother and my oldest daughter to go to Lemp Mansion in St. Louis, MO for an overnight stay in the Williamâs Suite.
From what I understood, there were 2-3 deaths in the William Suite. I know for sure, a suicide and natural death of a wife. The whole family seemed to have mental issues and almost all died by suicide with only one suicide taking place outside the home. It seems like the place is cursed or something.
When we pulled up, we were greeted by a looming Victorian home that looked like something out of a horror film. The two sets of double hung doors we went through in the entrance had the classic squeak of a haunted house and, when walking in, it had the air of eeriness I expected.
The main floor and basement is a restaurant while the top two floors are a bed and breakfast. We were met by a wonderful host who signed us in and gave us a quick tour. We were shown to the back stairs where we could come and go after they left after hours (yes we would be left alone overnight), we were shown our bathroom down the hall from our room, and finally shown our room. We were told we could go anywhere other than the bar and kitchen to ghost hunt and informed that a wedding would be going on until about 11pm.
After a 2 hour trip, my daughter and I had to use the bathroom straight away. The home had a spooky feeling and the stories didnât help the psyche either. So, obviously, we went together down the long hall to the bathroom. The bathroom was brightly lit with two, large, frosted windows and had a free standing tub with legs. I absolutely love older homes, but I have to say, this house has some pretty creepy art work throughout. The bathroom was no exception with two naked, dead looking women and a painting of a bathtub with an eerie face above it. I think the decor was to add to the spook factor.
When we got back to the room, we took pictures of everything and settled in. We had muffins, breakfast bars, wine, apple juice, coffee, and chips waiting for us in the room on two tables. The room had a king in one area of the bedroom and a queen in the sitting room with a couch. Both rooms had a table in it and the sitting room had a keurig for coffee. We were pretty tired from the long drive and decided to get rest before a night of ghost hunting.
My husband and I took the king bed and went off to sleep. I kept waking up forgetting where I was and having a feeling of someone looking at me. I chalked it up to just being in a supposedly haunted home and went back to sleep. I woke up for the last time to what I thought was myself talking in my sleep. I have been known to do this from time-to-time and just tried to go back to sleep. The wedding reception outside had started an hour or so earlier and it was hard to get back to sleep. I lay there with the twilight of the evening shining through the window and just closed my eyes to try to rest some more. Soon after I closed my eyes, I heard a woman hum or sigh loudly in my face. Sleeping at that point wasnât going to happen and I got up when I noticed my daughter up as well. She too said she heard a womanâs voice and didnât know if it was me or not. She said she was also touched and it woke her up.
Once up, we all went outside to check things out. The restaurant was busy with customers and wedding guests and there was a large wedding reception around the corner. We walked around inside taking pictures and decided to head out for something to eat at Chillis since the Lemp menu was a bit too pricey for us. My brother was a little sick to his stomach and declined to go. My daughter left and EVP recorder going while we went out.
When we got back, we listened to the recorder and heard clanging like keys going on when no one was moving keys and my brother was clearly asleep. We heard the reception and nothing more, however, the recording was over an hour long and is still being reviewed by my daughter at her home now. We roamed around the house and took a few more pictures. When up in the 3rd floor areas, I felt a shock hit my right shoulder and hair twice. My brother got the same feeling on his elbow. We were touching nothing nor each other. That was a big ânopeâ for me and I went down stairs again.
We went down for a peek at the wedding party again and saw they were all leaving. They gave us a nice tray of cake pops to take to our room. Once the wedding party left at about 11pm, we did some real ghost hunting. When we got back to our room, we had been recording the whole way and heard piano playing outside our room. There is a piano right outside the room and one down the hall in a sitting room. We went to investigate and found it was just other guests having a bit of fun. My daughter offered cake pops to them and we went back to the room to gear up.
Before we went back out, my brother and I wanted more coffee and muffins for the morning. They came right up and delivered and we picked the staffs brain for ghostly knowledge. The staff member told us there were three deaths in our room and she thought the last son to commit suicide was murdered. He was the only one to leave a note and shot his own dog as well even though he had two servants there who would have cared for the dog. Iâm not sure how much of that was true, but it sounded good.
