Epileptea

A blog about epilepsy and my journey with a little bit of advice and humor thrown in. Please follow on Instagram and Twitter @epileptea. Main website is Epileptea.com

[epileptea]

What Is Essential Tremor?

What Is Essential Tremor? #essentialtremor #chronicillness #tremor #visibleillness #chroniclife #DBS #spoonie

Essential tremor is the most common movement disorder that causes rhythmic shaking. It affects the hands in most cases, but I also can affect the voice, arms, legs, and head. The tremor happens when the person is trying to perform a simple task like buttoning a shirt, putting on makeup or shaving for example.

This disorder is a chronic condition, meaning it could last for years or even be…

View On WordPress

[epileptea]

10 Things You Need To Know About Endometriosis

10 Things You Need To Know About Endometriosis #Endometriosis #Chronicillness #Chroniclife #Pain #periods #spoonie #Cramps

Endometriosis is a disorder that causes the tissue found in the uterus to grow outside of the uterus. The tissue is often found on the ovaries, on the intestines, bladder and fallopian tubes.

There are many things women and doctors can ignore when talking about their health. Pain with periods is often looked at as a part of life. If it gets brushed off the underlying problem may go undiagnosed…

View On WordPress

[epileptea]

What Is A Chronic Illness?

What Is A Chronic Illness? #Epilepsy #chronicillness #invisibleillness #chroniclife #chronicdisease #things #spoonie #spoonieproblems

The term “chronic” is used to describe a long-term illness. A chronic illness cannot be prevented by a vaccine, completely cured and can require lifelong treatment and management. It does not go away on its own and often is an additional stress in someone’s life that forces them to change the way they live.

Every chronic illness has different symptoms, treatment, specialists, and variables. The…

View On WordPress

[epileptea]

4 Things You Should Know About Keppra (levetiracetam)

4 Things You Should Know About Keppra (levetiracetam) #Keppra #epilepsy #chronicillness #invisibleillness #seizures #kepprarage #AEDS #treatment #spoonies

 If you have had epilepsy for a while now, you have most likely heard about a medication called Keppra. Most of the stories and personal experiences are negative. But, there are those who take this medicine successfully with no issues.

Here are some important things everyone should know about Keppra:

The reason it has many negative stories/experiences surrounding it is that amajor side-effect…

View On WordPress

[epileptea]

What Is Epilepsy?

What Is Epilepsy? #Epilepsy #Chronicillness #seizures #seizurefirstaid #Absenceseizures #Spoonie #invisibleillness #health #education #chroniclife

Epilepsy is a chronic neurological disorder. 

When activity in the brain is abnormal it can cause seizures. There are many types of seizures. When you have an EEG the electrical activity in your brain is monitored while having a seizure. This will not only help classify which type you have, it will show where in your brain the seizures originate and potential problems it can cause.

Seizures can…

View On WordPress

[epileptea]

5 Hacks That Make Life With Chronic Illness Better

5 Hacks That Make Life With Chronic Illness Better #Epilepsy #chronicillness #invisibleillness #chroniclife #chronicdisease #things #spoonie #spoonieproblems

Sometimes it’s the little things that can make or break a day.

And as a fellow spoonie, I have picked up some little habits that help to improve or prevent an especially bad day. I’ve picked these tricks up over the years and now I tend to do them without a second thought.

If you can; change your pajamas when you get up. Even though you are no doubt going to ride your day out in bed, there is…

View On WordPress

[epileptea]

The Limits of Life With Chronic Illness

The Limits of Life With Chronic Illness

“You can do anything you put your mind to!” Yes! Let me just tell my brain that I am not sick!

While pep talks are appreciated, they can be seriously short-sighted.

These are just empty platitudes people say because they want you to feel included, something many people are programmed to do. Inclusivity is a good thing in the right context, but oftentimes it’s a cop-out to avoid feeling guilty…

View On WordPress

[epileptea]

Waiting on a Diagnosis

Waiting for a Diagnosis #Epilepsy #MS #ChronicIllness #blog #blogger #frustration #migraines

I never thought after my initial epilepsy diagnosis that I would be struggling with getting a new one again.

