Life of a Girl With Mito

[chronic-confessions]

Confession #1,635

I’m scared that my visible disability will mean I’ll be alone forever. I’m nearly 22, I have cerebral palsy, and I’ve never come close to having a boyfriend. Granted, socializing can be hard for me and I do want to better myself and get where I want to be before seriously committing to a relationship, but it’s hard to watch dating come so easily to people who aren’t disabled or who can basically pass as abled. I worry that my body will always scare guys away, even though I’m not a bad person.

[counting-todays-spoons]

Me: dislocates shoulder

Me: dislocates wrist putting shoulder back in

Me: dislocates finger putting wrist back in

Me: ... But what if I'm faking?

[counting-todays-spoons]

When you're the only one in the classroom sweating like mad, in summer, continuously fanning yourself because you can't regulate your body temperature and everyone looks at you like you're crazy.. Summer is not my friend.

[kasiaaaaa]

Be with a guy who still opens the car door for you even when he’s mad at you.

[schwarzefarben]

😌🙌🏼

[disabilityhealth]

“You should go outside more.”

Listen, if I was meant to spend more time outside in the sun then why did humans invent a vitamin D supplement??

[chronicpain09]

Being on Prednisone like

[just-shower-thoughts]

It’s its when it isn’t it is.

[chronicallyillfangirl]

And this goes for Mental Illness too.

[sixpenceee]

The following is what a CT Scanner looks like without the casing

[psychcomedy]

[chronicallyillfangirl]

Pretty big obstacle to enjoying the Summer months.

[chronicpain09]

i sometimes wonder who i would be if this pain wasn’t part of my life

[counting-todays-spoons]

Summer or Winter

Friend: are you a summer person or a winter person?

Me: Well, my POTS is better in the winter but my EDS is worse, and my EDS is better in the summer but my POTS is worse... so neither

Friend: .... what?

[thoughts-memories]

[snorlaxatives]

[fibro-larious]

Me: I wonder if I’ll have enough energy to get out of bed today. My body:

Me: AGAIN!?!

[thefaultinourstarscream-deactiv]

I’ve noticed that being chronically ill gets old for the people around you real quick

at first they show concern and send you well meaning “hope you get better” messages etc. but when it lasts longer than a few months, when it’s obvious it isn’t going away, most of them stop checking on you. I guess it’s just depressing to always hear that someone isn’t getting better, so they don’t bother. 

only a few people bother to ask how I’m feeling, which means a lot. it’s a lot better than being asked when you’re going to be better.

so, pro tip. if you have a chronically ill friend/family member etc, please refrain from saying “get better soon!” etc. try to ask how they’re feeling, if there’s anything you can do, and hope that they find some relief.