Fearless Faith

Going where God leads

[fearlessfaith]

May 23, 2026

So, life has been absolutely chaotic. So much for getting Botox... stupid Medicaid insurance.

Thursday my family came back from a vacation to Monterey.

With June only a few days away, I will be on Medicare... and hopefully I will be able to get Botox.

Also I have some great goals planned for the next three months... I will keep you all updated.

[fearlessfaith]

April 7. 2026

Hello interwebs.

I’m here for an update.

I had a pt eval with Cheryl. This is my last chance to make therapy work so I’m in it for the long haul.

Next Wednesday is my Botox appointment which I’m hoping and praying will help my overly tight muscles.

Cheryl wore me out but I wanted to fill ya’ll in.

[fearlessfaith]

Saturday, January 31, 2026 7:50pm

Yeah 3 months and 26 days… it’s been awhile. I honestly forgot this existed. It’s been on the back burner of my mind.

Discipline.

I think that’s what the Lord wants me to learn this year. Honestly, I’m struggling with it because, I’m just gonna say it; I’m letting my HSP run the show. I move slower and energy is not a commodity I have a lot of.

For 2026, my goal is to turn my mindset around. My first goal was to start moving my body. My mentor gave me a stair goal of 20 climbs for the month of January.

I hadn’t climbed stairs since my legs have gotten worse over the years. But, I wanted to get up them so I could start using the vibration platform again.

I’m happy to announce mom helped me finish my 20th climb today 🥳

Ps. I’ll be back next month with more goals

[fearlessfaith]

September 5, 2025

Yesterday mom and I went to a concierge physical therapy clinic, Healing Hands, with Dr. Jamie.

One of the girls, Laura, I knew from when we saw Dr. Byl at Physical Therapy Partners told me that’s where she’s going now. She spoke of only good things with Dr. Jaime. Laura told me she no longer wears her AFOs and she can walk without her arm crutches.

Dr. Jamie and I did some fascia release on my calves, nerve glides, and a hamstring stretch. My legs still feel loose which I’m so thankful for.

It’s a pretty penny since it’s a concierge service, but at this point I’m willing to spend the money because she wants to treat the underlying condition, my nervous system. Not just the symptoms, my spasticity and tight nerves and muscles.

I know I’ve said it before— you probably think I’m the girl who cried wolf, which is understandable because it’s true, but I’m ready to change that opinion about me.

Honestly, I’m terrified because my depression has brought me to the point of not having hope to get better. But God No more planning, wishing, or trying— just DO the damn thing; which means it’s time to fight har

My mentor, Tammy, told me—“If you want the island, you gotta burn the boats.”

🏝️🔥🛳️🔥🚢🔥⛴️🔥🚤🔥⛵️🔥🛥️🔥

[fearlessfaith]

August 6, 2025

Checking in again friends.

On 7/7/25 I got my first massage and that did wonders for loosening me up. On 8/2/25 I had my second massage. She tried cupping and I think that freaked out my nervous system. I don’t feel anywhere close to how good I felt the last time.

Today, I had an evaluation for Botox for my tight adductors. That was a loooong appointment. The nurse that took my vitals tried to get me to give a urine sample in case I got put on opioids; I declined because that’s not what I came for. Then the APRN I had the appointment with tried to talk up a pump and putting me on Tizanidine, which is another muscle relaxer; I declined both, obviously. 😜

Today was just literal chaos and I’m happy I’m home.

[fearlessfaith]

July 7, 2025

Soooo. I tried Baclofen once more with no good results. I only got more fatigued. In general I’m already fatigued so I knew it had to go. Today I’ve got a massage appointment for fascia release so I’m excited for that. On the 23rd I’ve got a doctors appointment to get referrals for a foot doctor and a doctor to administer botox for my adductors and toes. I’m praying that this will work cause my walking is getting worse. I still have dreams of using my crutches and driving so I know it’s time to put my big girl pants on and stop acting like a child. I’m freaking 33 and I need to start acting like a damned adult.

I’m sorry. I know I’ve had many come to Jesus moments where I’m rebooted and reenergized to be better and I always fall short of the marks I want to achieve.

This is the time for change. I know the Lord’s mercies are new every day. So this is the day.

I promise you, the one reading my thoughts. Things are changing. Baby steps everyday.

I’ve learned a lot the past week or so, with my love life or lack there of. Friends will always come first and my heart is deceitful. Trust is something to be held close and not given freely until a true man of God earns it.

So with that said, I will be focusing on the present, my relationship with Jesus, my friends, and family. Building leg strength to use my crutches so I can drive, writing to finish my first book, and getting to Bozeman.

As Cody Johnson says, “If you’ve got a dream chase it, cause a dream won’t chase you back.”

[fearlessfaith]

June 17, 2025

A week ago on the 10th, I had a neurology appointment.

I decided to give the Baclofen one more try, but this time I will be able to take a “therapeutic” dose.

For this last week I have been taking 5mg twice a day.

