WHAT IS A SPOONIE?
A spoonie is a person, living with one or more physical or mental chronic illness or disability, that identifies with Christine Miserandino’s Spoon Theory.
A Low Spoons Friendly Summary
FAQ
Visual Explanation (abridged)
Visual Explanation #2
SPOONIE NEWS
Antibody Wipeout Relieves Symptoms of CFS
CVS Can Be a Migraine Variant in Adults
EDS-HM: A Genetic Predisposition to Functional Somatic Syndromes
SPOONIE FOUNDATION WEBSITES
Ehlers-Danlos National Foundation
Fibromyalgia & CFS/ME Resources
DOCTORS & HEALTHCARE INFO
Getting a Diagnosis / Doctor’s Appointments 101
Low-cost or Free Healthcare Resources
When Should I Go to the Hospital?
SPOONIE ILLNESS INFO
10 Things to Understand About Illnesses
Chronic Pain Infographic
Crohn’s Disease Infographic
Fibromyalgia Infographic
Functional Ability Scale
Get to Know Endometriosis Infographic
Living w/ a Chronic Illness - From the Outside Looking In
Lupus Facts & Statistics
Mobility Devices - When Is It Time to Upgrade?
Mobility Devices - You Don’t Need Permission!
Myalgic Encephalomyelitis Facts & Symptoms
Really Quick Overly Simplified EDS Classifications
Second Guessing My Symptoms
Spoonie Awareness Ribbon Colours
Think You Might Have Ehlers-Danlos Syndrome?
What It’s Really Like to Be Chronically Ill
What Is Systemic Lupus Erythematosus (SLE)?
SPOONIE TIPS, HELP, & ADVICE
Assorted Cool Down Tips
Brief Guide to Recovering From Surgery, Flares, Treatments, Procedures, etc
Chronic Illness and Busy Schedules
Coping Skills for Disabled and Chronically Ill Persons
Costochondritis and Slipping Rib Syndrome Tips
Ehlers-Danlos Syndrome Advice
Ehlers-Danlos Syndrome Tips
Ice vs. Heat — What to Use When
Holiday Spoonie Reminders
Mankoski Pain Scale
Massive List of Resources for Ehlers Danlos Syndrome
Migraine Trigger Checklist
Nutrition and Crohn’s Disease
POTS and Mitral Valve Prolapse Tips
Resources for Vascular EDS
Saline Infusion FAQ
Self-Care Ideas, Tips, and Resources
Self Care When You Don’t Have the Spoons for Showering
Spoonie Tips (by iamlostinthetide)
Spoonie Tips (by thefaultinourpoons)
Tips for Traveling with a Chronic Illness
TMJ Dysfunction Tips
Yellow Dot Program
SYMPTOMS LISTS OF CHRONIC ILLNESSES
Fibromyalgia Monster List of Possible Symptoms
Lyme Disease Symptoms List
Mega List of Ehlers-Danlos Symptoms
The ME/CFS Symptoms List
SPOONIE REMEDIES & TREATMENTS
Do It Yourself Heating Pads Quick & Easy!
Non-Drug Treatments for Pain
Non-Pharma Pain Management
OTC Pain Medicine Chart
Periodic Table of Vitamins
Stretches That Help Your Digestion
Treating Lupus
Wheelchair Masterpost
SPOONIE SCHOOL-RELATED
504 Plan (Pre-University Accommodations)
Chronic Illness in University
Chronic Illness in University: Studying/Revising
University Financial Aid / Scholarships for Disabilities
SPOONIE MISCONCEPTIONS
“I have a chronic illness, therefore I am disabled.” not always true!
“I’m all alone.” false! see below.
INTERACTING WITH SPOONIES
10 Things to Say to Someone with a Chronic Illness Infographic
13 Reasons Why “But You Don’t Look Sick” Is Not a Compliment
Please Do Not Dismiss Me
Please Do Not Question My Activities
Open Letters to Those Without Ehlers Danlos
Stop Telling Me What I Need to Eat to Cure My Incurable Illness
Things Not to Say to a Spoonie Infographic
Things to Say to a Spoonie
Things Able-Bodied People Need to Stop Saying
SPOONIE STRUGGLES
5(+) Biggest Struggles of a Spoonie
SPOONIE CLICHÉS
Clichés Often Heard in the Spoonie World
Spoonie Problems
SPOONIE MEMES
Chronic Illness Cat
Chronic Illness Memes
Ehlers-Danlos Memes
You Might Have EDS If…
SPOONIE VIDEOS
I Am The 96%
Do You Care About M.E.?
Spoonie How To Videos • Education, Part 1 • Education, Part 2 • Education, Part 3
Spoon Theory v. Shot In The Knee v. Gorilla In Your House
SPOONIE PETITIONS
none for the moment…
THINGS TO DO ON A LOW SPOON DAY
Low-Spoon Recipes
Puppies! For Happiness!
SPOONIE DISABILITY
Chrome Extensions for Disabilities Masterpost
Disabled Beauties
How to Help Disabled People w/o Spending a Penny
Making Ends Meet When You’re Disabled
Voting While Disabled - Know Your Rights Infographic
What Disabled Persons Mean / What Able Bodied Persons Think
What Disability Bigotry Looks Like
SERVICE DOG RELATED
ADA Service Dog Laws
How to Get a Service Dog in 4 Steps
Key Things to Know About Service Dogs
Service Dog Companies
Service Dog Education
Service Dog Fraud - Quest for the Vest
AVOID ABLEISM
10 Easy Alternatives for Common Ableist Language Infographic
Ableist Language and How to Avoid It
Avoid Everyday Ableism
Avoiding Ableist & Sexist Language Won’t Make Us Less Fun
Do Not Call Someone Out For Using an Assistive Device
Do Not Shame Disabled People
Don’t Use Ableist Language
Friendly Reminder - Disabled People are People
List of Disability Terms w/ Negative Connotations
PSA - Do Not Dehumanize Disabled People
Reasons to Give Up Ableist Language
Young Does Not Equal Able-Bodied
SPOONIE ITEMS
Amazing Weighted Blankets for an amazing price!
AmoeBAND
Awesome Shower Chair
Back Rx by Nada Chair (helps w/ sitting up straight & back pain)
Electrolyte Replenisher Gluten-Free & Vegan
Good Rx App
Medical Alert IDs
Mobility Aids & Decorations
Printable EDS Emergency Wallet Card
Rx Timer Cap
Spoonie Magazine - The Pillow Fort
The Spoon Meter • How to Use • Code for ½ Spoons (by hyperelasticzebra)
T-Shirts That Must Have Been Made for Spoonies
SPOONIE GAMES
Brain Fog
INTERACT WITH FELLOW SPOONIES
Find Fellow Spoonies – Spoonie Directory
Lupus Support
Spoonie Chatroom
Spoonie Chatroom (by iamlostinthetide)
Spoonie Map
MISCELLANEOUS
Extra Burdens Faced by Young People w/ Chronic Illness
Spoonie Recipes Wiki
Walking a Little is Not “Able to Walk”
CREDITS
Last updated 31st July 2015 @ 14:27 EST Updated when possible (updated version here ♥) Please reblog / like only — do not edit. Thank you. Message hyperelasticzebra to add a blog, article, or post to the list. I try my best to find and add as many spoonies, articles, posts, etc to this, but please feel free to suggest things! I am a single person and don’t always have the spoons or time to search for information pertaining to specific illnesses or other spoonie things.
spoonie central
Reblogging because this looks like an amazing resource and I can tell a lot of work went into putting it together. I bet I’ll refer back on it someday. :)
To all my spoonies and dear friends