Please, help me save a life!
Sorry for disappearing again, life is hectic now, lots of things are changing. I will adapt, soon, I hope, and will come back to all of you and all of my stories.
But today I came to talk not about that and not even about me.
Today I came here to ask you for help. Please, read this post. Itβs super important.
Iβve never asked much from you, I believe. Besides asking to send me some stupid questions or read something Iβve written.
So, I hope it gives me the right to ask you today. Iβm asking not for much. Just, please, guys, help me save a life.
This is Sofia Darbinyan. Sheβs four months old. Sheβs from my city, from a very good family I know, the youngest of three wonderful girls. Sheβs only started her life, but, unfortunately, sheβs in a big trouble already. Β Sofia has Spinal muscular atrophy (SMA), itβs a neuromuscular disorder that results in the loss of motor neurons and progressive muscle wasting. Babies with this awful genetic disease usually die at about six months old, as they stop breathing and suffocate.
Several years ago, there was absolutely no treatment and kids were basically left to die. Last year the genetic medicine was produced, tested and licensed. Thereβs a cure. Itβs called Zolgensma. The only problem, itβs the most expensive medicine in the world.
Sofia needs just one shot to keep living almost absolutely normal life. But this shot costs $ 2,125 million.
This is enormous money for one family. In my country some people (a lot of people, to be honest) wonβt earn even 10% of this sum in their entire life. Itβs almost impossible to get this medicine through our governmental programs, as itβs not licensed officially on the territory of our country. And most of charity funds refused to help due to the high cost of the medicine.
Sofiaβs parents are doing everything to get at least some official help and support, but unfortunately, for now, we, usual people, are the only hope they have. The thing that makes it all even worse is that we have less than two months left, Sofia has to get the shot till sheβs six months old for it to help her. Β Weβve collected about $ 140 thousand already, but itβs not enough, of course.
So, today, Iβm asking you, please, guys, help me save this little angel.
$ 2 million is an extreme amount of money for one person. But if 1 million people donate $ 2 and 20 cents, itβll do the trick. In my country itβs a price of a coffee cup. Not that much for one person, right? But more than enough for Sofia to stay alive.
You can get more info on this instagram pageΒ https://www.instagram.com/helpsofiadarbinyan (tho itβs all in Russian, but I think instagram can translate it)
The PayPal for donations is paypal.me/vladarbinyan
If you need, I can help you see all the official documents and proof you need.
If you canβt donate money (I do understand that lots of people have lost their jobs and are experiencing hardship rn), please help us with reblogs. Itβs extremely important for as many people as possible to find out about Sofia, itβs more important than any fic reblogs, guys.
I see a lot of action happening every day, here on tumblr and outside, in the world. I see people standing by each other during all the madness with COVID-19, I see people protecting each other against discrimination, racism, violence and injustice. People hasnβt invented diseases, but itβs also a problem we have to fight. I believe in people. I believe in 5sos fam. I have seen how powerful we and our small actions are. Iβve seen you guys doing incredible things, like having all this disabledsos marathon or helping clean Michaels name. So, please, help me do one more good thing.
I do believe that kids like that come to this world to help us be better and kinder. And Iβm gonna try my hardest to try save this little angelβs life.
Please, guys, Iβm begging you, help! Any, even the smallest help matters. Every cent, every reblog, every prayer. Please, please, please. She deserves to live.