Tomorrow, I will start taking 5 mg three times a day.

Then 10mg, 5mg, and 5mg…

All the way to 10mg, 10mg, and 10mg.

Once I have a week at 30 mg I will contact my neurologist and let him know how it’s going.

There’s other options but for now I’m giving Baclofen one more shot.

Next time I have pt, I’ll bring my arm crutches, I still have a goal to start driving again. It’ll be nice to have my independence again.

[fearlessfaith]

June 1, 2025

Baal-perazim.

Lord of breakthroughs

Today my best friend, Whitney, came to church with me.

Today is Thank You Jesus Sunday. Church was filled with the Holy Spirit. Worship, baptisms, and others coming to the mic to proclaim their testimonies.

Today was also the day I obeyed the Bible.

‭‭James‬ ‭5‬:‭13‬-‭15‬ ‭ESV‬‬

“Is anyone among you suffering? Let him pray. Is anyone cheerful? Let him sing praise. Is anyone among you sick? Let him call for the elders of the church, and let them pray over him, anointing him with oil in the name of the Lord. And the prayer of faith will save the one who is sick, and the Lord will raise him up. And if he has committed sins, he will be forgiven.”

I had the Elders anoint me with oil and pray over me for God to move, to heal me.

I love my church, they are my chosen family. I finally know without a doubt I am where I am meant to be, where God has called me to be.

Faith is a spiritual gift the Holy Spirit has given me. I think I’m finally understanding why. HSP is rare, but it’s the farthest thing from a walk (or scooter ride 😋) in the park. It’s hard. It sucks. But I am a daughter of the King, of the Creator, the Savior of the world. A daughter of the Lord of breakthroughs.

I don’t know why but I know God is moving. I feel it in my soul. I trust God for healing. I trust his timing because it’s perfect.

God is the Lord of breakthroughs.

My breakthrough is coming.

Thank you Jesus.

[fearlessfaith]

May 19, 2025

Well shoot. Yes, I’ve been gone with the wind, lost in what felt like a never ending black hole.

I started this blog to write about the experiences I have dealing with HSP; so I want to be brutally honest.

For a while now I’ve felt like I was drowning in hopelessness feeling like my life was taken from me.

Depression.

Anxiety.

It led to my breaking point.

A full on panic attack with all the tears and yells of frustration.

It wasn’t until the attack subsided when I was able to spill everything I’d been holding onto that I felt a lift off my shoulders.

After, my cousin Jake, who’s a well know yoga instructor in Southern California came out with a hypnosis meditation project for the month of May. Once I answered a few questions, he created 3 personalized hypnosis meditations for me to help me reclaim my mindset and power over my thoughts. These never fail to help me breath and reset. Then I had an appointment with my mentor and friend, Tammy, who helped me see the other side of the coin.

HSP can take my body, but it can’t take my mind.

It’s not about what happened but how I deal with it.

This is the body God gave me on this side of heaven, so I’m going to glorify him in whatever way I can.

[fearlessfaith]

March 2, 2025

Yesterday was the big 33. I must’ve partied too hard cuz this girl is exhausted. My caffeinated coffee isn’t even helping.

Yesterday was a great day though; the weather was gorgeous, food was delicious, decor was classy, and my entire family was present.

This morning I noticed a lot less spasticity so I didn’t take my baclofen.

33 is going to be a God did it year.

[fearlessfaith]

Heh, hello interwebs. Long time no see. Life there again got away from me and priorities changed.

In the past 6 months, I’m not sure if it was Todd (my pt) or taking my Baclofen regularly or just God but ever since the election last year I’ve noticed less spasticity. Weird. I know.

I’ve decided (again) I’m ready to put my big girl pants on to see what will happen if I choose to commit to daily exercises, hourly walking (cause I sit too much), and balance.

Full transparency here, friends, I have really struggled since I was diagnosed. I’ve “committed” to doing better more than once. I’m a work in progress.

My friend Nilem, that I met through a singles Christian community on instagram, gave me some ideas on exercises to do. She’s studying to be a physical therapist, ironically.

Funny how God places the right people in your life long before you realize.

This girl has hefty goals to accomplish in 2025. And thanks be to God for second, third, and umpteenth chances to start again.

My mentor Tammy’s voice comes to mind.

“Just do the next right thing.”

[fearlessfaith]

Well hello everyone! Long time no see.

I decided to write because apparently today’s the second birthday of my blog.

Honestly life happened and I left this blog in the dust. I think it’s time dust it off and get back to it.

I finally found my purpose meant for this life; to write, and to write anything I can get my hands on.

It’s a plug, but someone has to do it. I’ve got a wip, Buck Wilde Love that I just finished writing chapter 4 for, I’ve got this lovely blog, as well as something else that’s coming May of 2025 that I will share as it gets closer.

As of now I’m working on simple things to make them into habits so I can live my best life, things like walking every 30 minutes, lifting my legs when I walk, spending 20 minutes cleaning my room.

