#ileostomy

[this-smile-is-real]

One day post-op and I’ve been in so much pain today. Living on 4 different pain meds and the acute pain service should hopefully be coming back tomorrow to do something slightly more invasive but hopefully helpful.

I’m also only managing 4-5hrs broken sleep tonight and have been for the last 3 weeks.

I am struggling

[this-smile-is-real]

Surgery went well. I spent two hours in recovery and have had Panadol, Endone, Tramadol, Buprenorphine and Fentanyl. I’m in a LOT of pain but I now have a tiny little stoma which is awesome. So grateful for the nurses, the surgeons and everyone on my team both inpatient and outpatient. Currently needing oxygen otherwise I de-sat to the 80s.

Also for those praying- my kidney function continues to drop. The level at which my kidneys GFR should be is in the 90s and mine is in the 50s.

So grateful for all of those prayed me to surgery today 💜

[this-smile-is-real]

The day has finally arrived! Ileostomy surgery #6 here we come 🙏🏻

[b-j-d]

A throwback to 2018, when Stan Lee was only 5. Today marks 13 years. Bit crazy to think about really.

Also, why did 2018 Stan Lee Stoma look like Sam Claflin in Enola Holmes? Did Netflix steal my idea 🤣🤣🤣🤣

[chronic-jessii]

Traveling via train to Austria with some friends and so far it's been pleasant. Crew was very helpful and careful with my wheelchair. So far the only awkward thing was finding something to hang my feed pump on, it's usually in a backpack attached to my wheelchair. Biggest drawback to traveling when you're disabled is the extra bag for supplies.

[chronic-jessii]

Who needs an alarm clock, when you can have an ostomy bag on the verge of bursting.

[chronic-jessii]

Introduction

I'm Jessii, 26, (she/her) lesbian. Living with chronic illnesses (EDS, POTS & gastroparesis), have an ileostomy (protectomy) and neurogenic. bladder. I also have a GJ tube which is for all my medications and nutrition.

[this-smile-is-real]

After months of bowel prolapses it has now started happening every time I stand up. It is incredibly painful and I’m having to have it pushed back in by doctors daily either in hospital or the Emergency Department. You have all been so supportive. I have an appointment with a local surgeon on Thursday and could really use your prayers that they will agree to surgery to fix this. Weeks ago I was told that where I live the surgeons refuse to do an operation so I started a GoFundMe by the recommendation of a family member to help with travel and medical expenses. If you would like the link please message me, and if you’re the praying kind please pray that that I will be lead to the right surgeon to operate.

I’ve had 4 abdominal surgeries in the last year but I can’t live with my ileostomy prolapsing 6-10cm every time I stand up. Thank you 🙏🏻