the last of my spoons

[paper-wounds]

Gillian Flynn, Sharp Objects

[fairylilies]

[fibromyalgicaf]

We're not lazy. We're sick and it sucks.

We're not flaky or making excuses. We would love to join in.

We're not faking. We often wish we were.

We're not too young. Chronic illness and disability can affect anyone.

We're not being "negative". We're telling it like it is.

We don't "just need to try harder." We've tried that.

We don't want your supplement or diet recommendations. We've tried those too.

We don't want your pity. We would like your support.

[chronicallyfuckedsyndrome]

Can I scream about DWP because wtfdym my claim has been ended based on me not providing requested further information in the correct time frame???!!!!!

I spoke to a call handler who confirmed an extension on both forms for the 11th July.

I asked at the time for it in writing as I struggle processing and remembering verbal information and was told oh no we don't do that so just wrote it in my call notes instead.

Also, I sent form 1 weeks ago (they didn't provide any acknowledgement) and I just needed to add a couple of attachments to form 2 before submitting 😭😭😭😭😭😭😭😭

[chronicallyfuckedsyndrome]

And immediately proceeded to catch piping hot liquid on my lip which stings like fuck and is already swelling up. This day is going so badly.

[chronicallyfuckedsyndrome]

Can I scream about DWP because wtfdym my claim has been ended based on me not providing requested further information in the correct time frame???!!!!!

I spoke to a call handler who confirmed an extension on both forms for the 11th July.

I asked at the time for it in writing as I struggle processing and remembering verbal information and was told oh no we don't do that so just wrote it in my call notes instead.

Also, I sent form 1 weeks ago (they didn't provide any acknowledgement) and I just needed to add a couple of attachments to form 2 before submitting 😭😭😭😭😭😭😭😭

[smadeleine42]

The cyclical hell of waiting for symptoms to subside only for new ones to arise

[talkethto-thehandeth]

Happy disability pride month to severely disabled people who are housebound/bedbound

happy disability pride month to severely disabled people who don’t have access to proper treatment or medical equipment, and are stuck without care that would ease symptoms or make their life easier

happy disability pride month to severely disabled people who won’t be getting better, and who will be getting worse, or who will be dying due to their conditions

happy disability pride month to severely disabled people with photosensitivity who can’t look at screens for long, and feel even more isolated by not being able to interact with much the disability community, even online

happy disability pride month to severely disabled people who aren’t happy to be severely disabled, but are happy to be alive

[m-e-isannoying]

Me: I'm doing so well lately, I'm sure I can do more stuff.

Also me, one day later: ... Now I remember why I did pacing...

[apersnicketylemon]

Just a reminder, but you do not need to “earn” being tired.

You’re allowed to be tired, even if you haven’t “done” anything and you’re allowed to be tired even if you did less than someone else.

Being tired is a normal thing your body does for a whole plethora of reasons, and is a basic bodily function. You don’t need to “earn” basic bodily functions, no matter what anyone else tells you.

[tekiltaari]

As someone who deals with crushing fatigue pretty frequently due to a chronic illness, I love this and would like to add:

It is NEVER a waste of a day to rest. Never, ever. My therapist and I have talked about this and they always remind me that resting when needed is actually an investment of time, not a waste.

Take care out there - and combat the mind-fuck around rest and tiredness as much as you can!!!

[nohopethiswillallendintears]

you’ve been moving around a lot? FATIGUE!

you’ve not been moving around? FATIGUE!

you’ve been standing? FATIGUE!

you’ve been sitting? FATIGUE!

you are simply conscious? FATIGUE!

you’re sad? FATIGUE!

you’re apathetic? FATIGUE!

you’re happy? Headache…AND THEN FATIGUE!

[mothwiingz]

fighting ableism isn’t about refuting the idea that we’re disabled at all

“autistic people aren’t incapable!! look at me, i’m autistic and i can function exactly like an abled person!! everyone should be like me” isn’t anti ableist. you’re taking the stereotype from one end of the spectrum and moving it to the other and that helps no one

the answer to “disabled people who can’t contribute to society are worthless” isn’t “all disabled people can do things if they try hard enough”. it’s “everyone inherently has worth just by being alive”

[nagichi-boop]

Chronic pain sometimes manifests in wishing to be cracked like a glowstick.

[phleb0tomist]

so many people ive known have pushed themselves to burnout trying to deny their disabled reality, skipping accommodations, skipping rests etc. and the world convinces them that the solution to their burnout is to push even harder. it’s a huge tragedy. i know social pressures make it tough but i want more disabled people to make things easier for themselves where possible, to opt out of things that harm them when possible, to quit while they’re ahead. be that person today! protect yourself where you can! take micro breaks while doing your hobby. get that shower chair. sit to brush your teeth. lie down in the middle of the day, even if only for 5 mins. these things add up and it’s so worth it.

[kinfolk-of-frogs]

One of the best things I've done for myself as a disabled person is get rid of my shame around sitting or laying in weird places. Bathroom floor? Check. Random sidewalk? Check. Lobbies of various professional buildings? So many checks. It is not embarrassing or shameful for me to take care of my body but it is embarrassing for architects and city designers to value appearances over accessibility

[rylandgraces]

[the most low energy you have ever seen me] we’re about to go crazy mode

[hillbillyoracle]

new free minizine: "Meditation 101"

just a quick lil zine to teach the basics of the style of meditation I landed on after 20 years of meditating. based in the Buddhist tradition but applicable to plenty of others - take the best, leave the rest. *note: the mistake in the preview isn't in the downloaded files; the program goofed when I saved the PNGs for some reason.

[[ available as a printable or read only copy - get yours here ]]

[alexandor]

Wish I didn't *have* to spend so much of my life in bed