Regarding my HSP, I had stopped taking my baclofen because it just wasn’t doing anything. I seemed to have gotten worse so I tried it again after mom got me another prescription recently but it’s still doing absolutely nothing.

Todd, my PT, finally gave me some more exercises to do. They’re definitely a challenge but I’m determined to make my life the best it can be, but it’s about taking small steps every day, not arriving and saying “Ok, I don’t have to do that ever again.”

Life is all about the habits you create.

[fearlessfaith]

February 29, 2024

It’s great to be 8!

Haha I’m really 32.

What’s a bit ironic is today isn’t just my birthday but also Rare Disease Awareness Day. And my little dumpling Tubayon’s 4th birthday.

Today will be fun. Mom’s taking me for a pedicure at two.

We’re having Juicy’s burgers and French fries for dinner and I get apple pie on Saturday when my family comes to celebrate my birthday.

Also I’ve been meaning to update, I finally get to see Todd on the 11th for PT!

See ya soon!!

[fearlessfaith]

Good morning y’all.

I just realized I needed to post an update.

I finally found out that Todd, my pt, had an open heart surgery. That’s why I haven’t been to pt in about a month.

I talked to his step daughter and she told me he’s doing well and would be doing a dry run to see what all he can do as he continues to heal from the surgery. I should be getting a call with more of an update any day now.

Another exciting thing I realized I never shared is Todd told me I didn’t have to use my afos (ankle foot orthotics) anymore if I didn’t want to.

Yeah I ditched those in a blink of an eye.

I have been exercising as I have not had a physical therapy session in a while.

Most days I find myself on the struggle bus before completing my workout but I always feel better once it’s done.

I’ve gotten back into writing, even if it’s only fan fiction. One of these days a storyline and plot will come to me. 

See ya next time!

[fearlessfaith]

Happy 2024 y’all!

I promise I am very much alive and well, despite yet again falling off the edge of the Tumblr world.

As far as health updates, something strange happened with my physical therapy. My therapist is out for the month of January.

So I’m managing.

Insanity is doing the same thing and expecting a different result.

With that said, I decided to do something different.

I don’t wanna spoil it or jinx myself so I’ll leave you by saying I’m laying low for six months to focus on becoming the best version of myself.

It’s about damn time.

Stay tuned 😉

Love, Chelsey

[fearlessfaith]

Hello again friends.

It has been quite a while since I filled y’all in on what is happening in my life.

Unfortunately my PT, Nancy has moved back to California leaving me and her other clients without a therapist.

Despite thinking I was SOL, my aunt told me about one of the PT’s she has seen.

Mom and I figured I may as well and I am so glad I did.

This physical therapist, Todd, is a damn miracle worker.

He has a completely different approach to my therapy.

“Therapy for her is 30% science and 70% art.” Todd said last Monday.

He does what is called myofascial release; “is a therapy technique often used in massage. This therapy is focused on pain that comes from myofascial tissues — the tough coverings that wrap, connect and support muscles.”

He also told me to lay down and practice diaphragm breathing because when someone breaths this way they are able to breathe deeper, better, and they get far more oxygen.

I’ve only seen Todd twice but I’m already seeing and feeling positive effects.

As a whole I’m so much calmer, it’s helping my anxiety, I’m a lot happier, I sleep better, I’m noticing my adductors are much more relaxed ( I’m able to sit and not have my thighs glued together) and the biggest change, I have so much less spasticity!

To realize God had this change of loosing my pt, only to find another pt who would give me hope that my goals (hopefully ditching the walker, and maybe even my meds) was actually a real possibility.

All in all, it makes me frustrated that something so simple could have been the key. It makes me wonder how true the HSP diagnosis is.

[fearlessfaith]

Hello again.

Well today was the end of a long journey.

I finally have a firm diagnosis and name to the physical issues that plague my body.

Hereditary Spastic Paraplegia of SPG 11.

Mom, my brother, and I drove to the state line and had a zoom meeting with Dr. Rajkovic from UCSF’s genetic team.

I have a Bialleic mutation of the SPG 11 gene.

It’s an autosomal recessive HSP.

So both my parents happen to be carriers of the gene in question, so there’s 1 in 4 chance of a child (me) having the issue.

BUT! BUT! BUT!

I CAN HAVE BABIES!

The doc said its a 1 in 1,000 chance for my babies to have this mutation to the SPG 11 gene because finding another man with the same gene issue is basically close to impossible.

Hallelujah!!!

Now…

I have the diagnosis.

I refuse to let this rule my life.

This is my vow to everyone who reads this blog post,

I will put the effort in.

I will keep moving, strengthening my body, and stretching.

I will keep my mind sharp by playing brain games and reading.

I recently realized I want to pursue a career in writing, becoming an author.

I will continue to work on my mindset.

I have an opportunity to just maybe stop myself from getting worse.

I will take these steps one day at time. Eat the elephant one small bite at a time.