Since December 2017 I’ve been hit hard with some pretty bad health problems that seem to be unrelated to my epilepsy. I’ve had two doctors tell me they think that I have a progressive disease that is “most likely” MS. And now my neurologist agrees, but diagnosing MS is very difficult in…

View On WordPress

[epileptea]

Update

Thrilled to announce that I will be attending the #HeatheVoices2018 conference this year. Looking forward to meeting all of the wonderful advocates in the online community. #Epilepsy #Endometriosis #EssentialTremor #Blogger #ThankYou

This will be my first official conference of any sort as a blogger. I am thrilled to be going and participating. I will keep you updated with more to come about my experiences. I am looking forward to meeting so many wonderful people in the online advocacy community. Let me know what you would like to see. I will be posting mostly to my instagram and twitter during the three day conference so…

View On WordPress

[epileptea]

Epilepsy YouTuber Spotlight : Epilepsy Girl

#Epilepsy YouTuber Spotlight : @epilepsyandmee Check it out! And if you would like a shout out DM me. Share the love! #EpilepsyAwareness

  Hello, my name is Saaim Ali. I am 19 years old and live in Buffalo, NY. I was diagnosed with epilepsy in elementary school and later decided to advocate for epilepsy at 16. I want to share my story, my life and hopefully inspire others to keep moving forward and do the impossible. I want to hopefully be able to travel the country…

View On WordPress

[epileptea]

Chronic Illness : What I Wish Others Knew

What I wish others knew about chronic illness. #Epilepsy #ChronicIllness #Endometriosis #Messy #Blog #Blogger #Share #Like #RTplease #Sick #Spoonie

Chronic Illness is an incredibly diverse and broad term. It’s widely used as an universal label to categorize an illness that just won’t go away (in the simplest of terms). It’s something you live with for a long time, if not the rest of your natural life. Long story short, it’s a sh*t hand to draw. As of 2012, about half of all adults—117 million people—had one or more chronic health conditions.…

View On WordPress

[epileptea]

Lumbar Puncture

My recent experience having a lumbar puncture for the first time. #Epilepsy #EpilepsySucks #SpinalTap #LumbarPuncture #ChronicIllness #Medical #Hospital #Blog #Blogger #RTplease

A spinal tap/lumbar puncture is performed in your lower back, in the lumbar region. During lumbar puncture, a needle is inserted between two lumbar bones (vertebrae) to remove a sample of cerebrospinal fluid. Information gathered from a lumbar puncture can help diagnose: Serious bacterial, fungal and viral infections, including meningitis, encephalitis and syphilis Bleeding around the brain…

View On WordPress

[epileptea]

A little late for goals, but I’ve never been one for New Year tradition. 🤷‍♀️Link in bio. #Epilepsy #EpilepsyAwareness #ChronicIllness #UnconventionalAF #Goals #Share #Like 💜🖤❤️🧡💛💚💙

[epileptea]

4 Goals Before 30: How Chronic Illness Has Set Me Back

4 Goals Before 30! Sharing my goals as a #spoonie. Please read, like, share and comment! #Epilepsy #Tweet #RTplease #EssentialTemor #ChronicIllness #Setbacks #life #school #wiritng #writer #blog #blogger #wordpress #patreon #support

Living with my chronic illness will always be an uphill battle. I’ve realized recently I’ve let that hold me back in life. Some of it I can control, a lot of it I can’t. Setbacks like hospitalizations, 5 day migraines, days where I can’t get out of bed, and losing a job because I physically couldn’t perform it are all things apart of my life now. I need to get a hold of it and just try to get out…

View On WordPress

[epileptea]

Neuropsychological Evaluation: What 3 years of seizures did to my brain

What 3 years of having seizures did to my brain. #Epilepsy #Psych #Seizures #Psychology #Psychiatry #LTL #EEG #BrainDamage #EpilepsyProblems #Tests #Experience #Blog #Blogger #Writing

A neuropsychological evaluation is a series of tests that evaluate how a patient is doing in mental and physical aspects of life like: intelligence, executive functions (such as planning, abstraction, conceptualization), attention, memory, language, perception, sensorimotor functions, motivation, mood state and emotion, quality of life, and personality styles – med.unc.edu For me it was a pretty…

View On WordPress

[epileptea]

Your Support

Your support is invaluable. #epilepsy #epilepsyawareness #blog #blogger #support #donate #share #like #subscribe #love

I haven’t explained much when it came to starting my patreon and I feel now more than ever it is important to do this. I have a hard time working a regular job because of my recent relapses with migraines, seizures and tremors. It’s been difficult, I lost a job that was great. Two reasons led me to leaving it. One, the feedback in the headsets were triggering more seizures. Two, I have very bad…

View On WordPress

[epileptea]

#MedicalMarijuana #Cannabis #LegalizeIt I have written about my personal experience with medical marijuana in order to share my thoughts on it in the past on this blog.