I can say we heard banging in areas were we knew no one was at. There was another party there staying on the 3rd floor, but we were always in a different area doing our own âhuntingâ. At one point, my daughter and I heard a baby cry near the nursery and went back to find our room door open when we knew we had shut it. The guys had been left outside to smoke with the other party so, we knew it wasnât any of them.
By about 2:30AM, we looked over photos and some video. We found a cool photo of a misty shape in our room that looked like William who died in that room. I am waiting for my daughter to email me that picture to share. We went to sleep at about 3AM, but I couldnât sleep. I could hear my husband snoring and heard something in the room with them. I was too afraid to open my eyes and called out to my brother. I got no answer. I thin yelled for my husband to switch places with my daughter next to me so I could sleep better. She went with my brother and my husband stayed with me. I think I finally fell asleep at 4AM and slept pretty hard.
The next morning, we noticed that the people from before us just left their keys on the floor on the way out instead of putting it in the mail slot. We guessed they got spooked and were in a hurry to leave. We turned in our keys to the staff coming in and went home ourselves. It was a night I will never forget and I might just come back again some year for more freaky fun. Next time, I want the 3rd floor where the most activity is said to be.
Here are a few photos and videos of the night. I will make a part two if my daughter finds more evidence.
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   Lemp Mansion Overnight Stay I grew up with horror movies thanks to my dad and loved them. I started out with just Stephen King books and movies but, since the Ghost Hunter's first started in 2004, I always wanted to go on a ghost hunt.
The Pain "Specialist" Clinic
The Pain âSpecialistâ Clinic
I can sum up my experience here with this: It was a waste of my time, humiliating, shaming, and infuriating.
I started my day with a mammogram. Then, my husband and I had errands we had to run most of the day. By the time I went for to my 3:30PM appointment at this pain clinic, my back was hurting so bad I wanted to scream. I was irritable, hurting, and about to cry. I sat in the waiting room 45âŠ
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The Gynecologist
So, I havenât seen a gynecologist since 2015 and finally got to meet my new provider today. He was very direct and right to the point, but kind as well. I told him that I have had painful and heavy periods since I started at age 12, but the last few years just keep getting worse. I now have periods every 21-18 days apart, 7-9 days long, heavy bleeding, large clots, and very painful cramps thatâŠ
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Our "New" lives
Our âNewâ lives
Now that things are looking up health wise, as far as a plan of action, we have moved on to making our lives better.
Losing weight: We joined the gym and will be going 4-5 days a week unless someone is ill or our medications are bothering us. My husband wants to lose 43 pounds and I want to lose 76. That will put both of us at our ideal weight for our heights. We will be cutting out sugars toâŠ
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Wrap it up already!
Wrap it up already!
I think I can almost say my doctors and I have got everything figured out and plans in place for all my treatments. I only have a gynecologist to see for a possible fibroid coming back , my primary care doctor today for a follow-up and his opinions, and the pain management clinic to get a pain plan in place.
My posts will still include any medical issues I am going through, but be more aboutâŠ
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Humira 24 hours later
After last nightâs fiasco turned good Shots and more Shots, Things went so much better today. The side effects I felt from two, 40mg Humira shots during the night was just a slightly more tired feeling, a feeling of small cold or allergies, itching and small redness on the injection site, urinating more a few hours after injection, and I had the munchies. My HS areas, especially my groin areaâŠ
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Shots and more Shots
Shots and more Shots
I went to the Rheumatoid clinic today for a cortisone shot in my hip to help my arthritis inflammation and to get different pain medications since Cymbalta didnât agree with me. My Dr prescribed Gabapentin for the pain and is starting me off slow on it. In 6 weeks, she wants me to be taking it 3 times a day for nerve pain and anxiety. She is also running an ANA test to look for any possibleâŠ
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